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263 links found

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Rating Site Name DescriptionVisitedDate Added
Score = 0 Ampyra Ampyra, also known as "The Walking Pill" and by the drug name dafampridine, is one of the few types of Drugs that actually attempt to help MS symptoms. Ampyra is made to help patients walk faster and achieve better balance. It does help some patients achieve much better results. 008/03/20
Score = 0 Aubagio Aubagio is an Oral Disease Modifying Drug for Multiple Sclerosis made by Genzyme also known as Teriflunomide. 008/03/20
Score = 0 Copaxone Copaxone is an injectable drug taken daily or three times per week for Multiple Sclerosis 008/03/20
Score = 0 Gilenya Gilenya is an Oral Disease Modifying Drug Made by Novartis also know by the name Fingolimod. 008/03/20
Score = 0 Lemtrada Lemtrada is an injectable infusion taken for a full week and only once per year. It is also known as alemtuzumab and like Tysabri is a monoclonal antibody drug. 008/03/20
Score = 0 Mavenclad MAVENCLAD® (cladribine) tablets is indicated for the treatment of relapsing forms of multiple sclerosis (MS), to include relapsing-remitting disease and active secondary progressive disease in adults. 008/03/20
Score = 0 Mayzent Mayzent is a pill for active secondary progressive multiple sclerosis 008/03/20
Score = 0 MSworld.Org We are here to provide support and information to people living with multiple sclerosis. MSWorld offers chat rooms, message boards, a wellness center, creative center, resource center, conference center, an arcade and social networking. 008/03/20
Score = 0 National Multiple Sclerosis Society People affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever. 008/03/20
Score = 0 Ocrevus Ocrevus is an infusion drug for both relapsing and progressive Multiple Sclerosis.The first infusion is split over 2 weeks and consecutive infusions are given every six months. No PML has been reported as yet with this drug however it does carry some risk. 008/03/20
Score = 0 Plegridy Plegridy is an injectable Disease Modifying Drug made by Biogen also nown as peginterferon beta-a. The drug is similar to Avonex only it is not given as requently. 008/03/20
Score = 0 Rebif Rebif is an injectable Disease Modifying Drug made by EMD Serono also known as interferon beta 1-a. 008/03/20
Score = 0 Tecfidera Tecfidera is a pill that is usually taken twice per day for Relapsing Remitting Multiple Sclerosis 008/03/20
Score = 0 Tysabri TYSABRI® (natalizumab) is a once monthly infusion prescription medicine used totreat adults with relapsing forms of Multiple Sclerosis (MS). Tysabri has one of the highest success ratings in preventing new lesions but carries considerable risks of PML. 008/03/20
Score = 0 Zeposia ZEPOSIA® (ozanimod) is a prescription medicine used to treat relapsing forms of multiple sclerosis (MS), to include clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease, in adults. 008/03/20
Score = 0 Kenzig.MS Links to Multiple Sclerosis Events Pages, as well as links to payment assistance for Multiple Sclerosis 008/02/20
Score = 0 Brain Tumor Singapore Brain Tumor Foundation 118706/25/19
Score = 0 Xanthoastrocytoma xanthoastrocytoma blog 6806/12/19
Score = 0 The Recovery Village Grief is an intensely emotional and natural response to loss. Many times, the temptation to turn off the emotions associated with grief can be overwhelming, and substance abuse may provide a temporary escape. The Recovery Village offers comprehensive treatment for dual diagnosis based drug and alcohol rehab, eating disorder and mental health treatments tailored to the patient’s specific needs. Top of the line medical care, combined with wellness programs and holistic addiction treatments such as yoga and meditation, massage and equine resources mean we are dedicated to healing the whole self. 7609/04/18
Score = 0 Follow a memoir in progress Karen writes about the lessons she learned from her son`s 20 year SUCCESSFUL rumble with a pylocytic astrocytoma. Please click on the link to follow her journey. 44305/04/18
Score = 0 Braintumour Foundation The Netherlands Finding a cure by stimulating brain tumour research fund 57701/12/18
Score = 0 Cancer Hope Network Matches cancer patients or family members (including those with malignant brain tumors) with trained volunteer cancer survivors who themselves have had a similar cancer experience. 131401/27/16
Score = 0 Team Amber Supporting Brain Cancer Awareness. Helping one family at a time. 415511/28/15
Score = 3 iSTAR (Initiative for the Study and Advanced AT/RT Research). Atypical teratoid rhabdod tumor (AT/RT). 323310/10/13
Score = 3 Epidermoid Brain Tumor Society Epidermoid Brain Tumor Society 602105/09/12
Score = 4.2 The Social Security and Disability Resource Center The Social Security and Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is a former disability examiner for the social security administration. 4197411/09/11
Score = 3 German Brain Tumour Assoziation The Deutsche Hirntumorhilfe e.V. - a brain tumour association registered in Germany - was established in 1998. It is the only organisation in German-speaking countries dedicated to providing information and support to brain tumour patients. 458910/03/11
Score = 3 The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center one of the largest and most successful in the field. It has received the highest rating of 1216909/27/11
Score = 3 Brain Tumour Supoort Brain tumour support organisation in Western Australia offering assistance to people with brain tumour, their family, and carers. 526206/30/11
Score = 3 Find a doctor at Vitals.com Vitals.com is a great source for comprehensive medical information on over 720,000 doctors nationwide. Our site offers consumers free information on doctors’ practices and specialties, consumer reviews, recommendations from other doctors as well as free physician profiles. 508506/16/11
Score = 3 Cancer Treatment Options and Management A personalized cancer research company that informs and educates cancer patients on recent peer review cancer research for their specific case. 1290605/19/11
Score = 3 Site in Australia that provides support and treatment to brain tumour patients Australia Brain Tumour Alliance 1039302/26/11
Score = 3 Epilepsy Resources Epilepsy Resources 875712/04/10
Score = 3 National Cancer network Guidelines. These are the official guidelines of standard treatments for all types of brain tumors. Registration is required but is free. 6421309/02/10
Score = 3 Beyin Tümörü Tedavisi Türkiye A Brain tumor patient support group established in Turkey 1023706/29/10
Score = 3 Healing Care Resources This site shares how dying people teach us to enter into soul awareness and heal from our grief. 709606/13/10
Score = 3 Boston Medical Center CyberKnife Boston Medical Center`s CyberKnife program offers state of the art, image-guided robotic radiosurgery with frameless technology 2623703/10/09
Score = 3 BT Buddies A website for high grade brain tumour patients, their families, friends and caregivers living in the UK. 2322401/28/09
Score = 3 Advent Health Neuro Institute amma Knife is non-invasive surgery for brain tumors, inoperable brain lesions, malignant tumors, tuberous sclerosis, metastatic brain cancer, trigeminal neuralgia and rarer cancerous brain tumors. 1114710/21/08
Score = 3 ClinicalConnection, Inc. Clinincal Trials 1471508/25/08
Score = 3 Mimi`s Story: Her Journey with GBM A memorial diary which chronicles my mother, Charlotte`s, journey with Glioblastoma Multiforme: onset of symptoms, diagnosis, medical options, hospice care, her passing and afterwards. One woman`s story through the eyes of her daughter. 2380303/13/08
Score = 3 Akron Children`s Hospital Brain Tumor Surgery Center Akron Children`s Hospital uses the most advanced, image-guided neurosurgery technology available for removal of brain tumors in children and teens. 3536502/26/08
Score = 3 The Matthew Larson Pediatric Brain Tumor Foundation (also known as IronMatt.org) The IronMatt Foundation Mission - To raise the awareness and funds needed to overcome pediatric brain tumors and to help the children and families affected by it. 1323402/19/08
Score = 3 Fighting Chance Counseling, reference and resource center for patients and caregivers of all cancers across all stages of illness 1322401/17/08
Score = 3 Ian`s Tumour Blog of GBM patient diagnosed August 2007 1428710/21/07
Score = 3 Anatomy Charts & Anatomy Models Anatomy Warehouse supplies anatomical models, anatomy charts, medical books, fitness books and educational products for classrooms and healthcare professionals. 1615105/22/07
Score = 3 Agydaganat.info - Sandor Czirjak Md, P.hD., D.Sc. Neurosureron homepage Hungarian and english language website: brain tumors, pituitary, epilepsy, surgery 2207704/30/07
Score = 3 Celldex Therapeutics Developer of a vaccine therapy for brain tumors 1187304/20/07
Score = 3 BT Canada This group supports brain tumor patients and caregivers and live in Canada 3512402/24/07
Score = 3 CyberKnife - Astrocytoma - San Diego Cyberknife Center San Diego CyberKnife is an outpatient Center dedicated to providing image-guided radiosurgery using the CyberKnife® System. 1058601/15/07
Score = 3 The Annie Appleseed Project Complementary, Alternative (CAM) from the cancer patient perspective 1132812/05/06
Score = 3 NovoCure - a new device for treatingGBMs The NovoTTF-100A is a portable, investigational device for cancer treatment using TTFields – Tumor Treating Fields 1855911/23/06
Score = 3 NY State Traumatic Brain Injury Waiver Program Offers assitance to NY patients with brain injuries 3550909/22/06
Score = 3 Childhood Brain Tumor Memoir This website is dedicated to Sean Crooks who died in 2000 from a brain stem glioma. It promotes the award winning book Can I Take My Panda Daddy? and provides links to the organisations and websites the author and his family found invaluable. 1891008/28/06
Score = 3 Mayo Clinic Brain Tumor Center Brain tumor center at the Mayo Clinic in MN, FL and AZ 17084606/27/06
Score = 3 Cyberknife Center of Philadelphia Robotic Stereotactic Radiosurgery Using the Cyberknife 1239706/25/06
Score = 3 Brain Tumor Treatment and Diagnosis Options at Mayo Clinic Mayo Clinic offers diagnosis and treatment options for glimoas, metastic brain tumors, pituitary tumors and meningiomas. 5801103/20/06
Score = 3 3rd Annual Lauren`s First and Goal Football Camp - Sunday, June 4, 2006, Lafayette College, Easton, PA A one day, non-contact, instructional clinic to raise funds for pediatric brain tumor research. Last year over 800 players and 100 volunteer college coaches helped to raise over 74,000 for LFG. A pediatric cancer survivors Fun Day is also held during the football clinic- crafts, activities, lunch and entertainment for patients, family and friends. 4722303/19/06
Score = 3 List of Notable Brain Tumor Patients A featured list at Wikipedia. Identifies dozens of celebrities and other noteworthy people and provides links to reliable sources for further reading. 1469903/02/06
Score = 3 Brain Tumour Australia Inc. An Australian National not-for-profit organisation providing resources, education & support 2076902/09/06
Score = 3 ULCA Neurosurgery Brain Tumor Program ULCA Neurosurgery Brain Tumor Program 20004701/12/06
Score = 3 Bran Research Trust Information on Research to Brain Tumours 17423012/20/05
Score = 3 AboutKidsHealth Brain Tumour Resource Centre is a comprehensive, interactive, accessible resource for families of children with a brain tumour. 2584612/19/05
Score = 3 Diseases & Conditions Resource Directory for all consumer health diseases and conditions information - nutrition, cancer, diabetes, mental health, allergies, depression, anxiety and more. 1188712/09/05
Score = 3 Jane Symons Follow Jane`s Progress with her fight against a GBM 1501611/18/05
Score = 4 Brain TUmor Survivor Brain Tumour Survivor is a positive site of hope for those living with a brain tumour. A site dedicated to discussing survivorship, treatment options available now and those options on the horizon that show promise. 2150911/17/05
Score = 3 Marty`s Joke of the Day Stories about Marty, his family, and his 4 sons. The youngest has brain cancer. 3960809/14/05
Score = 3 Dual Diagnosis Dual diagnosis is defined by the presence of both mental 1552708/28/05
Score = 3 National Brain Tumor Society Supports research & offers free patient & family support services 1022208/08/05
Score = 3 PedJobs The official employment resource for the American Academy of Pediatrics 2943606/17/05
Score = 3 Medulloblastoma Patient and Caregiver resources Support resources for anyone affected by medulloblastoma 1224506/16/05
Score = 3 The International Brain Tumour Alliance (IBTA) An alliance of support, advocacy and information groups for brain tumo(u)r patients and carers in different countries which also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours. 1103606/10/05
Score = 3 Easy to Swallow A website providing Recipes for People with Chewing and Swallowing Problems, due to ill health, dental work or advancing age. 1708804/10/05
Score = 3 ShuntCheck Only FDA-cleared non-invasive method to detect CSF flow in VP/VA shunts 1549604/01/05
Score = 3 Skull Base Institute Minimally invasive surgery for brain tumors 11629103/11/05



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