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Displaying Stories 1 to 20 of 6,253
11/17/17 Toca 5 Trial is now open!
I went to an impressive presentation by Tocagen today at the SNO meeting! They have a few long term survivors who not only are survivors, but have been able to return to work and lead productive lives. The phase 3 trial opened yesterday.
11/17/17 GBM Heroes Honored By CURE
Thanks to Cure Magazine, Novocure, Dr Sumrall, as well as my wife and kids - without whom I wouldn't have been able to do this!
11/07/17 Liquid Biopsy Spots Aggressive Pediatric Brainstem Cancer Earlier
This blood (and spinal fluid) test can help diagnose and monitor the response to treatment for these devastating tumors. There are drugs under development which target the marker mentioned, so this blood test might be able to be used to determine which patients get these new drugs, without the need for biopsies. Amazing stuff. And we are proud to say we are one of the sponsors. Your donations at work!
10/28/17 Durable Responses Observed in Recurrent
High Grade Glioma (rHGG) with Toca 511 &
Toca FC Treatment
This is a presentation about the Toca 511 / Toca FC trial. There are 6 long term survivors (4 GBM, 2 AA), all of whom had a complete response, And once they achieve a complete response, NONE had a recurrence. We never use the word "cured" when talking about a GBM, but having a clear scan for over 3 years makes us think it is possible a few of these patients may have been cured. It is only a small % at this time - 43% have some benefit from the treatment, and 20% have a significant response. Hopefully it will only get better and this may lead to a major breakthrough.
The Musella Foundation was an early supporter of this research (and they acknowledge us on the presentation:)
10/12/17 Fake Blogs: Warnings About Medical Advice from Online ‘Experts’
This is the greatest benefit of our online support groups. We have people who have been through everything, and have researched everything. It is a place where you can boucne ideas off of others instead of just finding random medical advice on the internet. It is impossible for someone who was recently diagnosed to understand the difference between real and fake news. They so much want to find a cure that they may be easily mislead by unscrupulous people. Actually, some of the people promoting these cures are good people who actually believe in it - because they do not have the background to understand how science works. An example: a relative was fighting a gbm and went through ups and downs. One down (after her 3rd course of radiation) was so bad we thought it was the end. She could only eat lemon ices. Had trouble chewing and swallowing anything else. And she had a miraculous recovery. In her mind, it was due to the lemon ices and she was telling people to eat lemon ices. In reality - the down was caused by damage and swelling from the radiation, which she recovered from. It is all in the point of view.
The best online support group for brain tumor patients is the braintumor treatments group at https://virtualtrials.com/braintumor-treatments.cfm
Displaying Stories 1 to 20 of 6253