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Conferences / Events


  • UCLA 18th Annual Brain Tumor Conference
    • Dates: May 18-19, 2018

    • Location: UCLA Carnesale Commons, 251 Charles E. Young Drive West, 3rd Floor, Los Angeles, CA 90095

    • Cost: Free - but need to register by May 15th!

    • Contact: Luzianne Fernandez

    • Phone: (310) 206-3610

    • Email Address: mailto:neuroonc@ucla.edu

    • Online Registration: www.neurooncology.ucla.edu

    • Join patients, caregivers and healthcare professional at the 18th Annual UCLA Brain Tumor Conference, and hear leading healthcare professionals and patient advocates speak about the latest treatments for brain tumors, symptom management and resources to help one manage and navigate living with a brain tumor. Also visit with representatives from brain tumor organizations, health advocacy groups and support groups to learn about resources available to the brain tumor community



Brain Tumor News!


Note: The comments under each article title are the opinion of our president, Al Musella, DPM, and do not reflect official policy of the Musella Foundation!

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04/19/18 A Shock to the System: Tumor-Treating Fields Plus Temozolomide for Glioblastoma        

 Nothing we did not know before, but now this impressive journal has an article that says Optune should be the standard of care for GBMs.  This should help get insurance coverage for those few plans that still deny it.




04/18/18 Musella Foundation Copay assistance program is now closed to new and renewal patients        

 We just awarded our 1,000th grant (of $5,000 each) to a brain tumor  patient in need of help today!  

I know most people would rather donate to brain tumor research, but there is a huge need for this type of help also.   

We give you a choice when making a donation - you can pick where your donation goes!

 




04/18/18 Validation of post-operative residual contrast enhancing tumor volume as an independent prognostic factor for overall survival in newly diagnosed glioblastoma.        

This study definitively proves what we already knew, that you do better if the entire tumor is removed. At a recent FDA advisory committee meeting I attended, the FDA said they did not believe that is the case.  Next time they will believe this study.

 




04/18/18 New Technology Crosses Blood-Brain Barrier To Fight Glioblastoma Cells Directly        

Interesting new drug - apparently did well in phase 1 testing.




04/18/18 First-in-human evaluation of the Cleveland Multiport Catheter for convection-enhanced delivery of topotecan in recurrent high-grade glioma: results of pilot trial 1.        

 This is a big advance in brain tumor treatments. This new device allows the delivery of drugs to precisely where it is needed. Many clinical trials using convection enhanced delivery failed because the drug did not get to where it should have been.   Perhaps those trials should be redone using this system.  




04/17/18 Can all the money in the world beat cancer?        

 Maybe it could!  This person identified the collaboration between the Musella Foundation and Cancer Commons as one of the things he would fund if he raises all of that money!




04/17/18 Study Reports Possible Novel Method for Stopping Untreatable Pediatric Brain Cancer        

 It is way too early to say it stops these pediatric brain tumors but this is a new idea that hopefully will start human clinical trials soon!




04/14/18 WEALTH: All the money in the world: A couple whose child was diagnosed with a brain tumor is hoping an influx of funding will help find a cure.        

This man asked my opinon, and I told him: The Virtual Trial.  We are expanding our virtual trial concept, collaborating with other organizations, and now have a team of experts who can help find the best treatments, track the outcomes, and learn from every patient..  Go to virtualtrials.com/ask for details.

 




04/14/18 Musella Foundation Co-pay Assistance Program is about to close to new patients        

 Our copay assist program needs donations. I know most people like to donate to research only, and that is also badly needed. When you donate to the Musella Foundation (a https://virtualtrials.com/donate8.cfm ), we let you specify WHERE your donation will go, with 3 choices:

1. Brain tumor research only - 100% of your donation will go to research.  (we also have some specific funds you can donate to such as DIPG or Oligodendroglioma - on our website, click on donations, the Special Funds)

2. Copay assist program - 91% of your donation with go to a needy patient.  9% has to be used to cover the expense of running the program.

3. Anywhere it is needed.  This covers the foundations' expenses which allows us to provide our services, as well as educational resources. Anything left over is used for research. Never for copay.

 




04/12/18 CANbridge Receives Approval to Commence CAN008 Phase II/III Trial in Glioblastoma Multiforme (GBM) in China        

 This is a new approach . They are running trials in China for newly diagnosed and recurrent GBM patients.




04/12/18 Concurrent BRAF/MEK Inhibitors in BRAF V600-Mutant High-Grade Primary Brain Tumors.        

 This is a very important article.  Although a small sample, it opens the door to using a BRAF inhibitor for brain tumors that have the BRAF V-600 mutation. Note that this shouldn't be used in other mutations of BRAF, only the V-600 mutation. They found that using these drugs may actually speed up the tumor if they do not have the V-600 mutation.




04/06/18 The Musella Foundation For Brain Tumor Research & Information, Inc awarded a brain tumor research grant today!        

This is an interesting project.  This is  a preclinical experiment that may quickly lead to a human trial!  




04/06/18 Phase II clinical trial starts evaluating new drug for glioblastoma        

GDC-0084 (RG7666) which is a novel BBB-penetrating PI3K/mTOR inhibitor displaying a high brain-to-plasma ratio (1.9–3.3). It remarkably impedes the proliferation of five GBM cell lines and suppresses the growth of U-87 MG GBM xenografts through decreasing Akt phosphorylation 




04/04/18 A One-Two Combo Punch for Lung Cancer        

 This sounds pretty good. It also worked in a mouse model of glioblastoma, so they are going to start a trial of this combination for Glioblastoma patients.  Both parts of the combo are approved so they can be used off label now.




04/04/18 Apexigen to Recruit Children with Brain Tumors for Phase 1 Trial of Immunotherapy        

 This is a phase 1 trial, which means we do not yet have results but may sounds logical.




03/31/18 The Musella Foundation For Brain Tumor Research & Information, Inc awarded a brain tumor research grant today!        

 This is an important project because the drug being studied is approved for Lung Cancer. so if they find it useful for glioblastomas, it can immediately be used off label!




03/30/18 Optune Open House, Newton MA        

 This is a nice series of meetings for patients and caregivers who use (or are thinking of using) Optune.  




03/25/18 About ONC-201 - a new class of oral treatments for brain tumors        

 ONC-201 is a new class of treatment for brain tumors -  it is in clinical trials now for recurrent GBMs and any type of glioma that has the H3 K27M mutation!




03/24/18 UCLA 18th Annual Brain Tumor Conference        

 Always a worthwhile experience from our good  friends at UCLA!




03/23/18 FDA issues Class I recall for Minnesota-made brain probe        

 This is a rare occurence - happening about 12 times out of 1,800.  The cause was identified and they are fixing the problem, and letting the doctors know about it so they can watch for it and prevent problems.  I feel it is still a good treatment as this device is used for "inoperable" tumors that will most likely kill the patient without the treatment, so it is still worth the small risk.




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