Brain Tumor Related News!
Fundraisers For Brain Tumor Research!
Brain Tumor Conferences / Events
New Clinical Trials
Noteworthy Treatments Explanation of the new high tech treatments!
Conferences / Events
- No events scheduled. Please check back soon!
Brain Tumor News!
Displaying Stories 1 to 20 of 6,297
01/20/18 Cancer remedy draws patients and criticism
I know nothing about this specific treatment, but it raises a lot of red flags. They refuse to publish results. This could mean one of 2 possibilities:
The treatment doesn't work - so if they publish results, patients would stop going to them and stop giving them $250,000 a treatment. OR - the treatment does work, and by not sharing the results - they are literally killing thousands of patient a year who could benefit from the treatment, if it really did work. Either way, not good.
If it really worked on pediatric DIPG, it would be simple to prove, since the standard treatments do not do so well.
01/10/18 Dr. Kurt Jaeckle to Lead Phase III Clinical Trial of Novel Drug VAL-083 for Late-Stage Glioblastoma
This is a trial for recurrent glioblastoma patients who have failed Temodar and Avastin. There is another trial of Val-083 for newly diagnosed MGMT unmethylated patients. Val-083 is a chemotherapy similar to Temodar but works at a different location on the DNA of the tumor cells. It should theoretically not be affected by the MGMT status and may work even when the tumor is resistant to Temodar
12/29/17 Musella Foundation awards brain tumor research grant!
We gave this researcher a grant previously - that project came out very well. She now needs just a little more money to follow up on it to get enough data to apply for big government grants. Our relatively small investment in her work can lead to a big grant that can take this new treatment into the clinic!
12/27/17 Cancer Drug Price Rises 1,400% With No Generic to Challenge It
My knee jerk reaction is that this is insane. They did not spend a penny on research and development for it - that was done 40 years ago! However, without this company making it, we wouldn't be able to use it. Nobody would be making it. If anyone else wanted to make it, they would be able to, and the price would go down. Medicare (which is probably the largest payer for this drug) paid about $600,000 last year for this drug, at the high price. Back when it was cheaper, they used to spend $160,000 a year on it. That isn't enough money for a drug company to take on it on. Even for a generic drug, it requires some people to work on it, manufacturing and distribution costs, advertising as well as insurance in case it causes problems. I can see how a drug used in rare instances can be this expensive.
12/23/17 Musella Foundation Co-pay Assistance Program Status
If you could use help - do not be shy about asking. These treatments can get expensive. If you think you need it, apply as soon as possible as the program is going to close quickly. Send by fax. IF you do not have fax, email it to us, but call us on the phone 888-295-4740 after you email it, and tell us you sent it. We will look for it and fax it for you.
12/23/17 Musella Foundation awards brain tumor research grant!
This project will hopefully allow the researcher to apply for a large NIH grant to get the clinical trial going!
I thank all of our end of year donors for making this possible.
We have 3 other worthy projects waiting for funding. If you would like to help fund them, make a donation at: Virtualtrials.com
As a reminder, the tax laws have changed significantly for next year. For most people, it is going to be better to donate in 2017 than 2018. Ask your accountant! As always, it is best to donate appreciated stocks than to donate cash. This works best for stock that you own for over a year. Click HERE for details on why it is better. We make it simple to donate stock. Just call us at 888-295-4740 and we will explain how to do it.
Displaying Stories 1 to 20 of 6297