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- Question: I had a large meningioma partially removed 5 years ago. Over this time what was left has invaded the bone and grown into my middle ear; it is now creeping towards my carotid artery. I have lost hearing, have balance problems, and the facial nerve is also now involved. At this time, what type of doctor would be best to manage the treatment - a neurosurgeon or neurotologist? Gamma has been approved but there is a question about who works with the radiation oncologist since it is a meningioma. It is not affecting the brain - it is working pretty good and my neurosurgeon told me this was an ENT problem. I have seen 2 radiation oncologists, 1 neurosurgeon, 1 ENT and 1 neurotologist. My insurance company has been pretty good until now. Surgery is not an option.
You need to go to a comprehensive brain tumor center that has expertise in
skull base and neurovascular surgery. See www.virtualtrials.com and
www.survivingbraincancer.com for lists of these centers in the USA and
around the world.