The Musella Foundation For Brain Tumor Research & Information, Inc is
a 501(C)3 nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research.
This site was last updated on:
04/21/2019 8:54 PM
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what was added!
10/29/14 Supplement to "Seminars in Oncology" devoted to NovoTTF-100A. This is a set of 4 research papers and an introduction. This is the publication of the registry data mentioned below. It goes into more details on the analysis of how the treatment works in patients and patterns of response. It shows that in about 50% o the patients who respond, the first MRI looks worse, and it takes about 5 months for the MRIs to start to look better - so be aware and do not give up too soon.
Delayed response and survival from NovoTTF-100A in recurrent GBM . A case report of a patient from the trial for recurrent GBMs, who has been on the device and doing well for 6 years. Of note is his initial MRI after sterting the device looked worse. This shows that the device takes time to work and some people have been stopping too soon.
Links- One of the
most extensive listing of links to brain tumor resources
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This site is designed for educational
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advice or professional services. The information
provided through this site should not be used for
diagnosing or treating a brain tumor, health problem
or a disease. It is not a substitute for professional
care. If you have or suspect you may have brain
tumor, you should consult your health care provider.
If you find something here (or anywhere on the
web for that matter) that you think may help you,
bring it to the attention of your doctors and ask
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the treatment to offer advice - have them call
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Dr. Musella, the president of the Musella Foundation,
is a Doctor Of Podiatric Medicine, not a brain
tumor specialist. He may provide ideas for you
to pursue, but can not provide medical advice.
We do not recommend any individual trial or brain
tumor treatments- we are just letting you know
of their existence. The listings are in random
The articles on this site are all just the opinions
of their authors. We (the Musella Foundation) do
not necessarily agree with the concepts expressed.
All articles are reviewed by our medical advisory
board before publishing on this website to help
weed out inaccurate or misleading information -
but we can't guarantee the accuracy of all of the
information on this site.