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Medical Privacy Law is Threatening Cancer Studies - See How You Can Make a Difference (with no cost and about 1 minute of your time)

Posted on: 10/17/2004

The following is an important issue that requires your help by sending a fax to the President of the University of California! The Brain Tumor Action Network has set up a simple, free and quick way for you to send a fax to support this!

There is an important and troublesome oversight in the current collection of cancer data for the California Registry. For the past two and one-half years, the California Cancer Registry has been unable to collect Rapid Case Ascertainment (RCA) cancer data from UC San Francisco and UC Davis. This lack of data has resulted in a complete cessation of cancer research in the areas where the cancer data is required. This denial of access to cancer records has impacted national cancer studies. The problem has resulted from a fundamental misunderstanding of the HIPAA Privacy Rule, which explicitly exempts "public health agencies" from the HIPAA Privacy Rule (164.512(b). For more information on this issue, please go to for details.

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