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Braintumor Website


Note: the Musella Foundation For Brain Tumor Research And Information runs this website. For information about our organization, click HERE. We have no relation to the following organizations. They are listed here because they are important resources and we encourage you to contact them!

New: We added a new section for Young Adult Cancer Survivor Resources.. Scroll down to the bottom of this page to see them!

Grey Ribbon Crusade

The Grey Ribbon Crusade is a coalition of brain tumor charities acting as a United Force Against Brain Tumors (UFAB). We are one of the founding members.
The following brain tumor organizations are members:
 Location  Organization
Name
GABORONE,
  BOTSWANA
 INDIVIDUAL
=267 3922261
Send Email

Mamfe,
  Cameroon
 The Enoh Nkongho Brain Foundation
9-7-2-5-4-2-8-4-6-8-0-9
Send Email

Thornhill,
Ontario  Canada
 Tali's Fund
905-731-2324
Send Email     http://www.taldoron.com

Tali's Fund
Leipzig,
  Germany
 German Brain Tumour Association
0049 341.590 93 96
Send Email     http://www.hirntumorhilfe.org

German Brain Tumour Association
Milan,
  Italy
 AITC - Associazione Italiana Tumori Cerebrali ONLUS
0039-347-830-6197
Send Email     http://www.tumoricerebrali.it

AITC - Associazione Italiana Tumori Cerebrali ONLUS
Uckfield,
East Sussex  UK
 Brain Tumour (BT) Buddies
05601 751226
Send Email     http://www.btbuddies.org.uk

Brain Tumour (BT) Buddies
Cheadle Hulme,
Cheshire  United Kingdom
 Astro Fund
0161 221 1320
Send Email     http://www.astrofund.org.uk

Englewood,
CO  United States
 Glenn Garcelon Foundation
503-969-7651
Send Email     http://glenngarcelonfoundation.org

Glenn Garcelon Foundation
Oneonta,
Alabama 
 Glenn Alan Miller Memorial Fund
205-274-9958
Send Email

Scottsdale,
AZ 
 Students Supporting Brain Tumor Research
1-888-SSBTR-AZ
Send Email     http://www.SSBTR.org

Students Supporting Brain Tumor Research
Sedona,
AZ 
 Oligo Fund of Musella Foundation
928-203-4213
Send Email     http://virtualtrials.com/oligofund/

Davis,
CA 
 Coalition for Children's Brain Tumor Research
530-400-7087
Send Email

Encino,
CA 
 Whole Child LA and Whole Child Foundation
310-908-7470
Send Email     http://www.wholechildla.org

Granada Hills,
CA 
 We Can, Pediatric Brain Tumor Network
3107393433
Send Email     http://www.wecan.cc

We Can, Pediatric Brain Tumor Network
Napa,
CA 
 The Tug McGraw Foundation
7072551884
Send Email     http://www.tugmcgraw.org

The Tug McGraw Foundation
San Diego,
CA 
 San Diego Brain Tumor Foundation
619-515-9908
Send Email     http://www.sdbtf.org

San Diego Brain Tumor Foundation
Santa Monica,
CA 
 UCLA Department of Neurosurgery
(310) 825-5111
Send Email     http://www.neurosurgery.ucla.edu

UCLA Department of Neurosurgery
US Air Force Academy,
CO 
 Rachael's Ribbons of Hope Foundation
301-237-6186
Send Email     http://www.rachaelsribbonsofhope.org

Rachael's Ribbons of Hope Foundation
Storrs,
CT 
 University of Connecticut
860-518-0606
Send Email     http://www.math.uconn.edu/~hernandez

Washington, DC,
District of Columbia 
 Accelerate Brain Cancer Cure
202-467-2051
Send Email     http://www.abc2.org

Accelerate Brain Cancer Cure
Clearwater,
Fl 
 Miles For Hope
727-647-6548
Send Email     http://MilesForHope.org

Miles For Hope
Coral Springs,
FL 
 Florida Brain Tumor Association
954-755-4307
Send Email     http://www.floridabraintumor.com/

Florida Brain Tumor Association
Ponte Vedra Beach,
FL 
 Nicki Leach Foundation
904-280-8916
Send Email     http://www.nickileach.org

Nicki Leach Foundation
Sanford,
FL 
 Melissa Vosburg, Inc
630-854-0720
Send Email     http://www.melissavosburg.org

Melissa Vosburg, Inc
Viera,
FL 
 Just One More Day for Love, Hope & a Cure
321-698-8538
Send Email     http://www.JustOneMoreDay.org

Just One More Day for Love, Hope & a Cure
Zephyrhills,
FL 
 Brain Tumor Action Network
858.720.1787
Send Email     http://btan.org

Brain Tumor Action Network
Doral,
Florida 
 
786-991-6554
Send Email

Canton,
Ga 
 Bend Your Knees, Inc.
4042711360
Send Email     http://www.BendYourKnees.org

Douglasville,
GA 
 The Charles Warren Brain Tumor Awareness Foundation, Inc.
770-942-0639
Send Email     http://www.charleswarrenfoundation.org

The Charles Warren Brain Tumor Awareness Foundation, Inc.
Des Moines,
IA 
 The Michael Overall Benefit Fund
409-790-4247
Send Email     http://www.michaeloverall.org/

The Michael Overall Benefit Fund
Chicago,
IL 
 Imerman Angels
877.274.5529
Send Email     http://www.imermanangels.org

Imerman Angels
Chicago,
IL 
 Michael Matters Foundation
312-372-1921
Send Email     http://www.michaelmatters.org

Michael Matters Foundation
Des Plaines,
Il 
 LAAF - Lori Arquilla Andersen Foundation
904-334-0124 / 847-561-1199
Send Email     http://www.laafinc.org

LAAF - Lori Arquilla Andersen Foundation
Lake Forest,
IL 
 Benny's World
847-612-5567
Send Email     http://www.bennysworld.org

Benny's World
Lake in the Hills,
IL 
 Ryan Lamantia Foundation
847-669-0481
Send Email     http://www.ryanlf.org

Ryan Lamantia Foundation
West Chicago,
IL 
 PA/PMA Research Fund at Johns Hopkins
630-293-0961
Send Email

Huntley,
Illinois 
 
8476022644
Send Email     http://thecurestartsnow.org

Benton,
Kentucky 
 Gunner's Magic Train Pediatric Cancer Foundation
270-527-6500
Send Email     http://www.gunnersmagictrain.org

Overland Park,
KS 
 Epidermoid Brain Tumor Society
913-261-9662
Send Email     http://epidermoidbraintumorsociety.org

Brookline,
MA 
 Neil C. Harrington Sr. Memorial Fund
617-319-1996
Send Email     http://neilharringtonmemorialfund.com

Neil C. Harrington Sr. Memorial  Fund
Newton,
MA 
 National Brain Tumor Society
617 924 9997
Send Email     http://www.braintumor.org

Baltimore,
MD 
 Keep Punching
410-913-3347
Send Email     http://keeppunching.org

Keep Punching
Germantown,
MD 
 Childhood Brain Tumor Foundation
877-217-4166
Send Email     http://www.childhoodbraintumor.org

Childhood Brain Tumor Foundation
Salisbury,
MD 
 HOPE With Support, Inc.
410-443-1342
Send Email     http://www.hopewithsupport.org

HOPE With Support, Inc.
Gladstone,
MI 
 Michigan State University
906 280-1416
Send Email

Holland,
MI 
 Unlocking Brain Tumors, Inc
(616) 335-9050
Send Email     http://unlockingbraintumors.org

Unlocking Brain Tumors, Inc
Jackson,
Mi 
 Another Day Another Memory (A.D.A.M.)
5179149556
Send Email     http://www.adamupdate.com

Another Day Another Memory (A.D.A.M.)
Kansas City,
MI 
 Head for the Cure Foundation
816-218-2890
Send Email     http://www.headforthecure.org

Head for the Cure Foundation
Midland,
MI 
 Walk For Kate
989-600-1745
Send Email     http://www.walkforkate.org

Walk For Kate
Rochester,
MN 
 Brains Together For a Cure
507-266-5280
Send Email     http://www.brainstogetherforacure.org

Brains Together For a Cure
Carrboro,
NC 
 UNC Chapel Hill
4044221113
Send Email

Charlotte,
NC 
 Brain Tumor Fund for the Carolinas
704-635-8643
Send Email     http://www.btfcnc.org

Brain Tumor Fund for the Carolinas
Raleigh Durham,
NC 
 Preston Robert Tisch Brain Tumor Center

Send Email     http://www.cancer.duke.edu/btc/

Preston Robert Tisch Brain Tumor Center
Omaha,
NE 
 Leap-for-a-Cure
402-333-9370
Send Email     http://www.leapforacure.org

Leap-for-a-Cure
Martinsville,
NJ 
 Central New Jersey Brain Tumor Support Group
908-685-0917
Send Email     http://cnjbt.org

Cream Ridge,
NJ 
 Gray Matters Brain Cancer Foundation
609-529-1363
Send Email     http://www.gmbcf.org

Gray Matters Brain Cancer Foundation
Morristown,
NJ 
 Have A Chance Inc.
973-895-2247
Send Email     http://www.haveachance.org

Have A Chance Inc.
Oceanport,
NJ 
 The Kortney Rose Foundation
(732)222-1491
Send Email     http://www.thekortneyrosefoundation.org

The Kortney Rose Foundation
Pleasantville,
NJ 
 The Claudia Fund
6098235734
Send Email     http://www.claudiafund.com

The Claudia Fund
Robbinsville,
NJ 
 Thea's Star of Hope
609-964-1353
Send Email     http://www.theasstarofhope.org

Thea's Star of Hope
Roseland,
NJ 
 Peter A Bednarski Fund for Brain Tumor Research Inc
973-403-8306
Send Email

Swedesboro,
NJ 
 Matthew's Miles
856-467-9426
Send Email     http://www.matthewsmiles.org

Matthew's Miles
Wall,
NJ  
 Monmouth and Ocean County Brain tumor Support Group
609-914-1590
Send Email     http://www.njbt.org

Monmouth and Ocean County Brain tumor Support Group
Las Vegas,
NV 
 C.E.V.A.N. Louie Foundation for Brain Cancer
415-793-6196
Send Email     http://www.cevanlouiefoundation.com/

C.E.V.A.N. Louie Foundation for Brain Cancer
Buffalo,
NY 
 Roswell Park Cancer Institute
716-845-8850
Send Email     http://www.roswellpark.org

Chappaqua,
NY 
 A Kids' Brain Tumor Cure
914-762-3494
Send Email     http://www.akidsbraintumorcure.org

A Kids' Brain Tumor Cure
Hewlett,
NY 
 Musella Foundation For Brain Tumor Research & Information, Inc
5162954740
Send Email     http://virtualtrials.com

Musella Foundation For Brain Tumor Research & Information, Inc
New York,
NY 
 Children's Brain Tumor Foundation
866-228-4673
Send Email     http://www.cbtf.org

New York,
NY 
 Cristian Rivera Foundation
212-779-2222
Send Email     http://www.cristianriverafoundation.org

Cristian Rivera Foundation
New York,
NY 
 Voices Against Brain Cancer
516 633 0800
Send Email     http://www.voicesagainstbraincancer.org

Voices Against Brain Cancer
Warwick,
ny 
 Michael A. DiCarlo Brain Tumor Foundation
845-981-7020
Send Email     http://

Avon Lake,
OH 
 Smiles For Sophie Forever
440 930-5091
Send Email     http://www.smilesforsophieforever.org/

Smiles For Sophie Forever
Boardman,
OH 
 Tommy Detesco Fund for Adolescents and Young Adults
330-729-9228
Send Email     http://www.tommydetescofund.com

Tommy Detesco Fund for Adolescents and Young Adults
Cincinnati,
OH 
 Cure Starts Now
513-478-8990
Send Email     http://www.thecurestartsnow.org

Cure Starts Now
Columbus,
OH 
 Ohio State University Medical Center
6142922177
Send Email     http://medicalcenter.osu.edu/

Lancaster,
OH 
 Kevin Mullin Memorial Fund for Brain Tumor Research
740-756-7987
Send Email     http://www.lemonhead.org

London,
OH 
 Rockin' on the Run

Send Email     http://www.rockinontherun.org

Rockin' on the Run
Parma,
OH 
 Michael G. Belz Foundation
440-263-2688
Send Email     http://mgbf.org

Michael G. Belz Foundation
South Euclid,
OH 
 Mission4Maureen
440- 840-6497
Send Email     http://www.mission4maureen.com

Mission4Maureen
West Chester,
OH 
 Lifestream for Kids
513-787-7084
Send Email     http://www.lifestreamforkids.com

Oklahoma City,
OK 
 Oklahoma Brain Tumor Foundation
405-843-4673
Send Email     http://www.okbtf.org

Oklahoma Brain Tumor Foundation
Ambler,
PA 
 Wylie's Day Foundation
215.643.2181
Send Email     http://www.wyliesday.org

Wylie's Day Foundation
Butler,
PA 
 Denise's People
724-482-2984
Send Email     http://www.denisespeople.org

Denise's People
Easton,
PA 
 Lauren's First and Goal Foundation
610-250-6981
Send Email     http://www.laurensfirstandgoal.org

Lauren's First and Goal Foundation
Lafayette Hill,
PA 
 Kyle Daniel Kerpan Foundation
215-402-9371
Send Email     http://www.caringbridge.org/pa/kyledkerpan

Kyle Daniel Kerpan Foundation
Oakdale,
PA 
 Samuel J Foundation
724-693-9901
Send Email     http://www.samuelj.org/

Samuel J Foundation
Philadelphia,
PA 
 University of Pennsylvania Department of Neurosurgery
215-615-4379
Send Email     http://www.uphs.upenn.edu/neurosurgery/

University of Pennsylvania Department of Neurosurgery
Pittsburgh,
PA 
 Allegheny Brain Tumor Center
412-359-6715
Send Email

richboro,
PA 
 Cure4Chad.org
267 9399742
Send Email     http://cure4chad.org

Cure4Chad.org
Scranton,
PA 
 Aimee's Army
570-687-4480
Send Email     http://www.aimeesarmy.com

Aimee's Army
Upland ,
PA 
 Crozer-Chester Foundation
610-447-6122
Send Email     http://give.crozer.org

Providence,
RI 
 Rhode Island Brain & Spine Tumor Foundation
401-272-4177
Send Email     http://www.ribstf.org

Rhode Island Brain & Spine Tumor Foundation
Marietta,
SC 
 The Brain Tumor Awareness Organization
864-836-4609
Send Email     http://www.braintumorawareness.org

The Brain Tumor Awareness Organization
Dyersburg,
Tennessee 
 Brain Tumor Group Of Tennessee
731-334-9930
Send Email

Carrollton,
TX 
 The Nick Gonzales Foundation for Brain Tumor Research
469-438-7001
Send Email     http://www.nickgonzalesfoundation.org

The Nick Gonzales Foundation for Brain Tumor Research
Dallas,
TX 
 Team Underwood Foundation
214-404-9961
Send Email     http://tufoncancer.org

Houston,
TX 
 Dr. Marnie Rose Foundation
713-993-9288
Send Email     http://www.RunfortheRose.com

Dr. Marnie Rose Foundation
Houston,
TX 
 The Brain Tumor Trials Collaborative (BTTC)
713-792-2078
Send Email     http://www.bttconline.org

The Brain Tumor Trials Collaborative (BTTC)
Porter,
TX 
 Children's Brain Tumor Research Foundation
832-723-2605
Send Email     http://www.cbtrf.org

Children's Brain Tumor Research Foundation
Ashburn,
VA  
 The Brad Kaminsky Foundation for Brain Tumor Research
7037299897
Send Email     http://tbkf.org

The Brad Kaminsky Foundation for Brain Tumor Research
Ashland,
VA 
 Brown Bag For A Cure
(804) 296-4590
Send Email     http://brownbagforacure.org

Brown Bag For A Cure
Crozet,
VA 
 Lou Beeler Foundation
434-823-2848
Send Email     http://www.beelerfoundation.org

Glen Allen,
VA 
 Brain Tumor Resource And Information Network
1-800-900-6195 code 48
Send Email     http://www.brainsite.org

Vienna,
VA 
 The Brian Bedell 2-Young Foundation
302-737-5341
Send Email     http://www.2yf.org

The Brian Bedell 2-Young Foundation
Rutland,
VT 
 Gayle SHeldon Memorial Foundation for Brain Cancer, Inc.
802-770-9813
Send Email     http://www.gaylesheldongbm.com

Gayle SHeldon Memorial Foundation for Brain Cancer, Inc.
Maple Valley,
WA 
 The Chris Elliott Fund
253 266 0009
Send Email     http://www.chriselliottfund.org

The Chris Elliott Fund
Ballengee,
WV 
 Raleigh General Hospital
304-660-5969
Send Email

Casper,
WY 
 Brain Injury Association of Wyoming
307-473-1767
Send Email     http://www.biausa.org/Wyoming

Brain Injury Association of Wyoming

Other Brain Tumor Organizations

International Brain Tumour Alliance (IBTA) - The International Brain Tumour Alliance is a coalition of the support, advocacy and information groups for brain tumour patients and caregivers in different countries and also includes researchers, scientists, clinicians and allied healthcare professionals who work in the field of brain tumours. Website: www.theibta.org Email: chair@theibta.org or kathy@theibta.org Telephone: (44) (0) 1737 813872 (UK) or (61) (2) 6258 3912 (Australia)


CERN Foundation Collaborative Ependymoma Research Network: Ependymoma research and information. See video

The Tug McGraw Foundation The mission of the Foundation is to support research that will improve the quality of life for brain cancer patients and their families.

The Tug McGraw Foundation was established to raise funds for pioneering brain cancer research, increase public awareness of the disease, and support college students who exemplify leadership and Tug's inspiring "Ya Gotta Believe" spirit.

Tug McGraw Foundation
1303 Jefferson Street, Suite 100B, Napa, CA 94559
Phone: (707) 255-1884
Fax: (707) 255-1926
Email: info@tugmcgraw.org
Website: www.tugmcgraw.org


HOPE With Support was established to give extra support to those whose lives are affected by brain tumors, including survivors, caregivers and their families and friends.

This organization is dedicated to providing brain tumor awareness through outreach, encouragement, education, and hope for brain tumor survivors, families and caregivers through support groups, seminars, online support, and raising funds for research to find the cure for brain tumors.

  • To "Help others by providing Encouragement" to persons diagnosed with brain tumors.
  • To help brain tumor survivors, their families and their caregivers by providing information, education and support.
  • To promote Quality of Life for the victims of the disease.
  • To promote public awareness of this disease through speaking engagements, and by sharing with others.
  • To advocate for brain tumor awareness among the public.



DIPG Registry and information on Diffuse Intrinsic Pontine Gliomas


Children's Oncology Group


National Brain Tumor Society 800-934-2873

The National Brain Tumor Society is a nationwide non-profit organization serving people whose lives are affected by brain tumors. We are dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information and education.

NBTF has awarded over $5 million in brain tumor research since our founding in 1981 and is the leading provider of services to brain tumor patients and their families. Services include a toll-free Patient Information Line (800.934.2873), comprehensive website (www.braintumor.org), Essential Guide to Brain Tumors and other printed publications, caregiver workshops, medical information nurse, patient and caregiver support network , support groups across the country, Search newsletter, monthly e-newsletter, teleconferences, conferences, financial assistance, resources in Spanish, Angel Adventure fundraising walks and community days, Racing Ahead for NBTF program and more. All of our programs are free.


Brain Tumor Society, founded in 1989, exists to find a cure for brain tumors. BTS is committed to research, education and support. BTS strives to improve the quality of life for all those affected by a brain tumor diagnosis. BTS provides psychosocial support through telephone counseling, assistance in finding and accessing local support groups or services, informational materials, and educational events for patients, survivors and their families.

BTS has funded over $9 million since the inception of its Research Grant Program, including $1.8 million in 2005 alone. The Research Grant Program funds vital science research projects undertaken by pioneers in science and research, who bring us closer to a cure for brain tumors. BTS believes that there is hope, and there will be a cure.

Sarah Gupta, LICSW
Director of Support Services
Brain Tumor Society
124 Watertown Street, Suite 3H
Watertown, MA 02472
Toll Free: 800.770.8287 ext 25
Web: http://www.tbts.org


American Brain Tumor Association Phone: 800-886-2282


Bryan’s Dream Foundation 908-693-0649
Bryan's Dream Foundation is a non-profit 501(c)(3) organization established in memory of Bryan Timothy Opremcak. The mission is to make life a little brighter for children with brain tumors, and other pediatric cancers, and their families by providing financial assistance, information & support, to promote pediatric brain tumor awareness and to provide funding to pediatric brain tumor research.


The Brain Tumour Foundation of Canada Phone: 519-642-7755 or 1-800-265-5106


The Childhood Brain Tumor Foundation Phone: 877-217-4166


The Children's Brain Tumor Foundation (CBTF) Phone: 866-228-HOPE (4673)


The Central Brain Tumor Registry of the United States (CBTRUS) Phone: 773-579-0021


The Children`s Tumor Foundation: Ending Neurofibromatosis Through Research
formerly known as the National Neurofibromatosis Foundation
95 Pine Street 16th Floor
New York, NY 10005
Phone: 800-323-7938 or 212-344-6633
Fax: 212-747-0004
Email: info@ctf.org


Brain Tumour U.K. , founded in 1997, is a national charity, and our aims are:

  • to increase awareness and knowledge of brain tumours
  • to improve access to information and support for brain tumour patients
  • to advocate for enhanced treatment and care
  • to raise significant funds for research projects
email:enquiries@braintumourukorg.uk

The National Association for Proton Therapy


Pediatric Cancer Foundation of the Lehigh Valley


The Gerry& Nancy Pencer Brain Trust


The Preuss Foundation


The Central NJ Brain Tumor Support Group


Southeastern Brain Tumor Foundation


Jeffrey Thomas Hayden Foundation The Jeffrey Thomas Hayden Foundation was created to increase Awareness about Pediatric Brain Tumors and provide Education and Support to affected families. To raise money to fund worthy causes; such as Academic Scholarships, Research, and assist other support organizations with their efforts, with a focus on finding a balance between the best available treatments with the best quality of life.


Lauren's First and Goal Foundation created to raise funds to support pediatric brain tumor research, support local pediatric cancer services, provide financial assistance to families living with a pediatric cancer diagnosis and to raise public awareness regarding pediatric brain tumors.


The Charles Warren Brain Tumor Awareness Foundation, Inc. is a 501(c)3 with the purpose of promoting brain tumor awareness and raising funds for research and development of a cure.


Sydney Neuro Oncology Group is a charitable organisation in Australia NSW who deal with brain tumour patients both in research and support.


Samantha Dickson Brain Tumour Trust (SDBTT) The largest funder of laboratory based brain tumour research in the UK. Offers a vital support link for patients diagnosed with a brain tumour and their families or carers. Tel: (UK) 0845 130 9733 Email: patientinfo@sdbtt.co.uk
SDBTT Astro Fund
The specialist section of the Samantha Dickson Brain Tumour Trust concentrating solely on low-grade gliomas (LGGs). Offering individual support to patients and carers, as well as moderating an internet support group which welcomes members from around the world. The largest independent funder of LGG research in the UK. Tel.(UK) 0845 130 7627 Email: astrofund@astrofund.org.uk


Wish Granting Organizations


Children - Make -A -Wish Foundation


Adults - Fairy god mother.org


COMPASSION PARTNERS- Provides FREE theme park tickets in Florida, for you and your entire family if you have a "terminal" or "life threatening illness" verified by your doctor. The number to call is 407-396-1114, the lady you need to talk to is Donna.


Other Organizations that offer help


WWW.NEEDYMEDS.ORG The most complete database of patient assistance programs also offers the NeedyMeds Drug Discount Card, which can be printed at no charge and requires no registration.


CANCER CARE: CancerCare provides free professional support ervices -- including counseling, education, financial assistance, and practical help. These services are all provided for free by trained oncology social workers. If you need any information about CancerCare's services and/or would like to speak with an oncology social worker about your situation, please contact us at 1-800-813-HOPE (4673)."


CANCER FUND OF AMERICA- Provides all FREE basic living needs such as shampoo, candy, toys, clothes, crutches, advil, and many, many more items. www.cfoa.org, can also be reached at 1-800-578-5284 or mail to customerservice@cfoa.org.


BELLSOUTH- also offers approximately $12.00 off your phone bill through the "Lifeline" program if you are on medicaid.


THE TIM AND TOM GULLIKSON SCHOLARSHIP PROGRAM- This foundation will give scholarships to children whose parents who have had or has brain tumors. Just type in Tim and Tom Gullikson Foundation.


THE GEORGE BARTOL SCHOLARSHIP FOUNDATION- Gives scholarships to persons whose parents have had or has aa brain tumor or tumors. Just type in The George Bartol Scholarship Fund.


WWW.CROSSINGTHEFINISHLINE.ORG-This org. will give a FREE 1 week all expense paid vacation tto those with a diagnosis of cancer, and their caregiver. Needs verification by your doctor. Children allowed if feasible. Open to those ONLY IN THE STATES OF PA, NJ, and DE. Must be between the ages of 18-50 years of age.


WWW.ANGELFLIGHT.ORG- Angel Flight West provides FREE transportation to medical treatment for those who cannot afford public transportation, or who cannot tolerate it for health reasons. Angel Flight also flies missions in response to other compelling needs. Angel Flight West accepts requests from individuals or health care professionals such as social workers and physicians. They have regional flight programs accross the country, you can call one of these organizations that can direct you to the appropriate branch. You can also call Angel Flight West toll free at: 1-888-4-AN-ANGEL. or 888-426-2643


MIRACLE FLIGHTS FOR KIDS (NOTE: not just for kids!) http://www.miracleflights.org/ Flies children (also some adults) who are struggling with serious cancers and debilitating diseases to specialized medical treatment centers across the United States. Any child needing medical treatment or second opinion not available in their area is eligible to apply for a miracle mission. These are airline flights, better for some who would find it difficult to travel on the smaller private planes offered by Angel Flights.


AMERICAN CANCER SOCIETY http://www.cancer.org/ A nationwide, community-based voluntary health organization with more than 3,400 local offices. Provide a wide range of emotional and practical support for patients, families, caregivers, and communities. Trained cancer information specialists are available 24 hours a day, seven days a week to answer questions about cancer and link callers with resources. Call 800-ACS-2345 (1-866-228-4327 for TTY). Callers who speak languages other than English and Spanish can also be assisted. Note they can help you get discounted hotel rates and ground transportation when traveling for "second opinion" consultations or treatment.


THE PATIENT ADVOCATE FOUNDATION http://www.copays.org/ Co-Pay Relief program for people with type 3 and 4, i.e. malignant, brain tumors. They will cover your prescription co-pays if you qualify for their services! Toll Free 1-866-512-3861, email:


http://www.patientaccessnetwork.org/ Patient Access Network - offers help to people who can't afford treatment!


Mercy Medical Airlift: 888-675-1405
ASC Air Miles (this is all mileage that has been donated) 1-800-227-2345
-Will help patient and ONE care giver with air ticket (although the caregiver's ticket is NOT guaranteed)
-Prefer 3 weeks notice
-May be able to help with co-payments for treatment, please request
-No restrictions as to how many times patients need to travel can go, only limitations on caregiver
-$10 security fee, baggage fee is applicable, no processing fee, BUT processing fee could vary between $20-$65 if request is made within 21 days- so total cost can vary between $50-$100
-Air miles program can be reached from 8 am to 4pm central time


Cancer Organizations (not brain tumor specific)


Stand Up To Cancer
Stand Up To Cancer
.
Stand Up to Cancer is launching a new movement to attack cancer once and for all by pushing promising scientific breakthroughs to the finish.


Young Adult Cancer Survivors Resources

This list maintained by Jessica Taylor - of the young adult cancer group in St Louis.

GENERAL INFORMATION

  1. Ulman Cancer Fund Remote Patient Navigation Services, can help locate local and national resources to help with a variety of needs specific to being a young adult survivor

  2. I'm Too Young For this Cancer Foundation has helpful resources, online message board support, as well as a weekly radio show with topics pertaining specifically to young adults

  3. National Coalition for Cancer Survivorship has information as well as recordings of patients telling their stories about managing various issues

  4. National Cancer Institute has a large amount of information for adolescents and young adults

  5. American Society of Clinical Oncology has various topics discussing cancer in young adulthood, including camps and retreats specifically for young adults

  6. Cancer Care has general information about topics related to cancer in young adulthood

  7. American Cancer Society has discusses various topics relating to all cancer survivors

  8. National Comprehensive Cancer Network has information about different topics related to being diagnosed with cancer

  9. Know Cancer Resources provides resources by state for numerous needs

  10. Ideas for managing sexual functioning during and after cancer treatment

LEGAL AND INSURANCE ISSUES

  1. Cancer Legal Resources Center

FINANCIAL ASSISTANCE

  1. Musella Foundation Co-Payment Assistance Program Helps people with Glioblastoma Multiforme who have insurance pay for treatments.

  2. Musella Foundation Drug Assistance Program Helps people (even who do not have brain tumors) who do not have insurance (or who have bad insurance) get a discount for any prescription drug.

  3. For assistance with Avastin: Genentech Access Solutions telephone number: 866-4-Access

  4. For assistance with Temodar: Merck Phone: 866-363-6379

  5. For assitance with the Novocure NovoTTF100-a device: phone: 855.281.9301

  6. For assistance with Gliadel (1-866-61- 34724

  7. NeedyMeds.org - Clearinghouse for all drug assistance programs


  8. CancerCare Financial Assistance can help with: Transportation, Home care, Child care, Pain medication, and Lymphedema supplies. Does not cover basic living expenses (such as rent, mortgages, utility payments, or food). Assistance is need based.

  9. Cancer Financial Assistance Coalition—can search for financial resources by cancer diagnosis or by type of assistance needed

  10. The SAMFund assists young adult survivors with transition into post-treatment life by providing financial support through grants and scholarships. Covers many things such as medical bills, car and health insurance premiums, rent, utilities, tuition & loans, gym memberships, transportation costs. Start taking applications in June of each year.

  11. NeedyMeds may provide assistance with obtaining medications that are not covered by insurance or have a very high copayment.

  12. CancerCare Co-payment Assistance Foundation helps individuals with insurance cover co-pays for treatment of various cancers. Go to the website to find the covered diagnoses and medications.

  13. Patient Advocate Foundation Via Livestrong SurvivorCare can help locate resources related to employment, finances, insurance, and medication co-pays

  14. Although the Brenda Mehling Cancer Fund has been temporarily suspended, they provide numerous alternative resources for various needs

LODGING DURING OUTPATIENT CANCER TREATMENT IN ST. LOUIS AREA

  1. HavenHouse provides lodging and support services for families who travel at least 25 miles to receive medical care at a hospital in St. Louis. Initial referral must come through a hospital referral.

  2. The American Cancer Society's Hope Lodge-St. Louis provides a place to stay for those who travel at least 50 miles and receive treatment in the St. Louis area. Must have a referral from your doctor, nurse or social worker verifying treatment

COLLEGE TUITION ASSISTANCE

  1. Ulman Cancer Fund offers various college scholarships for young adult survivors

  2. FinAid provides links to numerous different college scholarships for cancer survivors, siblings of cancer survivors, and children of cancer survivors

  3. Care Commit Change offers scholarships to help young adult survivors pay for college (may be inactive, the website doesn't look like it's been updated recently)

CAREER

  1. Cancer and Careers provides information on legal rights and other information related to work

FERTILITY

  1. Fertile Hope provides assistance in egg and embryo freezing as well as sperm banking to survivors PRIOR to starting cancer treatment. Fertile Hope doesn't provide funding directly to patients but instead has worked with companies and clinics to arrange for discounted services and donated medications for eligible female cancer patients. When searching for participating locations, searching by state rather than zip code seems to work better

  2. Fertile Hope's assistance for females

  3. Fertile Hope's assistance for males

  4. Additional programs which may offer assistance

  5. Information for men and women about fertility before, during, and after cancer treatment

  6. General information for females about cancer and fertility

  7. General information for males about cancer and fertility

DIAGNOSED WHILE PREGNANT

  1. Hope for Two connects women diagnosed with cancer while pregnant to women who have experienced a similar situation

PEER/MENTOR SUPPORT

  1. Ulman Cancer Fund for Young Adults—Peer Mentor Network. Partnered with Imerman Angels (http://www.imermanangels.org/)

  2. American Cancer Society offers an online Cancer Survivors Network with a specific message board for young adult cancer survivors

INDIVIDUAL/SUPPORT GROUP COUNSELING

  1. Local support groups and other services, not young adult specific

  2. Free over the phone, email info@cancercare.org or call 1-800-813-HOPE (4673)

  3. Free, online or by telephone

Home Remodeling for Disability and Special Needs

  1. Expertise Information and links to grants to help remodel.



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