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- Question: My wife’s best friend's 7-year-old daughter was just diagnosed with pontine glioma on her brain stem. Every doctor we talk to here in Miami say there is no hope. I believe many are scared to attempt anything due to the lawsuits so common here in Florida. Is there anything we can do for this little girl? Are there any experimental procedures that could be attempted to save her? This little girl is her life.
Search on the www.virtualtrials.com site for places where clinical trials
are underway. There are two types of brain stem tumors and each requires
quite different therapy with different outcomes. The most common, a diffuse pontine glioma is not curable and survival is a few years. If it happens to be a focal type, which is unusual in the pons, then other options are possible including surgery. A pediatric brain tumor center will easily tell the difference.