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- Question: My 10-month-old daughter has Infantile Spasms. She has had 3 MRIs and each one shown a small cyst, with each MRI it has grown to now 1 cm in size. It is also located next/above the hippocampus. Should she be seen by a neurosurgeon? She has seizures daily.
There are several factors in this decision. Is she under the care of a
pediatric neurologist? Are you getting good information form him/her? Are
there other issues in her normal development that are lagging? Does the
neurologist think this is a 'surgical' lesion? Are you at a major medical
center? See www.survivingbraincancer.com, especially Chapters 5,6,7 on getting appropriate specialists.