First-Of-Its-Kind Treatment Beats Back Notorious Brain Tumor
Al Musella's Comments: (This is his personal views and are not necessarily the views of the Musella Foundation!)
I love articles like this. Diffuse midlines gliomas are among the worst of the worst brain tumors. Of course you can not make decisions based on a handful of case reports but they do give some hope where there really wasn't much before. Your donations have helped fund this - we gave 3 grants to help get this developed and it is in clinical trials, and there is a compassionate use program open. Ask your doctors about this if you have the H3K27M mutation (sometimes reported as H3F3A), or a brainstem tumor. It is most common in younger people with tumors near the midline of the brain. We will be dedicating part of the proceeds from our National Walk To End Brain Tumors 5k events to this project!
Posted on: 03/15/2019
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