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Brain Tumor News!
Displaying Stories 1 to 20 of 6,187
06/21/17 Looking Ahead: Combination Offers New Hope For Glioblastoma
They are talking about the combination of Tarceva and Thalidomide. Looks good in the lab but needs to be tested in people. Both parts are approved for other diseases so they should be easy to get. I checked our virtual trial results. We had 2 glioblastoma patients who reported using that combination. (and 2 patients with other tumor types) . One died after 24 months, the other is alive at over 10 years. That is good - but you can not go by just 2 patients. If you try the combination, please join the virtual trial first so we can track it.
06/08/17 FDA has approved Gleolan
This allows for a more complete resection! If you are going to have a brain tumor surgery, ask your neurosurgeon about this to see if it is appropriate for your case!
06/07/17 Medicenna’s Immunotherapy Phase 2b Trial Underway Using Brainlab Drug Delivery Technology
[Disclosure - this company is a sponsor of the Musella Foundation| It looks like the technology to get the drug in the correct spot at the right concentration is finally here. Follow the link in the press release to the background info on the delivery system. And this may be the right drug to use. In an earlier study, in recurrent GBM patients, they had a few complete responders, with some still alive 4 years later.
06/01/17 Musella Foundation awards 7 brain tumor research grants!
I would like to thanks all of the volunteers and participants in our "Natioanl Walk To End Brain Tumors" who made this possible, as well as the donors to our organization and the families that named us for memorial donations.
Efficacy Results for ONC201 in Recurrent Glioblastoma Published
Impressive results in a few patients. Interesting about the histone H3 tumor mutations - it has been shown that brainstem gliomas commonly have that mutation. Unfortunately only adults are getting access to this compationate use program now. Maybe they will expand it to children after a few adults do well.
The Musella Foundation funded the early work on this new treatment!
05/25/17 HELP US BETTER UNDERSTAND PATIENT EXPERIENCES:
We had a good response when I announced this last week but there are still 10 more spots available! It is a 30 minute survey - you get paid $75, and the Musella Foundation gets a donation also!
05/20/17 Market Research Opportunity for GBM Patients - ONLINE SURVEY
This is another market research survey. The Musella Foundation gets a donation from them when patients take the survey. They recently donated $2,500 to us, as well as paying each participant $70. Not bad for 30 minutes of your time! Let me know if you take the survey!
Displaying Stories 1 to 20 of 6187