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New Research Project for recurrent glioblastoma patients on Avastin - Get a free genetic analysis!

Al's Comment:

 Hi. We have just partnered with Genetech and 23andMe on an amazing project that I want you to participate in! This is ONLY for ADULT patients Living in the USA, with recurrent glioblastoma (and  breast, kidney, colon and lung cancer) who use or have used Avastin starting before 12/31/12. Participation is by mail and over the web.  Read attached article for details!


Posted on: 01/29/2013

 Hi. We have just partnered with Genetech and 23andMe on an amazing project that I want you to participate in! This is ONLY for ADULT patients Living in the USA, with recurrent glioblastoma (and  breast, kidney, colon and lung cancer) who use or have used Avastin starting before 12/31/12. Participation is by mail and over the web.

Basically: you swab your mouth with  q-tip and send it in to 23andMe.  They will generate your somatic genotype at no cost to you, which is yours to keep. You get free access to the 23andME website, where you can view your genotyope and see how your genotype may affect your risk for various diseases. You can also see where your ancestors came from and optionally find genetic relatives!

You then return to the website and fill out a few surveys to see how you are doing with the Avastin. They want to see if any of the million or so "SNIPS" of your genome coorelate with outcomes.

Here is where we come in:  I also want you to join our Brain Tumor Virtual Trial project, which is a registry of brain tumor patients, the treatments they do and the outcome.  I always wanted to add the somatic genotypes, but the expense was too high. However, this is a perfect opportunity.  You can join both projects.  They will pay for the genotyping, and then you can download the raw data, and upload it to our website.  For privacy reasons, they are not allowed to give it to us directly - you have to download it and give it to us.  Then we can analyze it not only for Avastin outcomes, but also for all of the other 100+ treatments we are watching!  

With both projects, your genotype data will be coded so the people analyzing it can not associate your name with the genome data - they only get to see the raw data and the survey data with your name and address replaced with a patient number.

First, go to thier website to join:  https://www.23andme.com/invite-study/  when you get a note telling you that your genome is ready, then join our project at virtualtrials.com/brain  We ask you to fill out the initial history, then post an update once a month, and then upload your genome!  Our website is not yet set up to accept the genome data yet but it will be by the time your genome is ready.  

HERE is the announcement from Genetech and 23andme:


 

 

 

We need your help! 

 

Genentech and 23andMe have partnered on a new advanced cancer research initiative through the Web to better 

 

understand how genetics play a role in how some people respond to a certain advanced cancer treatment . 

 

 

 

You are InVited 

 

The InVite study aims to enroll 1,000 individuals with certain types of advanced cancer who received a certain 

 

medicine before 2013. For more information about this study, and to sign up, visit www.23andme.com/invite-study 

 

 

 

What You Get For Participating 

 

•  Convenient and easy opportunity to participate in new type of research 

 

•  Help accelerate medical research in certain advanced cancers and its treatment 

 

•  Receive updates about research progress and discoveries 

 

•  Learn about your health and ancestry through free access to 23andMe's Personal Genome Service 

 

 

 


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