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  • These Links are maintained by Jim Kenzig, In Loving Memory of his daughter, Kristen
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Assistive Resources Links

97 links found

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Site Name DescriptionDate Added
Brain Surgery Information Center Dr. John Mangiardi`s excellent brain surgery information page03/27/00
Childhood Brain Tumor Foundation 301-515-2900 Resources 03/29/00
The Social Security and Disability Resource Center The Social Security and Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is a former disability examiner for the social security administration.11/09/11
06/21/2010 - The Michael Overall Golf Classic A benefit planned by family and friends to raise awareness and funds for my fathers unexpected illness. We are looking for sponsors, donations, silent auction items, and golfers. Please join us, or promote your business through a gift during this battle against a terrible disease. Thank you! Sharon Overall sharonmoverall@gmail.com 05/30/10
3rd Annual Lauren`s First and Goal Football Camp - Sunday, June 4, 2006, Lafayette College, Easton, PA A one day, non-contact, instructional clinic to raise funds for pediatric brain tumor research. Last year over 800 players and 100 volunteer college coaches helped to raise over 74,000 for LFG. A pediatric cancer survivors Fun Day is also held during the football clinic- crafts, activities, lunch and entertainment for patients, family and friends. 03/19/06
50 Helps for the Patient who can`t speak A communication aid for patients and caregivers by Teri Kenzig03/29/00
A Primer of Brain Tumors from the American Brain Tumor Association A Patient`s Reference Manual Note Adobe PDF Reader is needed.03/27/00
A simple explanation of gliomas by Dr Kelly NYU If you took high school sophomore biology ... you can understand brain tumors.10/20/03
Addresses of Childrens Resource Organizations Resources for childrens cancer03/29/00
Adult Patient Resource Handbook of Brain Tumors From Oncolink03/27/00
All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 04/02/00
An excellent resource of Cancer Listervs Internet Mailing List on Cancer03/27/00
Austin`s Miracle Fund Charity organization assisting children with brain cancer.01/12/01
Bereavement Store Bereavement, Greif, Merrorial Framed Products04/27/04
Brain Tumor Biology Laboratory Oliver Boglers fascinating brain tumor research site.03/27/00
Brain Tumor Dictionary Definitions From Virtualtrials.com03/27/00
Brain tumor treatment options Brain tumor treatment options12/03/13
Brain Tumors: Symptoms, Therapy and Future Cure By Patrick J. Kelly, MD, FACS NYU03/27/00
Brain Tumour Australia Inc. An Australian National not-for-profit organisation providing resources, education & support 02/09/06
Brain Tumour Australia Information A website for Australian patients & families - Brain tumour information: types, diagnosis, treatments, radiation and chemo therapy, support, research, etc02/26/11
BrainHelper.org BrainHelper.org is a site designed to deal with issues involving the brain.02/14/09
Bran Research Trust Information on Research to Brain Tumours12/20/05
British Columbia Cancer Agency . - Lots of good info; special segment on Alternative treatments03/28/00
Cancer Support Forum An online discussion forum for cancer topics such as symptoms, diagnosis, treatment, coping, and support03/30/10
Cancer Treatment Options and Management A personalized cancer research company that informs and educates cancer patients on recent peer review cancer research for their specific case. 05/19/11
CancerKids information, chat, hundreds of stories of childhood cancer12/19/01
Cancerpage and TrialMatch Find Clinical Trials that you are elibible for; Ask Our RN any question; join the Support Groups in chat rooms online every day, 07/19/00
Chemocare.com Scott Hamilton Cancer Survivors site provided by the Cleveland Clinic that has a wealth of information for patients on Chemotherapy07/26/03
Childhood Brain Tumor (PDQ®) Treatment - Patients Cancernet Information for patients on Childhood Brain Tumors03/28/00
Chordoma Support Group 09/26/04
Clinical Trials And Noteworthy Treatments For Brain Tumors Brain tumor information03/26/00
Coma Recovery Association A non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy.08/19/00
Coping With Mild Brain Injury A book about coping04/02/00
Corporate Angels Network Free Airfare This organization provides free air travel via corporate jet for ANY cancer patient who requires treatment at any nationally recognized treatment facility, without regard to their financial resources03/27/00
Cyber Museum Of Neurosurgery History of neurosurgery and brain tumor surgery!01/29/04
Decadron By Dr. Bruce Cohen Co-director of Brain Tumor Clinic at Cleveland Clinic What you need to know about this often prescribed steroid drug for reducing the swelling in brain tumors.03/27/00
Department of Neurosurgery Bowman Gray School of Medicine Good resource site03/27/00
Dr. Judah Folkman Article from Scientific American-Thalidomide, TNP470 etc Fighting Cancer by Attacking its Blood Supply-Angiogenesis Inhibitors03/27/00
Easy to Swallow A website providing Recipes for People with Chewing and Swallowing Problems, due to ill health, dental work or advancing age.04/10/05
Edward B. Arenson, MD Neuro-oncologist Founder, CNI Center for Brain and Spinal Tumors10/19/12
Environmental Causes of Childhood Cancer and Remission Information Information on suspected causes of brain and neurological cancers, and the increase in cancers found in St. Lucie County, Florida 04/02/00
Ependymoma Group Ependymoma Group Website08/08/06
Epilepsy Resources Epilepsy Resources12/04/10
Fighting Chance Counseling, reference and resource center for patients and caregivers of all cancers across all stages of illness01/17/08
Going Home - help for the terminally ill. An audio CD-Cassette for the terminally ill and their 06/10/05
HealthWindows For Kids A site where kids (and adults) can learn about the body. Not brain tumor specific, but there are very good articles about the parts of the brain.04/02/00
Hospice Idaho XL Hospice is a local, family owned, hospice with nearly 20 years experience in quality end of life care.05/11/11
Hospice Patients Alliance: Consumer Advocates providing complete information on hospice services, levels of care, standards of care and regulations right on our site, free assistance in resolving difficulties, publish: Family Guide to Hospice Care (more than 300 pages)06/16/00
Info for Patients Find Clinical Trials, Ask Our RN, Support Groups online every day, 06/27/00
Katie`s Kids for the Cure Exists to find a cure for brain tumors in children. The mission is to fund innovative and creative brain tumor research, both clinical, and basic science. 03/29/00
Knowledge-database.com - The Best Meta Search Engine Knowledge-Database.com is a smart meta search engine that is intended for providing users with information and useful links pursuant to their inquiries.06/08/04
Living With Brain Mets Metastatic Brain Tumor Information and Resources05/13/08
Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy10/18/01
Make-A-Wish Grants wishes for terminally ill children. The worlds largest granter of wishes!03/29/00
Mayo Clinic Brain Tumor Center Brain tumor center at the Mayo Clinic in MN, FL and AZ06/27/06
MedFriendly Free medical dictionary with easy to understand entries.05/01/02
MedWeb: Neurology Neurology links from Emory University04/03/00
My Cancer News Cancer treatment search engine finds news of newest treatment...plus financial help for cancer patients and families.01/25/03
National Cancer Institute Clinical Trial Search Search NCI for cancer trial information03/27/00
National Institute of Health Home Page Offers health information, grants and funding opportunities for research.04/03/00
National Institute of Health Medline Plus Cancer Trial search 03/27/00
NCI Cancernet Physicians Data Query (PDQ) NCI database that contains the latest information about cancer treatment, screening, prevention, genetics, and supportive care, plus clinical trials.03/29/00
NCI PDQ on Adult Brain Tumor Patient Information03/29/00
Neuropsychology Central Neuropsychology Frequently Asked Questions, Forum and Links04/03/00
NeuroSource The `Global Directory` of Neuroscience!04/03/00
Nevzdavame se! - We don`t give up Sdruzeni pro boj s nadory mozku - Community to fight brain tumors (in Czech language)03/03/08
NEW CANCER TREATMENTS, cures, research breakthroughs reported daily! Latest cancer news (by type) from 2500+ medical and research journals, FDA, and other sources04/09/01
NIH Cancerlit Search for Brain Tumor Abstracts from brain tumor related articles from last 6 month - scroll down to the 03/29/00
NY State Traumatic Brain Injury Waiver Program Offers assitance to NY patients with brain injuries09/22/06
O.S.C.A.R (UK) OSCAR provides an ongoing support to the child and family from the moment they walk in to the hospital through to hopefully many years on. Initial support is in the form of providing knowledge, information and support at a most traumatic time and then ongoing support through the out patients treatments and long term guidance and assistance with the many consequences of that initial treatment. 04/23/02
Oncolink Search University of Pennsylvania 04/03/00
Oncolinks Automated Listserv Subscriber Page Large list of Cancer Listservs03/27/00
Patient Assistance Program This site was designed to help you find patient assistance programs and free or discounted drugs for which you may qualify.04/09/04
PedJobs The official employment resource for the American Academy of Pediatrics06/17/05
Picture Helps for Children who can`t read or speak A communication aid for patients and caregivers by Jim Kenzig. . Hint: Change your printer orientation setting to Landscape mode for this to print out correctly03/29/00




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