Brain Tumor Symptoms
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Brain Tumor Symptoms

Brain tumor symptoms vary from patient to patient, and most of these symptoms can also be found in people who do NOT have brain tumors. Therefore, the only sure way to tell if you have a brain tumor or not is to see your doctor and get a brain scan.

I did a survey of about 1400 brain tumor patients to learn what symptoms they had that caused them to seek medical care. You can see the full results at the bottom of this page. The survey is ongoing, and you can participate by going to symptomssurvey.cfm. The results below are as of 07/25/2014.

They reported:

  • Headaches: This was the most common symptom, with 46% of the patients reporting having headaches. They described the headaches in many different ways, with no one pattern being a sure sign of brain tumor. Many - perhaps most - people get headaches at some point in their life, so this is not a definite sign of brain tumors. You should mention it to your doctors if the headaches are: different from those you ever had before, are accompanied by nausea / vomiting, are made worse by bending over or straining when going to the bathroom.(1)

  • Seizures: This was the second most common symptom reported, with 33% of the patients reporting a seizure before the diagnosis was made. Seizures can also be caused by other things, like epilepsy, high fevers, stroke, trauma, and other disorders. (3) This is a symptom that should never be ignored, whatever the cause. In a person who never had a seizure before, it usually indicates something serious and you must get a brain scan.

    A seizure is a sudden, involuntary change in behavior, muscle control, consciousness, and/or sensation. Symptoms of a seizure can range from sudden, violent shaking and total loss of consciousness to muscle twitching or slight shaking of a limb. Staring into space, altered vision, and difficulty in speaking are some of the other behaviors that a person may exhibit while having a seizure. Approximately 10% of the U.S. population will experience a single seizure in their lifetime.

  • Nausea and Vomiting: As with headaches, these are non-specific - which means that most people who have nausea and vomiting do NOT have a brain tumor. Twenty-two percent of the people in our survey reported that they had nausea and /or vomiting as a symptom.

    Nausea and / or vomiting is more likely to point towards a brain tumor if it is accompanied by the other symptoms mentioned here.

  • Vision or hearing problems: Twenty-five percent reported vision problems. This one is easy - if you notice any problem with your hearing or vision, it must be checked out. I commonly hear that the eye doctor is the first one to make the diagnosis - because when they look in your eyes, they can sometimes see signs of increased intracranial pressure. This must be investigated.

  • Problems with weakness of the arms, legs or face muscles, and strange sensations in your head or hands. Twenty-five percent reported weakness of the arms and/or legs. Sixteen percent reported strange feelings in the head, and 9% reported strange feelings in the hands. This may result in an altered gait, dropping objects, falling, or an asymmetric facial expression. These could also be symptoms of a stroke. Sudden onset of these symptoms is an emergency - you should go to the emergency room. If you notice a gradual change over time, you must report it to your doctor.

  • Behavioral and cognitive problems: Many reported behavioral and cognitive changes, such as: problems with recent memory, inability to concentrate or finding the right words, acting out - no patience or tolerance, and loss of inhibitions - saying or doing things that are not appropriate for the situation.

IF you think something is wrong, go see your doctor. Explain that you are worried it is a brain tumor. Keep in mind that brain tumors are relatively rare compared to most other disorders, so the primary care doctor is not usually going to be thinking it is a brain tumor. They first think of more common causes of the symptoms. Sixty-four percent of the time, the doctor thought it was NOT a brain tumor when respondents first went to the doctor. More than half of the people reported that they had the symptoms for more than a month before the correct diagnosis of brain tumor was made. With the malignant brain tumors, a delay of a month in starting treatment can make a major impact on the outcome.

There is a more detailed paper on brain tumor symptoms at: http://virtualtrials.com/symptoms.pdf



We did a survey of our members who have a brain cancer and asked what signs or symptoms did they have that made them think "do I have a brain cancer?" and how they were diagnosed with a brain cancer. This is what they said:

Survey Results As Of 06/13/2013

1. What type of brain tumor do you have? (3817 responses)
 Acoustic Neuroma 493 12.92%
 Anaplastic Astrocytoma 501 13.13%
 Brainstem Glioma 430 11.27%
 Glioblastoma Multiforme (GBM) 563 14.75%
 Low Grade Glioma 383 10.03%
 Meningioma 435 11.40%
 Metastatic Brain Tumor 264 6.92%
 Oligodendroglioma 256 6.71%
 Other Benign Brain Tumor 296 7.75%
 Other Malignant Brain Tumor 196 5.13%
2. Which of the following symptoms did you have which led to the diagnosis of your brain tumor? (14798 responses)
 Headaches 2261 59.24% of patients
 Strange feeling in your head 1876 49.15% of patients
 Seizures 1565 41.00% of patients
 Problems finding the right words 1622 42.49% of patients
 Weakness of the arm(s) or leg(s) 1664 43.59% of patients
 Nausea / Vomitting 1556 40.76% of patients
 Problems with vision 1671 43.78% of patients
 Problems with sensation in your hands 1345 35.24% of patients
 Strange smells (that other people don't smell) 1238 32.43% of patients

3. Did you have any other symptoms that are not listed above?
  • Dizzyness, falling(every single day) Pain in ears almost like middle ear infection.
  • balance problems and vertigo
  • vomitting
  • Migraines
  • no
  • no
  • cold brain
  • Swallowing, speaking, balance poor
  • dizziness, tiredness, forgetfulness
  • ~*~trouble walking (especially in the morning and towards night) ~*~horrible memory
  • light headedness
  • confusion forgetting things short term memory loss exhaustion impatience
  • Vision
  • No
  • no
  • "detachment" between left side of body (mostly arm, hand, etc.) and the brain. I had bright flashes and then a 'detached' feeling from left arm to brain.
  • Metalic taste in mouth
  • no not yet
  • no
  • I was fatigued for years and thought I had ADD for about 8 months before diagnosis
  • mild stroke-like feeling
  • spacial problems examples walking in to traffic,putting on shirts, left to right, front to back
  • MIGRANE
  • stabbing internittment pain on the back part of my head stiffness of neck
  • Change in taste buds. Everything tasted like it had pepper on it. I had been changing the order of my words in a sentence for about 3 years. Thought that wasn't normal.
  • off balance trouble being awaken trouble getting to sleep chest pain numbness in pinky or thumb
  • vertigo
  • headaches,weakness
  • Vertigo
  • CONCENTRATION MISSING
  • Hello my loved one! I want to say that this post is aesowme, great written and include approximately all important infos. I?d like to see extra posts like this .
  • no
  • persistent worry...
  • dizziness, and drowsiness i didnt have full seizures though just shakes in my arms and legs which i was later told were actually minor seizures
  • i am having signs of altimers.i am only 45 and no insurance and i really hurt bad
  • memory word recognition spelling
  • pain in the crane, left side of the brain infrequent neausea
  • no
  • high anxiety!! bad dreams...crazy thoughts
  • SLEEPINESS DURING DAY, POOR APPETITE,FREQUENT URINATION
  • leaking breasts
  • uncontrolled head movement, although fully aware failure to interact with environment(5-10secs)
  • foot turned in and I had problems walking
  • Focal seizures
  • milk discharge from breast
  • epilepsy
  • yes periods stopped and hormonal imbalance
  • hearing problem
  • No
  • one foot turned outward when sitting on floor with feet extended during aerobic warmup exercise class dizziness left hand, fingers and arm was paralyzed for 10 min. after carrying a bucket of water
  • some problems with balance. (I also had some symptoms for a long time that I didn't know were related until later such as hiccups and a strange feeling in my ear)
  • dizziness, hearing loss
  • Numb legs
  • Memory problems.
  • In the two years prior to being diagnosed my wife would occassionally wake me up and tell me that she heard a "clicking" in my head (only while I was sleeping and my head in a still position). She said it sounded similar to a pingpong ball being hit back and forth at exactly timed intervals between clicks (maybe 1 second or so). The clicking only stopped when she woke me up and the position of my head shifted. This happened about 8 to 10 times over a period of about 2 years.
  • Mood disturbances, emotional outbursts, lip tingling, lightheadedness
  • No
  • I had had an episode of vertigo which was diagnosed by my chiropractor as Menieres Disease about 5-6 years previously which may be related.
  • loss of memory muscle spasms
  • L-SIDED CARPEL TUNNEL SYMPTOMSMISDIAGNOSED AS PREMENOPAUSAL ISSUES
  • slurred speach
  • mood swings, tingling lips, light headedness, dizzy, annunciation
  • balance problems, falling, tremors rt. shoulder, arm, hand, diaphram.
  • Left arm just hung at my 6 year old son's side. He could not use his fingers. His left foot dragged.
  • burning sensation in the side of the head
  • Mood Swings, light-headeness
  • dizziness, eye "halos", neck pain, hearing loss
  • Hearing loss
  • yes
  • stroke
  • hearing problems,Behavioral and cognitive problems,drowsiness
  • dull pain below the left ear
  • numbeness down the whole sid eoofthe body
  • balance, intentional tremors
  • no
  • Dizzines
  • felt like I was getting stupider...couldn't remember information-perform basic tasks-thought I had 'chemo' brain
  • memory loss
  • Only siezures Spasms of left stomach muscle area, then left leg numbness and finally progressed to shaking Had about 5 min warning. 5 doctors before an MA requested a MRI. First 1997- MRI in 2002
  • feeling of Pressure in life situations
  • no
  • Chronic neck pain Personalty changes Hugh weight gain
  • hearing voices
  • Incontinence, deep depression, ear-ache that lasted at least 6 months,lethargy, change in personality; all of which I was only treated for the symptoms and not the overall problem.
  • I was noticing a loss of hair. Not an abundant amount but every mornig I would wake with 10 - 15 hairs lying there on my pillow. That has since stopped post surgery and treatment. I was not going bald by any means but it was always strange that I had unnoticable hair loss to everyone else but to me.
  • I was lactating.
  • I have no symptoms. 2.5cm tumor found during MRI for something else seven years ago. No growth.
  • dizziness
  • dizzy, see stars,
  • melanoma
  • swalling face, hives
  • Grand Mall Seizure landed me in the ER resulting in a cat scan being done that showed the baseball size tumor. That's what LED to diagnosis. All the above syptoms had been experienced and reported for years but diagnosed as a variety of other things mostly psychiatric.
  • "Throbbing" hum in my ears.
  • we thought the symptoms were from a mini-stroke. Depression,anger,confusion.
  • Anger management problems (i.e., inability to self-regulate emotions)
  • strange loss of feeling in my right left side of face...flashing lights and horribel headache...put into hospital w/fle and release w/suggestion it was in my head...next day my left eye closed!
  • Drooping right eyelid. Slight bulging of eye.
  • Involutary clenching of hand lasted approximately 30 seconds. Up to 4 times a day. Sometimes 2-3 days a week, sometimes 6-7 days a week.
  • No
  • Hearing loss one side
  • Inability to comprehend directions, or in what order to do a task when my wife would try to explain it,I would become angry. Just a few days after experiencing the above, I had a grand mal seizure which led to me being hospitalized.
  • tingling down to my toes from my head on one side of my body. like electric shocks.
  • Nausea was associated with motion. When I leaned over or sat up from bed I vomited.
  • loss of balance
  • Extreme Fatigue
  • Pain in neck and back, limbs trembling
  • NO
  • Loss of balance; "pumping" or throbbing sensation like hearing heartbeat in right ear; flashing lights or aura around periphery of right eye.
  • Dizziness, balance problems
  • Tiredness
  • Hitting the wrong keys on a computer keyboard.
  • vertigo
  • Yes. Chronic runny nose. (GBM is in the frontal lobe).
  • Loss of Coordination in right arm
  • Left side of face week and mouth drooping (GBM is in right temporal area)
  • wide gait when walking at the age of 15 months, 3 small siezers, right head tilt every few minutes.
  • 1.I was unable to talk for several moments. 2.Another time words just started flying through my mind. 3.I had difficulty understanding a phone number that was being told to me over the phone. After 4 or 5 of these incidents within a few days, I went to see a doctor and a cat scan showed a tumor in my left frontal lobe near my speech area.
  • Held left hand to chest with thumb pointing out sometimes. Couldn't explain why--it just felt good. Dragged left foot sometimes. Stumbled occasionally.
  • No other symptoms
  • confusion and strong auras that we had no name for at the time
  • Pain behind eye
  • Personality changes that my family noticed
  • no
  • suffered mostly from vertigo and slow, gradule loss of balance, numbness of face not pronounced on either side..was sent home frm er, and was told it was probably skin cancer spot on forehead that caused numbness
  • NO
  • lethargy
  • absent-mindedness problems with short-time memory problems with concentration
  • My husband had only partial or focal seizures, which he described as being in a dreamlike state for a couple of minutes, feeling flushed all over his upper body, and smelling a terrible smell that he could not quite identify, but knew he had smelled somewhere before.
  • Found out that when my daughter had strep throat and high fever two months before her surgery that she was blind for a little bit, but did not tell us this until several months later.
  • No
  • Two dizzy spells in the 6 weeks prior to the grand mal seizure
  • no headaches. i would get what felt like lightening striking my head at various times. so painful one time it literally felt like i had stopped breathing.
  • fatigue, and loss of knowledge of where my left hand was if I wasn't looking at it. Also, going down stairs was difficult if I wasn't looking at the stairs.
  • No.
  • Visible Numbness in my face/mouth-just before CAT SCAN Recurring sinus infections for 2+yrs
  • Yes, Mom had problems writing some things. When writing a grocery list for example, she could write "saran" but could not write "wrap". When she went to the ATM machine, she could put in her access code, but could not push the button requesting $50.
  • Had mono at the same time so misdiagonesed as mono
  • had difficulty with knowing the time of day, could not read words.
  • Drooling and off balance
  • Intermediate memory loss
  • The patient's aphasia was not apparent to the her. She was not aware that her use of nouns was not appropiate to what she was trying to convey. To her, she was making perfect sense and was put off by the "fact" that there was something wrong with me that I could not understand her.
  • Balance and feeling like I was in a fog.
  • Difficulty writing, e.g. reading back what was written and finding it didn't make sense
  • N/A
  • no
  • Aura
  • Constant fatigue
  • Left side of face drooped slightly. I spoke differently, at least according to my husband.
  • Not prior to diagnosis
  • some memory loss, then a grand mal seizure
  • Words sounded garbled.
  • Excrutiating facial pain..TN
  • No
  • no.
  • The Doctor was looking for a reason for unexplained fever, which had nothing to do with my brain tumor.
  • missed monthly periods starting at age 42. Physicians thought I was going thru menopause, but bloodwork suggested otherwise. Elevated prolactin level led to MRI, hence meningioma discovered.
  • unsteadiness,fatique
  • loss of interest in hobbies and friend and family
  • when I drove on the interstate,which would be faster than in town, I guess, I felt like the car was going off the road to the left.
  • I am told that my symptoms are not related to the tumor, but no MD can tell me what is causing the symptoms. I have also had multiple head ijuries and probable Lyme D. Other symptoms include dizziness, balance problems, short term memory problems, both short term and remote, visual sensations, difficulty learning new material, fibromyalgia, pressure in the head, cold sensation on face, numbness in different parts of body and The left eye is drooping, cramping in numerous parts of my body. As I said, none of these symptoms are attributed to the tumor.
  • Don't know as my daughter was only 1 year old at time of diagnosis.
  • Face droop. Problem making decissions. Clutter/disorganization. Unable to do simple math (balance checkbook)
  • jerking of right leg lasting for approx.2minutes and then everything was fine
  • Ear cartilage and deep in ear into head hurt hurt. restless legs with very hot feet at night. buzzing in bottom of one foot. Squish, squish sounds in my head when I turn it any which way or walk heavy ,if I walk heavy or the car goes over a bump. Eye lid twitches and some time feels like it is pulled real tight. Picky pick feelings on my face.
  • severe memory problems problems with concentration and organization loss of balance
  • Balance
  • lost of hearing, dysphagia, lost of voice, speach difficulties
  • Dizziness, falling
  • Had problems with hoarseness
  • No.
  • no
  • a band of pressure in the back of my head that prevented me fron lieing on my stomach. off-balance, vertigo
  • decreased hearing on affected side
  • "Zoning out" and forgetfullness
  • imbalance "listing" falling
  • My father showed symptoms similar to a stroke. Drooping mouth, swelling left hand, slightly dragging his left foot when he walked.
  • lack of emotion, lack of concentration, loss of bowel control twice, vomiting and naseau once, lack of interest in family events (right frontal lobe meningioma)
  • Only in hindsight - left hand weakness and problems learning new material
  • no: the sole symptom was simple focal seizures.
  • spacial orientation....would reach for something and it may be just inches away
  • Personality changes. Lack of concern over the usual things. Unusual behavoir.
  • Under "strange feeling in your head" -came unsteady gait with depth/perspective problems As I understand now, most of my symptoms were due to the hydrocephalus which was caused by the tumors so I'm not sure if these qualify???
  • strange sensation on the right side of the face. Slurred speech
  • dizziness
  • It wasn't weakness in my legs, just clumsiness -- which may not have been a sympton afterall. But the clumsiness has definitely gotten worse.
  • None apparent but possibly some things that were thought to be just ordinary at the time.
  • SPORADIC BLINDNESS (VISUAL LOSS) THAT WAS VERY FRIGHTENING, HOWEVER, I NEVER TOLD ANYONE...DUMB HUH?
  • My daughter, Shannon OBrien saw purple lights in her peripheral vision to the right side (tumor was right front),before having a grand mall seizure 1994 reurance anaplastic oligo grade III 2000.
  • Al, I'm submitting this about my son's tumor. It was a PXA, grade 2 (that does fall in the category of low grade glioma, I believe). He had no other symptoms... just one grand mal seizure. It did not show on CT scan so the original team felt he had some "seizure disoreder"... NS consult ordered MRI and tumor was located. That happened within a couple of days of the seizure.
  • No, Pat was dropping things.
  • dizziness, chills, feeling outside of myself
  • hearing loss when having the headaches.
  • yes, poor short term memory, very tired and when writing, could not keep text in line. Could not concentrate to add.
  • seizures were focl/sensory seizures on one side of the body
  • Memory loss, got lost driving in my own neighborhood. Did not know my own backyard. Did not know who was this man sleeping next to me (my husband of 19 years).
  • sagging skin on left side of face (tumor on right side; also whooshing sound in my head followed by nausea and spacey consciousness three months before my diagnosis. That's when headaches started. Also had what felt like "water on the ear".
  • Recurrent sinus infections Dizziness/Vertigo
  • My daughter, Shannon OBrien saw "purple lights" in her peripheral vision off to the right before grand mall seizure (her tumor wes right front temporal lobe).
  • Feet seemed to get tangled easily. Also, started having trouble with putting the right numbers into the checkbook and doing the addition/subtraction.
  • Had none of the above symptoms, but had some depression, no motivation, and memory problems.
  • Pains in the arms and wrists
  • couple of years of "auras" with no headache, then 3 years of progressively worse headache, preceeded by auras, once in a while vomiting (with headaches) numbness in fingers once in a while (listed above, but more descriptive?)
  • Flu-like symptoms diahrea, vomiting and bad headache
  • Gradual loss of hearing on the side of the tumor- attributed to a possible sinus problem Note: The "strange smells" were quite subtle and intermittent and never reported to my doctor (Primary care physician) Specialist pushed for MRI
  • no
  • Tired--
  • Off balance, leaning to the left
  • horrible extreme fatigue - feeling like I had been up for DAYS. Dr.s are unsure what caused this symptom - possible seizures in my sleep or my body fighting off the tumor that I didn't even know what there
  • Violent and weird behaviors, emotional problems
  • Nausea in my stomach that rose up into my head Then feeling extremely flushed in my face and feeling that I might pass out.
  • Drove left of center on the highway Complete personality change Problem with initiation
  • some personality change-distrusting, short-tempered, fatigue
  • neckache extending down to back which is took him to chiropractor - after listening to his ailments thought he should see neurologist and chiro. took it upon himself to make appt. for Stephen.
  • Balance Lethargic - wanted to lay in bed and sleep all day
  • No
  • Tingling in nose, then fingertips. My seizures last 2 minutes.
  • I had more tremors, then seizures
  • no
  • Eyes fixed left, unable to center Ataxia
  • Dizziness
  • my seizures were flashing lights and visual distortions ( felt like I could see through walls)
  • depression, mood swings, strange sensation in face on side of tumour, changing vision, chronic fatigue,
  • no symptoms at all. i had a stroke.
  • no period for 4 months prior and only 35
  • hearing loss, dizziness when trying to lie down, poor apetite
  • I am submitting this as a caregiver. My Dad died in 12-01. He never mentioned any other symptoms. He initially stopped talking to us and had what we thought was a virus, with headache, nausea, vomiting. He was never one to complain, so we had to insist that he go to a doctor. He told us after diagnosis "I know what I want to say, but I don't know how to say it".
  • A vein in the tumor was hemoraging slowly, bulding up blood n the area. Causing presure.
  • Numbness in hand and arm and slurred speech
  • numbness that spread downward starting in my face (similar to your foot falling asleep)--only on my left side. My tumor was located on my right side.
  • Lethargy
  • Problems driving a car. Disorientation.
  • swallowing problems,breathing difficulties,tremors
  • Strange tastes- occasionally.
  • Balance problems
  • Numbness left side of face, tongue, roof of mouth (trigeminal nerve areas only)
  • irritability
  • Subarachnoid Hemorrhage was the only indication. The tumor triggered the hemorrhage. No headaches previous to that, just a weird sinsation sometimes.
  • Slering of speech
  • LEFT side facial numbness, hiccups, dry mouth, lack of appetite, slight loss of taste, balance problem (slight ataxia), FATIGUE
  • mild dizziness and neck muscle twiches
  • No symptoms led to diagnosis. Discovered by accident. Subsequently found that droopy right eyelid and slowly tracking right eye were caused by exophytic portion of tumor
  • I had an abnormal(bacharcardia-not sure of the spelling, sorry) slow heart rate, which was found first in cardiac testing. After the tumor was found the heart rate was related to the tumor.
  • Hear attack
  • In reality it turned out I was having seizures but I kept telling my husband and friends about these horrible nighmares I had had while sleeping. My teeth would be clenched and I could not move to get my husband awake in the bed next to me to help me. The sound of my teeth crunching together was terrible and then nothing...I awoke but remembered because I was so sore the next day what had happened. I would and still do have a headache.
  • fatigue, temper
  • Hypoglycemia
  • my headaches were excruciating not controlled by tyl#3. the vomitting was without nausea loss of balance out of breath unable to sleep scare I thought I was becoming crazy as all the doctors were telling me that I had a flu, or a sinusitis. I visited numerous clinics and emergency room every weeks for multiples months before they ordered the scan that showed the huge masse 7 X 6 shifting my midbrain to the left surgery= GBM IV Stage 3
  • No
  • I had low grade H/As for several years prior to having a seizure which I never gave much thought to. Perhaps it was tumor related - I don't know and my docs never pursued.
  • no
  • Coordination problems - could have possibly been from the double vision.
  • Tingling, burning sensations in my face. Growing instability on my feet for no apparent reason.
  • intention tremor irritation with noise (?)
  • Yes, incontinence, forgetfullness, and deep sleep.
  • Neuro deficits - forgetting how to write, type, making foolish errors at work
  • Neuro deficits - forgetting how to write, type, making foolish errors at work
  • No
  • Pain in neck area
  • Severe neck pain
  • Being off balance
  • Unusual behavior. Loss of short term memory. Fatigue. The symptoms were split in time: headaches 2-4 months, maybe longer before diagnosis; vomitting 3 days before diagnosis; strange behavior 2-3 weeks before diagnosis. Fatigue 5-6 months prior.
  • I had no real symptoms. No more headaches than the average person.
  • disorientaiom,loss of semse of time
  • tremors
  • I seemed that my brain just stopped functioning and I have never determined how long this lasted.
  • Behavior changed. Became unaccountably judgemental and uncharacteristically cruel five years before diagnosis. There were flu-like symptoms for a few months before diagnosis, and along with this, he was weak and foggy-minded. A year before, he looked pale and weak.
  • not being able to concrete
  • 1st manifest during plane flight returning from Europe soon after take-off and persisted for entire trip terribly (probably due to pressurization... it was very large with significant displacement).
  • handwriting was shaky swallowing problems balance problems
  • A slight hand tremor and a drooping eyelid were the symptoms that lead to diagnosis. Headaches, although recognized as having occured, were not frequent enough to warrant concern.
  • Imbalance of the environment,losing balance. There were some cognitive changes despite a high IQ such as a dyslexive problem. I was told it was stress, anxiety. Certain noise pitches made me feel that felt I could lose my balance from. Problems with crowds after being on stage for years and in crowds of hundreds of people. Movement of the environment such as a escalator was a problem to naviagate the footing.
  • no
  • frequent bloody noses for about 2 years before dx. stopped after resection. dr. denies this as symptom.
  • slurred speech
  • dizziness
  • my nausea/vomitting and strongest headaches were in the am and by early afternoon they would go away. it looked like "morning sickness". the symptoms increased in frequency and intensity over about 1 1/2 years befor i went to a new doc and he sent me to a neurologist and an mri was ordered. this was in 1991.
  • I was first diagnosed with having anxiety / panic attacks. The left side of my body would go numb and tingle. After my first MRI, they discovered I was experiencing seizers NOT anxiety attacks.
  • Looking back on this, my husband had twitching feet at night when he slept and snored horribly. After his surgery he had neither one.
  • Precious puberty, and other horomal issues
  • Yes, the symptoms that caused me to ask for a CAT scan were swelling & numbness on one side of my face. This happened one weekend & I asked the dr. on call to schedule me a CAT scan. My family dr. did not suspect a tumor until the radiologist saw it (plum size) on my CAT scan & immediately sent me & the film to his office. He sent me to a neurologist who put me in the hospital on an IV for steriods and scheduled me for surgery, which I had after a 2nd opinion the next week. -------------------------------------The "strange" feeling in my head was more of a spacy, disconnected feeling lasting only a few moments which came and went over several weeks. The vision problem was like occasional spots or floaters that come & go. My family dr. thought it was maybe a blood pressure problem, but my pressure was normal.
  • no
  • No
  • off balance, frequently dropping things and falling.
  • It wasn't dx until the day I had surgery. the tumor had exploded and caused headache, paralysis, coma.
  • The week to two weeks prior to diagnosis, a very disconnected feeling almost like being in dream, things felt far away. Dizziness , just not feeling well.
  • No
  • LOSS OF SMELL. ANXIETY. SLURRED SPEECH.
  • I had tingling in my hands and feet. I also had problems with my short term memory.
  • Hearing music (no one else heard)and very strong, scary feelings of daja vous (partial complex seizure) Felt my personality was changing
  • Confused, fatigue
  • Awoke on vacation out of breath, difficultly breathing, naseau, feeling really sick. Dizzy, not normal feeling. Continued sick and unsure until seizures.
  • 1.Weird, surrealistic feelings. 2.Pain. To the extent to be confused with a heart attack, and treated accordingly
  • Ataxic gait
  • Pre-seizure, I had trouble finding simple words. It was so bad I went to see a counsellor, and we thought it was due to anxiety. However, my life is fairly normal, not a lot of anxiety.
  • NOT SYMPTOMATIC AT THIS TIME, FOUND DURING ROUTINE MRI FOR MONITORING OF NEUROFIBROMATOSIS
  • dizziness, tireness
  • fatigue heart palpatations anxiety (I had a grand mal while driving, taken to ER, CT scan done, diagnosed brain tumor at ER visit.)
  • dizziness when turning head and lack of coordination of feet/legs when crossing a street (this happened once)
  • no
  • incotinence, different behavior, poor handwriting
  • ants marching up and down face was the first symptoms had symptoms first in 1992 then they went away. Nuero Dr. never diagnosed the problem at that time. until 1999 symptoms reappeared
  • no
  • Fatigue
  • Only symptom: grand mal seizure (leading to fall from horse and hospitalization which resulted in my diagnosis)
  • No
  • uncoorination when previously coordinated, dizziness, disorientation, dropping things, falling
  • Extreme fatigue
  • hallucinations "DREAMS WHILE I WAS AWAKE"
  • no
  • Firey vision at night Like you get by staring at the sun and then looking away.
  • No
  • The only presenting symptoms in my husband were some disorientation and extreme short term memory loss. These came on suddenly (mri showed blocked ventricles).
  • deja vu prickly sensation on arms seizures were brief, absence type
  • Dizziness, almost a drunken feeling
  • hormonal problems: periods stopped night sweats
  • No
  • No.
  • mood swings unintelligible speech (twice)
  • I had some cognitive problems, for example, I tried to write a check and did not remember what to put on the different lines of the check.
  • I had problems with organization, concentration, reading, finding words, short-term memory, although none of these led to the diagnosis. Even after seizures started, it took a few months before the tumor was diagnosed, because my seizure symptoms were not understood to be such.
  • My doctor thought my speech sounded slurred, and that my gait was "off."
  • NO
  • yes, my husband (I was his caregiver) started complaining of his pinky finger and ring finger in his left hand haveing a tingling. then it went to a puslsating into his upper arm then 7 months later had a seizure
  • I had swelling in my arms and legs.
  • Definite personality change
  • hallucinations during aphasic seizures
  • Felt dizzy
  • extreme exhaustion, loss of sense of smell, loss of emotions and inhibition, uninterested in caring for home, children & self,dizziness, despondent,
  • problems staying focused, felt unmotivated like he lost his "drive"
  • Overwhelming feeling of "something is definitely wrong with me", generally unable to go to work, difficulty driving, very sore shoulders, weak etc. When a small amount of alcohol was consumed, unable to walk at all, terrible unwell feeling, head pounding, nausea etc. (This is what my father experienced for 2 and a half months. Diagnosis was a long time coming... shameful treatment from a supposed neurologist.) ...from his caregiver
  • bad memory
  • TIRDNESS,SOMETIMES EAT MORE OTHER TIME DRINK MORE WATER.
  • off balance
  • tiredness, depression
  • Blurred vision
  • hormonal problem that family practice doctor thought was early menopause, then within thirty days of being on PremPro, has horrid migraine, went to ER and ER doc ordered Cat-scan, which found 2.5 cm meningioma, nightsweats, diaphoretic, difficulty in handling pressure or tendency to "blow things out of proportion" to their importance (acting like one of the children had been killed when minor conflict occurred, according to husband, who states now he noticed that my personality had changed a bit before diagnosis and he attributed it to menopause symptoms... typical, lol), unexplained tiredness all the time, insomnia, weight gain
  • No
  • dizziness.
  • i had short term amnesia
  • not being able to control one of my hands for a second or two
  • I have a tightness, like a rubberband around my head & cold feelings
  • leg pain, tingling and numbness in right hand in last 2 fingers and half of palm of hand and numbness and pain in right leg. For a long time I have had issues watching the TV if there is movement or light. I would feel as though something was rolling around in my head. It was like an elecical impulse that would make me feel strange and horrible. It is difficult to explain. Lately they are much more frequent and instead of one here and there I may have 4 or 5 one after the other and I have to close my eyes until they pass. It leaves me feeling as though it is a run up to something bigger and bad and scares the bejeebers out of me. The strange feeling in my head left me knowing "something" was not right, I just figured it was some type of electrical misfire and I lived with this for couple of years. Unsure why, but have vascular issues in legs mottling purple rash under skin, broken blood vessels not there before... My meningioma is located on the saggital sinus within the falx and is small. 1.6x 1.1. It was an incidental finding looking for possible MS...13 doctors later I did get diagnosed with Chronic Lyme disease. The M did grow aprox 4mm in 4 months last MRI. It was 1.2X1.1 I am told there should be no symptoms other than headaches.. If you have any info on this type of tumor in this area pls can you fwd to me? I was diagnosed with mild ensephalitis 3 times in the last 3 years without spinal tap. Almost a yearly occurence I was listed as possible west nile virus... The episodes would go in aprox 6 wks or so symptoms were headaches, neck pain, dizziness and were awful. ....thank you My e-mail is quicksale4u@aol.com Thanks, Carolyn
  • no
  • dizziness
  • Dave did not have the symptoms of a tumor. Has never had a seizure but was being treated for a sinus infection that would not go away. black outs that are now called possible mini seizures.
  • No symptoms--found due to an unrelated fall which caused a concussion--the rest they say "is history".
  • (This is for my wife who passed away three years ago. I was her caregiver.) Difficulty walking. Very unstable. Disorientation.
  • Lost the need to react in a timely manner. In last month before diagnosis, I was last for several appts and did not seemed concerned by the consequences.
  • Disoriented.
  • diminished hearing
  • chirping noise in ear
  • no balance--hydrocephalus, lose of some urinary control,all I wanted was to sleep, certain smells upset my stomach--bacon & onion frying for green beans, depression, sore neck
  • tingly twitchy legs, and PS re last question - I am a GP, got diplopia, and I still had to insist on a scan!
  • Weakness on right side especially when trying to use hand however not considered anything since am lefthanded.
  • heard sound in ear (like bugs or blood moving around) ear aches
  • Difficulty with balance,
  • No
  • neuro deficits (forgot how to write, and how to type, could not hold the car in lane when driving), made bizarre decisions on cases at work, and stopped paying my mortgage!
  • coordination in left arm
  • Bumping into walls on left side. Tumor is on the right side of brain.
  • Sore eye. Eyes could not move from side to side.
  • balance, head tilt, eye wouldn't move to outside right, personality changes
  • continuous low-grade fever, hand tremors, exhaustion
  • Sudden onset of hearing loss. No other symtoms.Ear Dr. sent me for MRI the radioligist felt that I had an Anurisom. I traveled to UVA to see a Dr. that treated my son for cavernoma of brain stem,that ruptured and caused tremendous swelling in his brain causing stroke like symtoms.Resection was preformed with success.Thank GOD... The Dr, said that I have two of the same kind of tumors but located in different parts of the brain. No action is to be taken unless symtoms start. I am a 45 yr old male.
  • no
  • No
  • failure to thrive at 18months old she was diagnosed then after a cat scan showed a growth in the hypothalamus region
  • Hearing loss
  • Exhaustion (this was a major symptom that began many years prior to being diagnosed with the brain tumor - I was actually misdiagnosed with Fibromyalgia); difficulty swallowing; frequent coughing (particularly after swallowing something with difficulty), very little control over bladder or bowel movements (extremely dangerous to laugh; also, I wore very heavy pads to work or when going out just in case), dizziness, fell many times, very strange speaking (totally different words than what I wanted to say came out) and I lost my ability to write.
  • Chest pains similiar to stroke or stroke like symptoms. Dizzyness and felt as if I was going to pass out. Head felt like jello at times.
  • back shoulder leg arm chest pain muscles sore almost everywhere,groin area too ankle wrist
  • funny feeling in left eye and numbness/tingling of left side face
  • No
  • cold and caugh exesively.
  • Writing very small. Mother sees that it is very small, almost microscopic, but she can't change it. She sees that it is not the same style too, but still can't change the style. She laughs hysterically at things that are definately not funny and can't stop laughing. Restless legs throughout the night. Can't sleep. Moves excessively slow, says she must think about how to move her legs and hands for a long time before she can move, must think about the steps. Screams to care-givers that she can do it herself, and then feels very guilty that she has treated them this way. Greets acquaintances with "Hello, how are you? Glad you could come." But can't talk to closest of relatives, turns away. We are hurt, but feel it is a symptom of the tumor. She can sing perfectly with her Sweet Adeline friends who come to visit, even complicated harmony and rhythm, but can't talk to us. Paralysis on right side. Though we know she realizes she has a tumor and feels very badly that she is soon to die, she has never cried or teared up, though prior to brain tumor she was normally emotional and teared up when her feelings were hurt. Said things that didn't make sense. Had difficulty talking and making us understand what she needed.
  • numbness on top of one leg, transient numbness in ankle, spider crawling sensations on face,scalp and legs. Lost hearing temporarily in one ear. Nausea only reduced by Daypro prescription. Vertigo
  • dizziness, recurrent earaches,pressure in head
  • lethargy
  • Lump near the top of me head.
  • loss off hearing in right ear
  • hallucinations,fingers touching the body
  • memory problems confusion
  • headaches when there was a pressure change. such as coughing, sneezing, laughing, and moving my bowels.
  • very sore bones and joints
  • Bell's Palsy and small epileptic fits
  • can't walk straight strong dizzyness when lying down lost of balance
  • paralyisis,swelling.motorskills,vertigo,chronic head pain,loss of mucle mass,personality changes,fatigue,stagger,fall down,unable to funtion without worsening all symptoms,memory loss,grandemals,bowel disfunction,digestive problems,and the list goes on.
  • dizziness
  • Weakness and deteriation of right side of body. Confused. Memory loss.
  • focal seizures
  • My tast changed, I feel like I'm always chewing on "tin foil".
  • crawling sensation under my skin in my back and bad mood swings
  • mood swings,galactorrhea,bleeding for over month and half,always feeling hot and sweating,tired,face breaking out
  • behavioral; short-tempered; cognitive problems; chronic fatigue
  • none double vision left eye rolls to the bridge of nose
  • change in behavier, lost temper
  • tiredness, depression, easly angred, upset
  • change in personalty
  • i have a problem Very heavy Pain in my right leg joints I don’t know it is tumor or what
  • 3545
  • UPS
  • I was born with a tumor and had brain sugery when i was 4-6 months old
  • dizzyness
  • No
  • tingling sensation on my ear
  • Fainting
  • was diagnoised with perimenopause....anger issues.....dizziness, bad sensations that something bad was going to happen as my kids said i was paranoid, trouble remembering how to spell simple words. Werid dreams. Frequent urination, could swear i heard voices when no one else did. Bright spot in front of me that looked like a clear ti died spot on a tshirt. spots in my eyes.....usually black spots. pain behind my right ear.Abdominal pain. Strange rashes
  • general malaise easily tired.
  • deplession and all over feeling that something is wrong
  • slurred speech.
  • zoning out- not able to focus on what people around me were saying
  • Feeling dizzy and shaking a lot
  • servere pain in both arms and legs mostly on right side
  • I had a sinsus infection and figure it was that. My left arm gave away on me and I felt that my right face was feeling a little weird.
  • I had a sinsus infection and figure it was that. My left arm gave away on me and I felt that my right face was feeling a little weird.
  • dizziness, extreme thirst and urination, fatigue
  • arm spasam
  • lightheaded, passing out, irritable, high blood pressure, loss of temper
  • Tinnitus, balance problem worse when eyes closed or in the dark.
  • neckaches
  • dizziness
  • vertigo
  • Bulging eye pain. Constant tearing of right eye.
  • "Sizzling" or "squish squish" noises in my head and neck for 4 years, I assumed it was sinus trouble, constant sinus headache, not improved by sinus surgery, breast milk and numbness of limbs resulted in diagnosis of grade 2 glioma, right frontal lobe near motor cortex
  • alot of pressure and throbing pain
  • I could hear a sound inside my head that sounded like rushing water. Loss of fine motor and coordination. Drowsyness.
  • problems walking
  • First I felt tingling on the left side of my face. Upon touching it I noticed it was numb. Then five minutes later my left fingers would not move.
  • numbness, burning sensation, crawling feeling
  • Flat affect Loss of concentration Fatigue Overall weakness Emotional....cry and laugh at same time
  • dizziness
  • hot/cold flashes short term memory loss, hemiparalysis
  • down my right side there is a odd prickling and sensations, and my taste buds on my tongue have change how they taste things, I've lost some fine motor control in my right hand and arm. and I am having a pain in my left ear in one spot that I have to numb other wise it drives me crazy, and my right leg drag a little
  • no
  • no
  • Balance issues Speaking gibberish
  • No
  • Pins and needles feeling in my arms, legs, and head. Dizziness... vision problems such as grey spots, bright white spots, and seeing an aura around objects.
  • no
  • loss of hearing fainting
  • sudden and strong pain in arm and leg .heartbeating problems.
  • no
  • Forgetfulness - drove around one night for 40 mins because I had forgoten where my sister lived, despite having visited her thousands of times.
  • .
  • strobe like zig-zag lines, sometines saw "halos" would go partially blind for a few minutes then everything would come back into focus but very disoriented. i also had an I don't care attitude
  • Total loss of apetite leading to severe weight loss, ocular auras of many types, vertigo, pressure in my head, sharp pain behind my right eye. Right frontal lobe tumor.
  • Confused mentally Low patience / tolerance Vertigo like symptoms
  • looks like a mild stroke down right side of body dropped face speach problem room spins when open eyes get spasms in tongue and face when lift right arm
  • confusion
  • Memory loss
  • Vertigo - which promtped me to insist on a cat scan; however, doctor advised a MRI. Only trying to find the cause of the "Bad" vertigo experiencing at the time and trying to cover all my bases with test. As a result, the "M" was located which the Neuro stated the vertigo was in no relation to the tumor, just a fluk that it was located at that time. Did not notice any symptoms for the tumor.
  • nubsonthe forhead tha goes to the back of the head
  • .
  • No
  • dizziness , fainting and feeling faint, spacing out for hours at a time
  • emotional problems, I couldn't function.
  • fainting
  • a big bump growing on my forehead
  • Fits of anger, personality changes, loss of interest in most things
  • Anxiety and mood swings
  • I have hearing problems. I also hear this dounf inside my ear
  • feelings of aggresive behaviour
  • Numbness that started in my fingers and gradually went up my arm to my face
  • Numbness that started in my fingers and gradually went up my arm to my face
  • Not able to speak for about 10 seconds
  • large lump on the back of my neck at the top of my spine
  • walking like I was drunk even though I wasn't; left side of my neck ached; random chills, just didn't feel good (like the begininings of a cold), studdered at the end (before surguery), pounding sounds in my ears (drumming would come and go)
  • slight slur in my speech
  • HEAVY SWEATING
  • no
  • no
  • I had nystagmus.
  • problems sleeping
  • Balance problems.
  • weakneww
  • np
  • swelling in my back. fluid on my spain. A knot on the back of my head that has been there for 2 years.
  • numb legs
  • yes eye pain
  • unusual weight loss
  • Almost an out of body experience where there was talking in my head that I could not control.
  • impulsive behavior, focus on trivial matters slowly getting angrier and angrier-then the matter is out of proportion/anger out of control....suspect these were small seizures or symptoms of one coming-sometimes in the form of a daydream like stare-only a minute or so. Severe heart palpitations...Feeling of being in a "fog"...trouble sleeping, exhausted, physical activity would bring on dizzy feeling-had dizzy days, and no dizzy days-heart palpitations got so bad he had 3 heart monitors put on at different times-abnormal rhythm all they could find....short term memory problems.Had 3 negative brain MRI "s before the 3.3 cm and 1.1cm brain tumors were finally found. Wife of patient is participating in survey-
  • My tumor is a grade II Astrocytoma determined from the anatomical pathology but a growth rate will not be determined until my second MRI on Dec 28. I would like to submit the following information from my email which includes additional symptoms and the issue of negative CT scans: I am responding to questions previously submitted > regarding people who were experiencing various symptoms and had a > negative CT scan. I went through the same experience. I had a > seizure. The CT scan performed the day of my seizure came back > negative. Afterwards, I had experienced some symptoms that were not > normal for me. At first, I thought that they were due to work stress > but after a couple of months of total rest the symptoms had not gone > away. I knew something was wrong and asked my Neurologist to book an > MRI for me. My Neurologist was very kind and agreed to book it just > to ease my mind and assured me that it would come back negative. When > the results came back, I had found that I had a tumor the size of a > tennis ball in my left temporal lobe. The tumor is a grade II > Astrocytoma. My symptoms were extreme fatigue, unusual chemical > smells associated with an awful bodily sensation and rarely with > nausea so powerful that I could not move, occasional unusual fuzzy > ringing in the ear at times (and my hearing at the time was muffled) > and some days I would feel dizzy and drugged. I would also get bright > flashes behind my eyes occasionally in the early morning. I had an > extremely tough time finding such symptoms on the internet. I now > know that some of them are more common as I read the symptoms that > people describe in your question section. Hopefully, you can just > publish this in the question section so those people with negative CT > scans will pursue having an MRI (I hope for them that it comes back > negative). Better safe than sorry :)
  • dizzy, fever
  • I get dizzy ever time i stand up
  • Trouble writing and spelling words.
  • I had an episode of central vision loss in both eyes - my doctor ordered CT scan and the tumor was found - the vision loss was un-related to the tumour and the vision loss has never happened again.
  • frogetfulness and clumbsyness
  • dizziness
  • severe vertigo
  • Did not know what day it was and where I was going
  • Personality change
  • problems with hearing
  • no
  • pressure in my eyes.
  • fainting very weak
  • personality changed, couldn't organize anything anymore, couldn't figure out how to complete simple tasks, exhausted
  • nope
  • dizzyness,feeling as if my head is hollow
  • my left side of my head was completely numb, i was blind in my left eye and deaf in my left ear.
  • My face gets numb or the right part of my head also arms, leg, hands, feet, back.
  • Mood&patients issues, lack of sexual desires, dizziness, tingling in extremities(left pinky finger and small toe), klutziness(falls),fatigue
  • head clamps, the feeling of not enough 02 in my head.
  • smell of metallic or toxic odors. ringing in ears and pain in ears. Dry throat and lump back neck pain continously down to lower spine. Sharp pain in head, itching of skin all over, dry eyes, gums in mouth ache. pains in stomach and around hear area (back).
  • no
  • The tumor was on the left, and most of my symptoms occured on the right side of my body only. I lost a lot of feeling in my right arm and the right side of my face. Sometimes a pain would shoot down my right arm, and my arm would suddenly feel extremely heavy and almost numb. One time it was almost completely paralyzed. I also had myoclonus; at least 40 jerks a day.
  • feeling dizzy
  • floaters of the eyes
  • fainting , feeling disconnected,
  • no
  • pressure
  • problems remembering what i was talking about during a conversation
  • falling,bumping into things confusion anxiety weird behavior exhausted hard to swallow high blood pressure dropping things avoided people
  • Extraordinarily tired
  • Pain in the neck Flu like symptoms low tolerance to alcohol Two beers cause illness)
  • strange waves of sensation up and down my left side
  • Head hurt when I was shampooing it. My golf game, long drives impossible. WHile skiing my turns on one side weak. Felt pressure pushing on one side of my heads. Lost sight, came back as double vision, seen lines
  • fatige,lips sometimes seem numb,bomp behind ear
  • I had a cramping feeling in my left cheek it felt like a charley horse does when you are in bed in your calf at night sudden and cramping then my face swelled out on that side of my face within minutes. Like a lot of women I took an aspirin in case of stroke or something thought not much of it and put an ice pack on it rested. Later they thought it was a blocked saliva gland a ear nose and throat ended up doing a cat scan with dye and found the left frontal lobe tumor.
  • No
  • I ate normal and lost weight??? Only 10 pounds, but I haven't weighed that less since grade school. I had no seizures and it was baseball size meningioma! I was always tired and forgetful.I woke up enough to go to work and eat. I slept the rest of the time.
  • pain in neck
  • head ache that just half of my head and i felt the heart beat in my head
  • numbness in my legs,feet,arms,mouth, tongue, anus,and tingling in my face. pressure when I stand
  • I was pregant at the time and thought the symptoms were caused by that. My nose had a sudden burning and a itch that would not go away. This began while i was in labor
  • none
  • bells palsy loss of memory feeling very tierd all the time
  • migrain
  • Tired all the time and chronic pain in my shoulders for 12 years to the point of haveing to take Percocet for pain.
  • vertex headache episodically, some time aching in tample of the head
  • neurogenic bladder
  • vertigo, jerking while sleeping, leg cramps, sudden heat flushes, blurry vision, forgetful,
  • constant twitch in my neck
  • no
  • very smelly discharge from the nose very dizzy when moving
  • diahera
  • watery in ear(yellow colour) and bleeding in nose
  • balance & coordination vision inability to write
  • Pain in my neck that gpoes through my head nick and ear
  • pain on the middle of the head only on skin and burning sensation
  • double vision, weakness on my left side. Loss of equalibrium headaches. feeling like my ears are clogged. I thought it was a light stroke but the doctor thinks it is a tumor
  • no
  • Loss of taste, Dizzy spells for 10 seconds around three times a day.
  • numb sensation on my forehead. this was later diagnosed as trigeminal neuralgia.
  • partial numbness to the right side of my face
  • temporary loss in memory.Feeling of stupidness.
  • sleep behavior/emotional anxiety
  • i also blacked- out everytime i got up and i couldn't concentrate
  • hearing, loss of time
  • My face twitches.
  • dizzines
  • no
  • No
  • NIGHTMARES repetitive/crazy thoughts hearing/ear problems loss of color vision in one eye Anxiety lacking appetite Paranoia
  • changes in mood,tremors in the hands, double vision, parcial peripheral blindness
  • balance problems, confusion, problems swollening food and liquids
  • yes
  • bump on fore head
  • deja vu
  • seizure or stroke...not sure...difficulty breathing, loss of speech, memory, intracranial pressure...i have a cavernoma posterior, between the ventricles...splenium of the corpus callosum....eyelid started drooping a couple of days before hand
  • Dizzy spells (vertigo), motion sickness
  • did not smell for 4 years. sinus infections every spring. taste loss of.
  • DIZZINESS
  • no
  • bad eye pain.
  • personality changes
  • behavioral changes like childish, crying at every dislike words or talking,
  • Dizziness
  • Allergies Dizziness Trouble with swallowing, digesting and excretion Loss of reality (short lived) Hyperaccusive hearing causing sound induced seizures
  • loss of hearing sinus proble s
  • syncope feeling of passing out
  • When I had the seizures I couldn't control my arm, which would involuntarily raise to the back of my head.
  • strange mutterings of no meaning
  • abdominal issues, menstural issues, bursts of anger and then fatigue following in the next day or two
  • Blackeds below the high ,headace & giddiness offen.
  • Very clear is I felt going to fell down from sitting down
  • loss of memory
  • .
  • serious fatigue and fainting
  • Pins and needles on many parts of left side of my body (hand, shoulder, cheek, foot...)
  • memory loss repeating words blanking out during talking lack of concentration
  • sleepiness all the time
  • no
  • ringing in ears
  • wo
  • no
  • Anger, and anxiety
  • Hi Yes I did have other symptoms the one that was the worst was the metalic taste and the taste of those black hard ball candies
  • balance speach memory fatigue
  • Grand Maul aeizure lead me to ER& then scans revealed tumor. No major symptoms beside that. It was golf ball size upon its removal.Of course I stroked during removal & am now left sidedless & another tumor is growing in the general area as the other one. I just need to get it removed & reclaim my once active body back from the stroke. Any suggestions would be great. email rghtstuff2@charter.net
  • bleeding
  • jaw hurting,while having a serve headaches
  • numb arm not able to speak This was my 2nd brain tumor, so I specified to I have a previous brain tumor 19 yrs ago, so they immediately had MRI done
  • no
  • passing out
  • Hearing- a buzzing in my ears is what led me to an ear specialist, who tested and then ordered scan and discovered tumor. the tumor caused hydrocephalis, which caused the symptoms. he ear
  • left eye twitch patches of hair loss
  • noes bleeding, forgetting things
  • Numbness of the left face.
  • not being able to lie backward dizziness and walking off a strait line overall bad and strange feeling
  • falling over lack of balance
  • numbness facial, thought I was having a stroke
  • extreme headaches and migranes all the time especially in the morning. extreme head shakes that I can't control. Nobody sees the head shake but I feel it. My neck is so sore from shaking too much. My ears ache and their are always lots lots of pressure. My ears are clean of wax. I have lots of dizziness.
  • no
  • numbness in my face, nose, tiredness, forgetfulness,
  • Black outs and falling.
  • fatigue, ring headache, sense of pressure in head, shaking in hands, slight tremors, nose bleeds in left nostril
  • cold and hot sensations in head feelings of loosing my mind
  • I had a strong feeling that I had some sort of brain problem. Also, my year old German Shepherd female would become very protective of me about a moment prior to any of my seizures.
  • BALANCE.MEMORY
  • dizzy
  • feeling of deja vu and a funny feeling in the pit of my stomach. didn't go to er till seizure so last 2 questions i really can't answer.
  • was told I had a lisp when talking
  • equilibrium
  • When tired,loose of balance i complained of hairloss,i combt my hair and every time i shed a lot of hair
  • Silver sparklies in the brain
  • no
  • less apetite, left side eyesite is erasing
  • PROBLEMS WITH EQUILIBRIUM STOP MENSTRUATING DIFFICULTY VOIDING
  • lost the ability to use my right hand for typing and i couldnt figure out what fingers went where i am usually a 60 wpm typist
  • no
  • just a little pain on back side of ear
  • no
  • sex craving
  • headaches on my left side of my head
  • headaches on my left side of my head, ringing in my ears, trouble swollowing, sore throat
  • continuous head ache
  • memory lost
  • no
  • disorientation, incontnence,unusual laugh docile
  • eye seperation,
  • my hearing is really bad
  • vertigo
  • Dizziness when looking up
  • stomach problems, viral menegitious
  • No, not really.
  • she had no symptoms prior
  • flu symptoms, stiff painful neck i couldn't hold my head up for more than 10 minutes
  • nose bleed
  • 1.loss of periods 2. one pupil is sometimes dialated more than the other one and images taken in are not being processed. 3. saying the opposite of what I am thinking 4. confused
  • no patience, tolerance, bad concentration, right words fail me,
  • no
  • dizziness, problems with thinking
  • confusion
  • hearing loss
  • SWOLLEN OPTICAL NERVES
  • pituary tumor<5mm,confusion
  • forgeting of things, name of person;
  • dizziness, itchy eyes,tired
  • breast cacer[ inflamatory cancer]
  • Numbness on left side
  • Partial paralysis in the left side of my body, a numbness or tingling sensation in my left arm, limited motor skills on my left side
  • yes dizzyness
  • blurred on and off eye vision. somestimes missinterpret objects and distance even some events. confusion.
  • short term memory loss,stuttering, severe "brain attacks", loss of balance, massive confusion, unbearable migraines
  • Flashing lights, loss of appretite, weight loss, fatigued & abnormal perimetry test
  • Other symptoms included debilitating fatigue, balance problems, dizziness, vertigo & problems with mathematical calculations, & hiccupping. I was misdiagnosed with chronic fatigue syndrome (myalgic encephalitis), and then benign positional vertigo for almost 2.5 years until I was hospitalised unable to keep food or drink down, until my sister insisted on a MRI scan revealing the 4th ventricular ependymoma.
  • loads- sporadic numb spots around the body, sometimes with pain or coldness; the headaches which suck-- feels like my brain is pushing its way past the skull. Dropping things. Sensation like a thousand bubbles exploding in my head. And with musical tones, especially bass, it feels as though the tumour pulses in exactly the same movement as the speaker's membrane. It's a 20 mm posterior falx meningioma on a CT scan with 2 unidentiified similar objects about 3 centimetres from it-- one on the left hemisphere side and the other on the right hemisphere side (can't wait til an MRI scan clarifies these). ledolphinquill@y7mail.com if anyone's interested.
  • n0
  • Pressure on the left side of the head
  • seeing shadows, and my planning abilities
  • Pain in the crown of my head and pressure
  • Paralysis on right side of body. Symptomatic tumor was on left frontal lobe.
  • leg pain severe
  • depression and anxiety
  • none .i used to feel lazy during day time only if i am alone but in a group, i had the capacity to doing work of 4 people.
  • muscle twitching, ringing in ears
  • Visuals things that others do not see. Loss of balance. Memory problems.
  • both eyes burning red
  • teeth
  • anxiaty depression confusion
  • I have blood outed in Ears and Nose. Headaches,
  • None
  • sleeping up to 30 hrs at a time
  • passed out
  • dizzy, disoriented
  • feels light right side contracts and tightens such as spasms
  • Numbness on left side
  • Hands in motion feel on fire
  • no
  • no
  • partial memory loss
  • yes
  • strange taste
  • half protion of head acute paining
  • no
  • ringing in the left ear
  • canot read
  • no
  • dizzy
  • lost my hearing, eyes twitching
  • lost my hearing, eyes twitching
  • pain in the back of the neck
  • Dizziness
  • no, just one gm seizure
  • no
  • pain over right eye
  • peralsis
  • Elevated prolactin level.Complete loss of libido.
  • Cerebellum that as shrunk &atrophy of vermis And temporal lobe it`s damaged its connected to the brain stem
  • Cerebellum that as shrunk &atrophy of vermis And temporal lobe it`s damaged its connected to the brain stem
  • I could not write. I could see what the words looked like, but I couldn't put them on paper.
  • Bad typing and writing
  • no
  • Numbness in left extremities, can smell great at times, can't at others at all. Feel dyslexic or something, turn things around constantly.
  • forgetfullness, aggressive behavior, poor judgement/reasoning, confusion
  • ringing right ear needles and pinch in right side of face numbness in arm numbness in neck numbness on cheek
  • no
  • !S!WCRTESTTEXTAREA000000!E!
  • !S!WCRTESTTEXTAREA000000!E!
  • .
  • flashing lights eye Dr found two cyst behind each eye.
  • when i touch one spot it hurts
  • none
  • no
  • no
  • no
  • Stuttering
  • Hiccups, Visual disturbances, Hallucinations, Joint pain
  • broken blood vessels hives kidney infections
  • none
  • No
  • unable to speak clearly
  • speech problems, thinking problems, walking and balance issues, hearing problems, and "seeing smoke filled rooms" when there isnt any smoke. memory problems.sleep problems- either not enough, or sleeping all night and all day too.
  • Memory problems.
  • Memory problems & mood changes, becoming very angry & snappy with people. Oddly could contain the mood swings more at work, less so at home. Also some tingling on right side of head/face for a couple of years, but I have no idea if this is related to my brain tumour. I saw general practitioner after several weeks of persistant headache, fatigue, & "feeling off". I'd had flu a couple of months earlier and was epxecting to be told I was post viral, but the headaches scared me, in terms of frequency & being mostly in the morning. He gave me a nasal spray for sinusitis.
  • .
  • .
  • hear my heart beat on my pillow, feel my pulse on my head, and numbness on my head and tingleling too, specially if I drink Alcohol, and depression has been very intense
  • The same
  • Colonis was the only symptom at diagnosis found during a routine physical.
  • yes like tingiling and pressure in back ov head
  • unexpected thinking,hands are shivering
  • Very light headed... zone out countiously
  • hair loss
  • i actually had a lump bulging so much i could feel it.my head felt like it was so pressurized..like someone was squeezing it together. and i had Constant stuffed up nose. a bit of nausea
  • Short term memory loss. Lost the use of right side and started falling. (suspected stroke)
  • my eyes hurts,numness,
  • Nosebleed swollen glands
  • lump on left side back of head temporary ringing in right ear temporary loss of hearing in right ear
  • no
  • I had other symptoms, but the seizures got the doctor's attention. Prior to having seizures I had migraine headaches and memory problems which seemed to be increasing.
  • .
  • Balance issues Fatigue Fainting
  • strange sounds ears buzzing...
  • .
  • hearing loss in right ear
  • Always tired
  • head hurts worse when moved, urinaryin ontinence, confusion, lack of focus, easily distracted
  • I suffer with tremors also, staggered walk and slurred speech, memroy loss
  • incontinence,vertigo,unconsicousness
  • .
  • i was always very tired and would fall asleep even when talking. my speech was slurred and my vision was blurred and sometimes it was double in my left eye.
  • .
  • Tinnitus, loss of balance/coordination and the right side of my face had gone numb. Ear felt full and my eye felt pressure, like someone was pressing up under it.
  • no
  • loss of memory
  • muscle weakness
  • equalibrium
  • sensation of room spinning, loss of balance, dizziness
  • slightly elevated blood pressure (160/85), MRI showed old hemotoma in brain, no tumor. BP immediately controlled and sensation in hands originally notices when typing immediately went away. Small tumor only found after several months of tests and another MRI after hemotoma dissipated. Neurological tests did not identify anything and no other symptoms appeared.
  • hearing loss
  • knife stabbing pains in my head where lesions are located. unable to walk unassisted. now having to use wheelchair. falls. i freeze, people have to help me.
  • nose bleeds, poor coordination, swallowing problems, sensitive hearing
  • seizure included numbness on right side of body, speech slurred for about 15 minutes
  • SEVERE PAIN ON THE LEFT SIDE OF MY HEAD FOR WEEKS THOUGHT IT HAS BEEN MIGRAINES SEZURES GETTING WORSE
  • twitch in left eye and left side of face
  • upper eyelid twitch of and on all day long lasting 10-60 seconds about 20 times an hour
  • EXTREMELY tire since I could only stay awake for 4 hours at a time and then had to sleep for 3 hours. Clumsiness- to the infinity degree
  • right side the neck hs pain
  • I became really rude, yelling at people and locking myself inside my office. I sometimes couldn't remember how i got to work.
  • Problems with speech Strange Gait Difficulty walking Over salivating during the day and at night. Problems saying things and finishing sentences.
  • neck injury caused by the brain tumor compromising part of the spine.
  • blackouts in vision, not passing out, just complete darkness
  • cervical nerve pain
  • Loss of hearing in rihht ear!
  • no
  • Mild numbness and tingling of the left hand fingers tips
  • test
  • At age less than 2, 1st DX was nystagmus. We were only sure of loss of vision when she turned into a door breaking her arm.
  • ear sore nose sore and head sore
  • Severe personality changes. Extreme mood swings.
  • sometimes a feeling of almost head explosion, no appetite
  • My hand shakes several times a day can last anywhere from 3 to 30 seconds, fatigue, strange taste in my mouth, neck stiffness, tingling in arm and leg,
  • no
  • severe headache with right eye pain along with the ear pain
  • Odd behavior, loss of concentration, easily distracted, sleeping too much
  • 1) Vertigo: A single bout of intense vertigo diagnosed as viral 4 years prior to diagnosis, minor intermittent vertigo over 3 years and two additional bouts of vertigo one month prior and two months post vertigo. 2) Developed what appeared to altitude sickness approximately 6 years prior to diagnosis after approximately 40 years of visiting high altitudes 3) Kidney/Bladder infections within 6-18 hours of multiple legs of travel on smaller planes (less pressurization) - feeling fine to peeing blood 4) Intense hot flashes and night sweats
  • nape of neck ache deep ear canal ache
  • nape of neck ache deep ear canal ache
  • The first two episodes I experienced were room spinning followed by weakness in my right side, after this focal seizures in my right leg.
  • 5kXFZ8 http://www.6shpFpANPwYnffbs9P5rsRN67oJWDZuQ.com
  • Hearing pulse in ear on same side as tumor; vertigo
  • tingling feeling in lips and tongue and cold sensation in head
  • while sleeping i feel like pressure on every nerve from brain inner part and bursting of my head for a while, if all me knowing that this happening i could not able to wake up or shake my body hands, plz help me with this
  • Dizziness, loss of balance
  • Can feel right side off my hand and two figures .pain in my shoulder also got a cyst inside my nose got to have a byoisp and ct scan blooded test and a hearing test also got a hole inside my nose where the cyst is
  • dizziness
  • i cant focus!
  • NUMB ON LEFT SIDE OF BODY, LOST OF TASTE BUDS, BREATHING DIFFICULY, POUNDING HEART FEELING
  • i saw a flickering light and felt like i was losing my balance
  • saw sparking lights or things that look like they were floating around this went on for 12 yrs they kapt telling me it was my sinusis i had mris done then and they said they didn't see anything wrong then
  • ringing in both ears- was originally thought to be acoustic neuroma until surgery for removal
  • Loss of hearing Balance
  • Pain above the left eye, sway while standing still.
  • Sore throats, pain in ears, head and chest facial pain.
  • Paraesthesia to neck & face, drooping eye, tinnitus, fatigue and/or lethargy, lower back spasms, absences, occasional swallowing difficulties, weight loss which i cannot put back on, sinus trouble. Also have raynauds which i don't know if it is associated to the tumour.
  • no
4. IF you had headaches right before your diagnosis, please describe what they felt like:
  • none
  • back of head upon waking, the pain like the pain you get from a head injury. disappears within an hour of waking/getting up.
  • sever pain in head
  • yes
  • some worse than others
  • different spots around the head, it feels like something bursts inside with a burning/hot sensation
  • aching headeach
  • dull pressure on lower right side of my head (skull base). Constant with no easing 24/7. Dr could prod and poke my neck and it made no difference to the headache.
  • Wierd and strange
  • no
  • no headaches
  • Headaches in the morning for about 10 minutes at the front of my head
  • I have headaches when laying on my right side that are so bad it feels like my ear drum is being punctured when I lift my head off my pillow. This started in 2007. Only symptom that I noticed.
  • They felt different from other headaches I had. They didn't respond to medication. The actual pain might only last about a half an hour, but I always felt on the verge of a headache and would get them multiple times a day. Exercise would always bring one on.
  • it was very painfull.
  • tearfull strong pain
  • had no headaches
  • it feels like my brain is swelling with pain
  • I DID NOT CONSULT A DOCTOR ABOUT IT
  • stabbing sharp pain
  • It was a Headache like Ive never had before, nothing like a normal headache or a migraine
  • not very often and they were typical and not in that area
  • Just one day WHAM at the side of head,behind the ear. Went away and then WHAM again. Never had pain like that in my had before.
  • minor headaches that increased every other day now being severe
  • strong front of head aggrivated by certain head movement
  • sever pain in head
  • Migraine extending into my neck.
  • GIDDINESS
  • Hello my loved one! I want to say that this post is aesowme, great written and include approximately all important infos. I?d like to see extra posts like this .
  • bad
  • very stressed and pointed in particular region
  • tight feeling in my head, constant pain, pulsation on my temples, absolute agony, never went but got better at different times of the day and worse in morning and night
  • throb in temple. various parts of the head would hurt. Not one certain spot.
  • the top lrft side and my temple on the left side of my head would hurt very bad and it would cause me to get dizzy and vomit.
  • like my head was going to blow off
  • Would not go away, woke me up at night
  • massive migrane
  • no
  • The headaches were mainly on weekends and I thought they were migraines which I had never previously experienced. I had severe pain in the bone above my right eye. Light made the pain worse and I often vomited which is why I thought they were migraines. It was when I mentioned I had double vision when looking to my right(which my optometrist had said (some years earlier) was just eye muscle weakening due to my age ... in my 40's !!) that my doctor sent me immediately for a CT scan
  • FELT LIKE I HAD TORN MUSCLES INSIDE MY HEAD
  • pain behind right eye, very painful
  • Back of the brain
  • Headache, complete head, steady and all the time, (caused me to get minimal sleep)
  • very sharp pain, shooting either up from the neck to the forehead, or the other way around. Mostly the severity of the pain was at the base of the skull.
  • My daughter was unable to describe them.
  • can't remember
  • Excruciating headache combined with vomiting for two full days prior to MRI and diagnosis.
  • OCCURRED AT NIGHT AT BACK OF MY HEAD. WORST i'D EVER HAD. NOT RESPONSIVE TO NONPRESCRIPTION MEDS
  • pressure
  • worst pain i have ever felt
  • migraines
  • a needle going through my brain. thumping sounds
  • Migraña with nausea
  • pain and nummnes
  • No headaches
  • pounding,throbbing
  • Like a very tight baseball cap or a migraine that just kept getting worse
  • Excruciating-causing vomiting, distorted vision, feeling of pressure
  • my son who had medulloblastoma, had severe pain along the forehead
  • sharp and intermittent
  • they were beyond migraines which I have a history of. I would get them twice a day(early morning and after lunch)It felt like my head was about to explode. The pain behind my eyes was excruciating.
  • I did not have headaches.
  • Thought they were sinus/allergy headaches.
  • Slight headache upon awakening in the morning. Eased after being up for awhile . One week prior to diagnosis headache became more severe. Pain was in right eyebrow area. Gbm on right frontal lobe. Vomitted and went to ER was immediately diagnosed by CT scan.
  • Blinding unbearable headaches, for some time mostly behind one eye and DX as cluster headaches, migraines,etc. Also headaches began in the back, right side of head. Constant pounding pain. Those continue to this day, 14 years later. the tumor was right frontal lobe. There has never been an explanation for the pain in the back of head.
  • see above
  • NA
  • no headaches
  • On a scale of 1 to 10, the pain was a 10+, lasting four days sometimes.
  • rather intense head/neck ache (4th ventricular ependymoma) every morning - solved by taking 3 extra strength tylenol x 6 months
  • My husband described these as terrible, aching headaches on the right side of his head (his tumor was in the right temporal lobe) and on top-front of his head. His usual remedy of Excedrin did not even touch them. He was prone to earaches on that side of his head and thought maybe he had a bad ear infection. He told the doctor about the headaches, but NOT about the other symptoms (dreamlike state, smells, etc.) He only complained about the headaches, so they gave him something for the "earaches". He did not recognize the focal seizures for what they were. When he finally told the doctor (and me!) about the other symptoms, the doctor immediately ordered an ultrasound of the carotid arteries (thinking maybe he was having TIAs) and an MRI.
  • She had moderate headaches for a couple of months before her seizure, more late in the day. Tylenol would take care of it.
  • N/A
  • N/A
  • pain and pressure in back of head from ear to ear; sometimes sharp pain left back side of head (which is tumor area)
  • Extremely severe, like my head was about to explode, then nausea and vomiting.
  • Pounding/Blinding headaches where only being in a dark place with meds helped.
  • No different than headaches I had my entire life. Mostly when I was tired or overworked, in the back of my head.
  • Intense migraine like headaches situated behind right eye socket
  • Extremelly strong headaches
  • They Felt like really strong Brain Freezes.
  • i don't remember that my dad complained of any headaches before he was diagnosed.
  • very painful couldnt move because the pain was so great
  • Like a sinus headache
  • i had severe headaches daily. it was progressively bad -- usually by noon the headache was so bad i'd have taken several extra strenghth tylenol. in the afternoon, i'd have to take a 2-3 hour nap. this went on for a couple years before my grand mal seizure; after which i was diagnosed with an oliodendroglioma.
  • The patient described the headache as the worst in her life. She was accustomed to recurrent and severe sinus headaches, but the pre-diagnosis headache was totally debilitating.
  • My son said his headaches were excruating. The pain was like no other headache he had ever had before and he had been experiencing migraines for several years.
  • migrane
  • Very intense headache, but quite short in duration. Like a migrane (sp) but much shorter. The Dr. first thought that these were migranes. Also during the headaches my blood pressure was very high and in general my bp was elevated. I was told later that these were likely seizures.
  • headaches always started in the neck, thought they were from stress
  • Pain in one side of haed that got worse with movement
  • Frontal throbbingwith pain behind the eyes , nausea, vomiting...misdiagnosed as migraine headaches
  • Back of neck. History of headaches for awhile. Lots of advil. On question 6, we were told a lesion, could be virus, testicular cancer, but BT was NOT mentioned until the following day after N/S viewed the scan. Diagnosis was made within 1 day.
  • sharp.. not long lasting
  • My daughter described the headaches as throbbing. They would happen in the middle of the night and felt different than any other headache in her life.
  • * I had a grand mal seizure, was brought to the hospital unconscious, run thru CT and MRI and BT was discovered..No conversation took place
  • I had pounding migraine-type headaches for 20 years before my diagnosis, but did not associate them with the tumor until they went away after the surgery.
  • headache was excrutiating. Nothing I have ever felt before
  • Right side of the head constant pain, on a scale of 1 to 10 - about an 8. These strarted about 5 years before diagnosis.
  • Headaches would awaken me during the night. Had some headaches which occurred suddenly , sharp intense pain in the top of head associated with nausea. Headaches had nothing to do with being diagnosed. When I realized I could no longer work in the medical profession because of memory problems, I went to Rehab services. They referred me to a psychiatrist. He ordered the MRI which found the tumor.
  • Don't know as my daughter was only 1 year old at time of diagnosis.
  • A headache so bad like I have never experienced before.
  • Several types. Screw type pain in temples and down behind the ear structure. Sharp stabbing lightening bolts in the side. Skull cap squezzing pain. Pain at back where head joins back bone.
  • whole head throbbing pain, not localized
  • general ache, throbbing
  • Like a pole going through my right eye diagnoly exiting at the bas of my skull. Also a fullness in my right ear that felt like a wet finger was in my ear.
  • Like you wanted to pull your head off!!!!
  • Hurt in one spot (right temporal lobe) and were worse in the morning. Felt like head was going to explode
  • NA
  • Horrible headaches and lights made them worse...throwing up due to headache...
  • Intense pressure headaches; initially diagnosed as a sinus infection. I said many times, somewhat jokingly, that it felt like "my skull was getting crushed." In fact, it was.
  • terrible pain right behind the eyes that would not go away even with over the counter pain relief
  • Severe with band like sensation with pain into shoulders and neck.
  • I can't remember the headaches before the first tumor (1986), but headaches now can be very severe: a feeling of swelling from the inside out; a feeling like "just explode and get it over with".
  • some headaches, no special characteristics
  • Didn't have except when dehydrated
  • Prgressively the headaches worsened to the point where I stayed in bed. Pain along backside of head, like a tightening vice. Had accompanying nausea/vomiting.
  • n/a
  • No headaches whatsoever.
  • Just an ordanary run of the mill headache in the back of the head, usually when tired. Not all of the time, maybe a few times a week for a few hours each time. Not unlike headaches I had my entire life.
  • Yes, headaches right before the diagnosis! They were rated a 6 on a scale of 10. Never had headaches before- but, definitely were felt!
  • intense indescribable pain
  • Again, I don't know if these qualify as they have stopped since sx for hydrocephalus, but I woud have "visual" migraines that would last on average 45 minutes and rather than get a full blown migraine headache, I would feel somewhat dazed and exhausted once the auras stopped.
  • Never had headaches!
  • No abnormal headaches.
  • I had migraine headaches most of my life, but then I started getting really severe headaches that the migraine medicine didn't help with. Severe, intense pain in the back of the head lasting for several days. Nausea & vomiting almost constant with them. I had never gone to the hospital before, but the first time Mine were this severe, I knew I should go, but I was in a strange town. This happened monthly, then they got closer & closer and lasted longer. I was taking Vicodin constantly trying to control the pain. When they got really bad during an ear infection, the doctor gave me a shot of Demerol and sent me for a CAT scan, which prompted an MRI which lead to surgery & chemo. My first doctor left the practice after I had seen her for several years with memory problems & the headaches. I saw another doctor in the same office when I got the ear infection and she sent me for tests right away.
  • FEROCIOUS HEADACHES (AS LONG AS I CAN REMEMBER) SEEMED TO BE ACCOMPANIED BY A ? HEIGHTENED SENSE OF/AWARENESS OF LIGHT/SOUND, EVEN THE SOUND OF SOMEONE'S FOOTSTEPS WD AGGRAVATE THE PAIN
  • none
  • n/a
  • VERY SEVERE - SCREAMING AND WRITHING IN PAIN
  • like severe pressure in the back of the head. Only lasting 5 minutes maximum but extremely severe.
  • slight headaches sort of in sinus area
  • On a scale of 1 to 10, the pain was rated 11. The worst pain I ever exerienced in my life. Much worse than child birth.
  • Pain at the base of skull on left side, moved up the head to behind the left eye, felt like sinus headache. Responded to sinus medication until just before diagnosis when nothing helped.
  • The worst and ultimate headache just before diagnosis was a pain behind my eye which felt as if there was so much pressure my eye would fly out of the socket. Recurrent headaches were all in the sinus area. In the past I had headaches/pain from the back of my neck at the base of my head up towards the front of my forehead.
  • squeezing pain at the back of my head worse than the worst migrain you could imagine. Went into SEVERE nausea by the 5th day.
  • Like a vice grip in the back of my head and neck You may not want this input as I had the B.T. removed 11 years ago
  • Violent migraines, auras --diagnosed as "premenopausal migraine," no treatment needed (5 years) one evening of vomiting, fainting, "maybe we should take a cat scan" then diagnosis (meningioma, right parietal lobe 7 centimeters) all above 6 years prior to diagnosis --including 3-4 visits to pc doctor, neurologist, gynecologist, othomologist
  • headache felt like sinus headaches probably why they initially treated as such.
  • Extreme headaches to the point of not being able to function properly.
  • Like a hot iron going up through my nostril and into the right side of my head.
  • No headaches prior
  • Throbbing pain which reached a crescendo in about 30 seconds after a positional head change however minor
  • sinus headaches that never went away - all around my eyes
  • had an instant headache upon sneezing but lasted only a few minutes
  • Very strong all over. Worse in the morning.
  • pressure headaches, I could feel like a squirting going up in different places in my head......
  • Migraines
  • tight band being tightened around forehead, ice poker being driven into head
  • pressure behind eyes
  • He complained only of a dull headache. That, however, does not mean that he didn't have chronic headaches, nor does it mean that they couldn't have been excrutiating. As I've said, he did not want us to know that there was anything wrong, so he never complained.
  • A constant pain in one spacific place (where the tumor was located). A sharp pain. It did NOT throb, but was consistant. When I shook my head, it felt like something was there. When I bent over, my head felt like it would explode.
  • Pressure when standing up or bending down
  • Horrible centrally located head pain
  • whole head headache, not just one area. Constant, never fading pressure
  • I've had migrains and sinus headaches all my life...they were alot like sinus headaches,with nausia from smells.
  • I had headaches only slight ones on awakening most commonly if i took a nap. They would be often go away by them selves. Often just a little quesy with these headaches. Monster headaches with menses!!!!!
  • the neurosurgeon advised me that the headaches were not related to the brain tumor. I had what is considered an incidental diagnosis, a few months after a car accident. My primary care doctor sent me for an MRI. Diagnosis was by MRI.
  • from the hemorrhage, the worst headache in the world.
  • Sharp pain, like a stab which would come and go.
  • very occasional light headache,unique in that that they were focused in small area of left forehead, easily eliminated with ibuprofen
  • incredible pain
  • Pounding within both temples. Possibly the longest and most severe pain I had felt prior to surgery.
  • shooting pains lancing across my brain that lasted only seconds - but brought on by any exertion (laughing etc)
  • Terrible. The Dr. was treating as a sinus headache. Took all kinds of pain pills with no relief. Vomitting, severe pain
  • pressure, could not stand myself, would put cold towels around my head, and hit my head,(tyl #3 and demerol did not work for pain), pain might go away for a few days, but I would still feels unbalance, loss vision, out of breath, then I would vomit for no reasons then pain would be unbearable. I would appears drunk to other peoples and I do not even drink.
  • N/A
  • Generalized, however, they were not noteworthy.
  • HAD PAINS IN THE NECK AND BASE OF SKULL WHICH i HAD ATTRIBUTED TO A FALL. LOOKING BACK, THE FALL WAS PROBABLY DUE TO INSTABILITY/BALANCE PROBLEMS THERE WERE DEVELOPING. i THOUGHT FOR YEARS I WAS JUST CLUMSY....
  • Headaches did not occur until about five years into the diagnosis and were a significant factor in the decision to finally have surgery. Headaches occurred primarily in the morning upon waking, almost every morning. They dissipated as the day progressed and were helped by aspirin. Headaches disappeared immediately after surgery and did not return.
  • Only one the day before dx. Hurt very badly all day and night with almost no relief until went in next morning for CT and the found PNET Medulloblastoma.
  • an unbelievable, undescribeable pounding with vomitting.
  • Constant unbearable pain in my head.
  • migraines...severe pain followed by nausea and vomiting
  • migraines...severe pain followed by nausea and vomiting
  • Migraine type headache with aura, starting on right side of face and moving behind left eye. Seeing star like light, and vomiting. Went to ER and MRI found tumor. I had been to my primary care Physician for migraines. about 7 months earlier. Tumor is in right frontal lobe.
  • caffinee withdrawl type headache.
  • A band across the forehead above the brow where sinus headaches normally are felt.
  • It was like I had the flu.
  • pain beyond description,coming in waves but with no relief
  • constant pressure
  • more like pounding pressure, like I could hear my pulse in my brain
  • Headaches were extremely severe. He was awake all night in pain the night before he was diagnosed. The pain was better in the morning. The headaches were there for 2 days.
  • the pain brought me to my knees. Also vision went black
  • Severe, sharp pain at top of head. Persistent, beyond normal headache.
  • they were there when I woke up in the morning. then got better after I was up and took a shower.
  • instant, usually associated with activity
  • Headaches started when I was 12, thought to be menstrual or stress related,with adolescent mood swings. Right sided only, deep into the temporal region and the right eye socket to the back of the skull. Very painful, knifelike not dull like a hypertensive headache. Daily headaches always after school. EEG in 1974 was done becuase of the them.Vomiting didnt begin until 1988 when the undiagnosed lesion was finally found. Headaches continue still today, 34 years later from commencement.
  • N/A
  • Had first headache four days before diagnosis, intermittent vomiting for 6 weeks. Headache was a sharp pain behind the eye.
  • i would wake up with my neck and head hurting so much i thought my neck would break if i turned it wrong. my first tumor was located in the 4th ventricle and blocked the flow of CSF which is what intensified my pain.
  • Severe pain over left eye when bending over.
  • The headaches were like sinus headaches and this was my diagnosis for a year or more. Treated with sinus medications.
  • severe painfull headaches that would last anywhere from 10 minutes to an hour.
  • No head pain
  • very intense, they were worse at the time when i was vomiting. With the headaches I became sensitive to light, nausea..and they would start in one area of my brain and continue to another area.
  • Headaches were similar to previous sinus headaces , pressure was focused on the right side of the face, including the frontal sinus area, and behind the right eye. In my observation the difference was no refief was achieved from the regular "Motrin sinus " med. which would normally give refief, within a day if enough was taken. This headache never gave up!!!! One of the determing factors for the ER MD to take a CAT scan, headache had been building for a week.
  • Never had headaches
  • 200 TIMES MORE PAINFUL THAT YOUR WORST HEADACHE. UNBARABLE. LIKE A VISE GRIP SQUEZZING MY HEAD.
  • I started having headaches when I was about 12 years old. My headaches were very excruciating, and would basically hinder me from executing my daily activities. I would end up laying down all day, and not moving all that much. It hurt when I moved around my head or body, so I remained still as much as I could.
  • It felt like my head was going to explode. I'd get a "hot" sensation around my neck and at the top of my head and then the pain would be so bad I would pass out.
  • Mild headaches has been going for a long time, especially in the afternoon.
  • only had one significant headache about a month before diagnosis -- didn't think anything of it== ALSO: re the questions below about the doctor's diagnosis below: a variety of doctors missed this (an M.D. psychiatrist, who should have had some neurology in his background, totally dismissed, on at least 3 occasions, the complaints of "word-jumbling" (now known as aphasia) and the funny electric feelings up and down my husband's left arm (now known as focal seizures); an ER doc didn't do tests on his head after my husband fell down the steps; the orthopedist who saw my husband for a 6-week post injury check was the one that said he really needed to see a neurologist; my husband finally agreed to see a neurologist, and the only person I could beg his way into that day actually was a neurosurgeon friend-of-a-friend, who knew it was something significant, but thought it was probably a slow bleed from the fall down the steps, but he knew that needed to get an MRI immediately.
  • Terrible pain just hours before emergency room visit. None before then. (see next question)
  • Horrible pain in the middle of my forehead. Debilitating, like someone was driving a nail through my forehead.
  • n/a
  • They hurt for about a month prior to the diagnosis, mostly in the back of the head. Initial guess by the doc was that it was a sinus infection. near the end pain pills lost their effectiness forcing my wife to go into the hospital where they did a brain scan.
  • Nagging headache the day before the seizure, but not debilitating.
  • pain radiating up the back and right side of my neck; then later a squeezing all over
  • like those when we don't have enough coffee in the morning
  • none experienced
  • headaches mostly on right side of head stabbin light pains
  • mild, quick, pinching nerve type headaches. Didn't need to take tylenol for them. Would happen every few minutes. Didn't disturb my sleep.
  • Extrordinarily Painful
  • My husband had only 3 headaches which led to diagnosis. The headaches were like migraines, with tunnel vision and nausea. The tunnel vision and nausea only accompanied the headaches. They were the worst headaches he'd ever had, and the pain was concentrated in the back, near the base of his skull. (His tumor is in the front, though.) A few things didn't add up to "migraine" though - migraines are usually behind the eyes, he had no light sensitivity like one does with a migraine, and we wracked our brains but could find no trigger for the headaches. Those oddities, combined with the fact that it's unusual for a 33 year old man to suddenly have migraines after never having any headaches, made us seek a neurologist quickly. Although the neurologist truly thought he was fine, adn just having migraines, he did order an MRI "to rule out a tumor or stroke." THe MRI was done immediately and led to the tumor dx. Although the neurologist suggested the MRI, we wouldn't have left the office that day without one. I had a very bad gut feeling that something was very wrong.
  • 1st time, MIGRAINES that lasted days, weeks and no medicine helped 2nd time, bad headaches {but so far, no migraine type)
  • severe across the brow and the back of neck
  • very strong migrane type
  • Slight headache on playing high notes on my trumpet
  • I had these severe migranes that kept waking me up at night when laying on pillow. I could only sleep in reclining chair.
  • Some were mild, one was really severe, (right before the diagnosis.) My sister has migraines, so I thought maybe that was what they were.
  • facial pain on the left side
  • No headaches
  • The headaches/nausea always occured in the morning. And the pain was in the right frontal lobe. It was so painful all I wanted to do was lay down and rest.
  • They would wake me in my sleep with stabbing pains in the eye that would go around my eye into my ear. Nothing that I took would relieve the pain.
  • very small headaches; at least once a day.
  • I had headaches for far over a year before diagnosis which were usually similar to sinus headaches, although sometimes I had migraines.
  • If felt as if I were to take a power drill to the left side of my skull, and make a hole, I could relieve some pressure. I knew there was pressure in my head, but I thought that my sinuses were just overly filled (or so I was hoping)
  • N/A
  • Did have any headaches.
  • Pain behind the eye
  • Constant, mild
  • I'd had headaches for nearly 30 years -these were really intense, frequent and debilitating - I thought they might be migraines
  • felt like being struck with a bolt of lightning
  • dull, early morning headaches (This is what my Dad experienced)
  • dont remember
  • pressure inside my head with burning sensation down the back of my head
  • headaches back of head
  • THROBBING HEADACHES CONTINUALLY FOR TWO TO THREE WEEKS
  • sharp pain on forehead, then pain was in back of head on the cerabellum.
  • they were painfull
  • i can't sleep because of headaches
  • Like if I had been given a gun, I would had shot myself, it was so bad. I had never felt anything that bad in a long, long time (at 15, had same headaches that lasted for a couple of months, which they think now was when meningioma initially grew, then sat dormant for almost thirty years without symptoms)
  • the whole back part of my head would hurt and continue to hurt for 4-5 days in a row. nothing worked to make it stop
  • Just on the left side it feels weird.its not realli a headache
  • full dullness like water on the brain sharp quick pain
  • The headaches were in the back of my head and over my eyes. I would go to sleep and wake up with a headache. I feel as though my head is moving when they are really bad and are whooshing as though I have just taken a long run but have just been sitting down. I actually have to hold my head to be sure it is not moving in a pulsating motion up and down!
  • Had one headache that so severe we thought possible migraine went to V.A was told low potassium level.
  • Numb feeling above the right eye.Tumor was in the right frontal lobe.
  • Excrutiating headache accompanied by nausea and vomitting
  • Throbbing sensation toward the back of my head.
  • awful, the worst headaches ever
  • I had headaches on/off for as long as I can remember-dr thought sinus, the last year before dx it was 24/7 and meds only lasted a short time finally they didn't do much at all. The final 2 weeks before surgery I took 5/500 vicodine -- I just slept
  • I felt like a part of my brain was being squeezed - that happened three times.
  • Suffered from headaches and migranes most of life so not considered any different.
  • throbbing. Relieved when vomited or rested.
  • THE WORST HEADACHE I EVER HAD
  • My whole head felt like it was ready to explode.
  • First felt like a sinus cold, and treated with sinus medication with temporary relief. Progressed to 'sinus' pressure, then inability to move head when lying down.
  • Sinus headaches
  • excruciating, accompanied by nausea and vomiting
  • Throbbing, particularly with change of position.
  • I have had head aches in the back of my head most all my life.They are very painful and the only relier I get is lieing down and covering my eyes from light.
  • Worse later in the day. Worse if you would bend over and then stand up.
  • Intense headache, blood pressure went very high during and immediately after the headache, headache was short term.
  • WORST HEADACHES EVER HAD
  • My daughters couldn't explain how her headaches felt, just that her head hurt.
  • Some were throbbing, some like an ice pick - all one sided
  • they felt like a knife going in and out of my head repeatedly
  • Didn't have any
  • Did not have headaches (apparently this is very uncommon)
  • Extreme pain and presure on left side of head, as if head was going to explode.
  • n/a
  • pain behind eye as if something was pressing the eyeball
  • I woke up with headaces (in the back of my head) every day for months. They kept getting worse, eventually with nausea. By the time I was diagnosed they were very painful, and accompanied by vomiting.
  • i have headaches for 2 years or more that were migrains but it was the body pain that came about in the last few months and the seizure that i had that made them look at my brain cat scan and mri then they found the tumor
  • None
  • i don't have any headech before diagnosis.but after the 2and half month when dr. declare that i am ok with my tumor after that time i feel headech arround the head may be its from cold and synus
  • not extremely painful, usually early morning, around forehead and temple area ..pressure headache
  • Mine were in the morning when I first woke up and were gone by midmorning. I had them for several years and thought it was caffeine related, since they were fairly mild.
  • sensitive aching headache
  • Dull Eche, not servere just there and on the low right side.
  • shocky and sudden, from the back of my neck to my eye on the left side of head.
  • very painful
  • sharp pains
  • Stabbing pain around the size of the tip of my finger in my upper left forehead. Burning sensation spread from that location. Headache got worse daily over a 3 week period before Meningioma was found.
  • The headache felt like a belt was wrapped around my skull and getting tighter every day.
  • sharp, very strong, pounding, coming and going in horrible attacks
  • my head pain is chronic severe,debilatating pain,extreme preasure in posterior fossa area,extreme sensitivity to light sound,noise,all symtoms worsen with the preasure and pain.all symtoms are now present more often than not. head pain never leaves,diagnosis-extremely large sub arachniod cyst in posterior fossa,told that it cannot affect me nor cause the symptoms i discribed,i also have lost some of my intellegnce? icannot speak nor spel as well as i did and it has alsowosrened. No doctor i have seen can tell me what is happening to me,i am always tiold that nothing is related but i have yet to find a docter that can tell me what is happening to me,or why it is happening. they only want to treat the symptoms ,i have had headahces since childhood,they became migraines I was told in my late teens,they progressively have grown wosre over time and since the later 90s i developed the siezures and all the rest,I wish i could find a doctor that could explain to me what is happening to my brain and my body.I had to see ten different doctors before i could get a mri and i have seen others since that cannot tell me anything other than the cyst cannot be removed becase of size and location ,the one that gets me is that i am told my heeadache and other symptoms cannoat be explain BUT i am told that nothing can be related back to the golf ball size growth in my head.
  • no head aches
  • I have always had hedaches most of my life they seem to be across the top ofmy eyes and I also suffer from perhaps 1 0r 2 migraines per year. i often used to wake up with a headache
  • I use to have mygranes and would go to sleep but now they go away when they are ready it don't matter what I take or how much even if I go to sleep
  • I had headaches since I was a teenager, young adult. In my 20s and 30s, I experienced feelings of deja vu. I wasn't dx with my tumor until I was 42, and I was told those long-ago feelings of deja vu were most likely seizures. The headaches were increasing and rarely-ending...a severe pounding on the left side of my head to the point every step I took increased the pain. My dx is also debatable. Pathology reports showed a DNET. I had my tumor sent to Johns Hopkins, and they indicated it was a glioma but they could see why my hospital thought it was a DNET.
  • in nape of neck. didnt feel better with medicine or different positions
  • like someone was stabbing me, could not function, sick to my stomach
  • i woke up every morning with a sore head
  • 3545
  • UPS
  • i constantly get headaches and they are mainly on the left side if my face/head, my left arm and leg also get tight,numb
  • at the back of the head, base of the neck
  • My headache came on very suddenly and was like a migraine, but with more pain in back of head.
  • Not appliable.
  • Only one was very bad; others were more "normal" but came nearly every day.
  • Painful stabbing reelings. but constantly there. Also like a hand is pressing hardly on the back of my head.
  • sometime had a throbbing sensation that would run along the right side of my head from just above my ear and move, it was a sharp pain. headaches usually ingulf my entire head. but mostly sharp pain right side of head.
  • awaken each morning with headache, most days passes after taking pain killers
  • like a tight band from ear to ear
  • throbbing feeling as if it were growing.
  • Someone splitting my head open or hitting me with a large object
  • slight headache every morning that wasnt too painful then later in the day it would go away.
  • eye pressure. worst ever had
  • masive splitting headaches
  • acute to chronic pain, with enormous pressure, that I could not get rid of.
  • sinus
  • the temples and back of head as well as feeling weird on the top of my head and I get dizzy from time to time.
  • the temples and back of head as well as feeling weird on the top of my head and I get dizzy from time to time.
  • I only had an ear ache. It felt as though someone was penetrating my ear with an ice pick
  • They were towards the front of my head adn were sharp pains that would come and go and sometimes brought on by bright lights.
  • hot sword going into head above right eye and exiting in back of skull on bottom left side
  • A 25 on a scale of 1 to 10.
  • No memory of that.
  • I have very bad headache at night time
  • Sinus forehead and facial pressure. Dull and nagging, daily, relieved with Motrin on a regular basis prior to diagnosis of brain tumor.
  • close to a migraine with neasea and burning throbing pain but not all the time
  • remained on the left side of my head only.
  • head hurts, crackling noise, start from back then to front
  • a bird pecking on the inside of my head
  • sharp pain above right eyeand ariund the eye almost like and ice cream headache but worse
  • Cannot be described, much worse and different than any other headache I have ever had.
  • Dull, steady ache above and around eyes
  • Sharp,stabbing headaches, some lasting only seconds. They come in clusters and are very intense, almost like a brain freeze from eating something cold.
  • Very strong
  • lke mild migrains behind my eyes. My tumour was the size of a manderine on the left side of my brain, so likly cause by excessve presure.
  • .
  • migranes
  • Pounding, throbing & continuos.
  • I had a couple of very severe events. The pain was intolerable, my head felt like a water balloon, it caused severe pain to move my eyes, my whole body felt tight.
  • Sort of like a migraine but with no nausea.
  • was getting treated for virtigo as i had bad ear pain
  • slow throbs
  • .
  • Very mild headaches, which I never had a history of headaches before this
  • Sharp stabbing pains at the base of my neck, behind left eye and center of head.
  • sharp pains coursing through my head like knives they moved a lot and lasted for ages
  • it feels like every movement i make i lift my head,i fel like something is moving and it only happens on the left side of my temple
  • Just felt like a headache
  • I was about to fall down and i felt dizy too
  • sever pain
  • strong with great long lasting pain
  • Intense pressure -- feeling as though my brain was in a vice.
  • I felt bad, if felt if my head was going the side
  • not diagnosed yet
  • A pressure type of headache that was always in one area.
  • regular headaches, was taking over the counter medicine every 4 hours like it was candy.
  • no
  • no
  • More like shooting pains. Left Parietal area. wouls occasionally radiate to front of head only on left side.
  • left side pain by the ear worse in the morning
  • I had a dull headache that lasted for three days straight, and nothing aleviated it.
  • Presure, throbbing, neck pain
  • Intense pain at the back of my head and neck and shoulders sometimes too.
  • Throbbing pain that made it impossible to concentate. I thought they were stress headaches but found out the hard way that they weren't.
  • I have had headache now for 15 - 20 years and up till the last 5 or 6 years was always told that they where just stress or sinus headache about 5 and ahalf years ago all the stress and sinus Medication I was taking stopped working and in desberation tried Imatrix and that stopped that Headaches that I was having at that time. So the Doctor told me that if the Imatrix works it must be a Mirgrain!
  • The aches started in the upper neck, getting stonger and taking the wehole head
  • worse when lying down
  • I had a hard pain in my temple, that felt very deep. Nobody could figure out if it was caused by a tooth or my sinuses. I also had a very severe sharp shooting pain that came and went.
  • BURNING, EXTREME PAIN, CANNOT TOLERATE LIGHT AND SOUND
  • At times my headaches are intense but most of the time it feels like a stresss headache. I have pressure in my ears and my vision is cloudy or blurred.
  • usually in front on sides fom head some times on right side only
  • very strong headaches. thought it was migraines.
  • I had some headaches but not too many for me to consider the quantity unusual. I had one bad headache with extreme pain all night long accompanied by a slight sensation of pressure in my head. Extra strength Tylenol had no effect.
  • constant pain
  • violent headaches
  • No headaches period.
  • Tension headaches
  • They felt like tremendous pressure pushing against the front of my head.
  • They would wake me up at night usually and I had light sensitivity while having them. I would wake my wife up and have her get me some pain pills and that would seem to take care of it.
  • usual morning headache...thought it was from my pillow being too soft.
  • throbing sharp painsconstant aches
  • Dull ache in left back side
  • my head felt like it was being torn right down the middle.vomiting.any movement made me very ill
  • my headaches were very painful they were the worst punding ever it felt like someone was kicking me in my head with a 20 pound shoe
  • The absolute worst pain I could have ever imagined. The pain was so bad, it actually was about 1000 times worse than childbirth. I laid on the floor for a couple days without realizing it because I was too sick to do anything, including move.
  • Phase wise headache in different part of brain
  • nope
  • pressure that lasted for 14day with no relief
  • pain in my neck, stabbing in the side of where the tumor is
  • it was a very sharp stabbing and burning sensation
  • I don't have a diagnosis
  • Like major sinus pressure, back of head aches with little or no releif from liquid advil,
  • very heavy and unable to shift for quite some time
  • severe headaches in one spot of my head above my eye pressure behind my left eye blacked out vision in left eye for a few seconds dizziness
  • At first they were a dull pressure at the back of my head, worse in the morning. As the days went on, it got worse, lasted longer, and more frequent and the headache would also affect the right side of my head at the front. Eventually it was all over my head constantly.
  • There was pain in the back of my head that actually made me cry. I would put ice on it and lie down. I also would have headaches while sleeping that would go away when I sat up. Imitrex had no effect. People said that I had a personality change, but I did not recognize it.
  • explosive bursts of pain that resulted in loss of consciousness - one of the worst things i have ever felt in my 15 years of life
  • constant,woke with them in forehead area and nothing helped the pain
  • I was backing the car up to leave the house, I turned sharply to the right to look out the back window and lost my vision for about a second or two. This happened twice within 2 weeks. Headaches had worsened over this period of time.
  • Extreame pressure on the right forehead above the sinus.
  • pressure one side of my head
  • I had nausea and my teethe felt like I had a bad tooth nerve. I soon after started noticing I was havin word troubles.
  • Not too bad because I had already adapted to my frequent headaches, I had it for a LONG TIME!
  • light short
  • i felt like someone is shaking my brain not just my head.its more like a big waves in the sea.
  • None
  • like my head was going to explode and felt very hot
  • Very strong from the top to the back of my head
  • not real hurtful but several times a day. Especially if I lay my head on back of the sofa.
  • Sharp pains
  • i suffered vertigo for the last 6 years, the world revolve around me, pain in the right side of face, bad migraine,
  • No headaches
  • deep behind left eye, not shrp and controlable with paracetamol
  • on the one side of my head its very painful and it haappenes everyday my head is always burning and i feel dizzy
  • dull aching
  • it felt like my brain was exploding
  • No headaches
  • n/a
  • I only began having headaches after I had a sudden vision change not before. Now the headaches are a regular thing. Eyesight has cleared up some I don't see double anymore and my equalibrium is better but I still have a tingling sensation in my left leg and arm
  • Deadly. I could not get out of bed. Like an ice cream headache that wouldn't go away. More pain than ever.
  • its like sever acute pain in brain which is hitting left side.many time a day.
  • Normal headaches, but more often than normal.
  • like a sharp knife going into jour brain.
  • concentrated at the front centre of my forehead and then pounding all over my head
  • As my brain will burst in a short time.
  • pounding a throbing i had them everyday all day
  • no
  • Migraines, loss of vision in one eye, slurred speech, wrong words, numbness in one side of body.
  • Migraines...left side numbness, right side vision loss, vascular migraines
  • very strong headaches that didn't last too long and, at the same time,blurred vision
  • pressure in back of head and neck
  • sharp pain
  • no
  • sometimes on one side with a terrible neck pain and sometimes with to much pressure in the head
  • pressure left side of face
  • so bad you did not want toopen your eyes.
  • different an oved round ma head
  • i had really bad migraines. my head would hurt in odd places.
  • painful woke me up from sleep
  • too much headache, top of the head,
  • No
  • Like my head was going to explode, extreme nausea, no balance, flashing lights. Still waiting for a full diagnosis please help if you can!
  • i have been having bad headaches when i wake up in the morning and they stay with me all day.
  • sinus
  • headaches, tension behind the eyes and tension headaches
  • sharp stabbing pains localized in the temporal lobe ( today have moved around from one area to another) onset in the morning lasting most of the morning. past few days have had mild headache that has lasted severeral days.
  • low bloodpresure
  • Heavy the whole head and neck
  • like i was going to die and my head was exploding - i could only think - why me ? i'm only 16 years old ...
  • before top of head now around neck leading all around head
  • i feel like sumbody is heating me at the back side of my head.
  • wo
  • no
  • someone kicking me
  • Pressure pushing out...Needed to take vicodin to even come close to stopping some of the pains.
  • .
  • my headaches make it feel like my head is gonna explode,and my jaw hurts...my vison is blury ..sometimes feel week and my arm is num
  • very painful brought on with the pressure change, usually last a few minutes.
  • thought they were migraines needed to sleep darkness helped
  • throbing,instant pains, hurts if u move yuor head
  • I had headaches ALL the time but I did not think they were worthy of reporting to a dr. because I could take Advil or Motrin and it would go away.
  • crazy pain, intense
  • sharp pounding pains coming in attacks and sometimes not allowing function
  • scale of one to 10 ...12
  • horrible pain on head and face, starting from back of neck till the chin.
  • Painful for a couple of minutes.
  • low grade migraine from eyes to back of head or like a bad hang-over
  • My headaches are always heavy. Extreme headache in the right front of my head and also in the back.
  • headache near by neck
  • I was diagnosed as having migraines from the time I was eight years old. They were very much the same in pain and occasionally I would vomit with them, nut they never woke me from my sleep. I now have many auras, wake up with nasty headaches, no relief from the pain...do not even have one day with a headache
  • dizziness and disfunction
  • Screaming pain for a moment and then a dull thud.
  • My son(16 years old) discribed his headaches as a 3 to 5 second sharp pain, then would go away. He started to notice what would bring them on, like standing up too fast, using alot of force during activity. Sometime he would say they were like a headrush feeling, starting low going to high pain then back to low all during this 3 to 5 second period.
  • My son(16 years old) discribed his headaches as a 3 to 5 second sharp pain, then would go away. He started to notice what would bring them on, like standing up too fast, using alot of force during activity. Sometime he would say they were like a headrush feeling, starting low going to high pain then back to low all during this 3 to 5 second period.
  • dull sometimes sharp mostly on the right side to the middle of my head
  • NO
  • tghdn
  • migraine, 2 days before seizure. only lasted a couple hours.
  • just tension
  • yes,they started one day before going to see a doctor,i had a very strong headache at my left side of forehead.it fellt like a strong preasure.i thought i had to vomitt
  • felt like hell
  • NUMBING PAIN, STABBING PAIN, CONSTANT, TENSE
  • Tingling in back of head
  • no headaches, until I encountered car accident
  • no
  • minor.felt sinus in nature
  • head splintering
  • Peircing pain in left side of the brain
  • Peircing pain in left side of the brain
  • headache
  • a lot of pressure - I would take my hand and hold tight to my head
  • they felt like somebody is beating with hammer and once the will be severe and once the head will tighted like a rope
  • like my head wanted to explode
  • normal on the same side of my head as my tumor (Left front lobe)
  • Described as the worst ever imaginable. The "tumor headache"as he called it....very different from any other. Any head movement like going down stairs would bring it on or the dog jumping on the bed..these happened right before diagnosis. The ones before, usually were like migraines-behind right eye and all symptoms went on and off for years-1997 to diagnosis- 2004.Except the nausea and vomiting-that started one year prior to diagnosis.
  • it felt like a thousands bees stung me at the one time.
  • more deeper pain in the head than the normal headaches i use to get
  • my headaches feel like there's like something in there banging against my head really hard.
  • yes they felt strong
  • Pain was all over the head and felt worse in the temporal area.
  • Only one headache lasting two days but this was the first headache I had suffered from in over 45 years.
  • pain top of head and behind eyes
  • top of my head aches most of the time, sometimes wakes me up at night
  • slight
  • sharp pain, numbness of head, smell increased, sounds very loud, intensity never affected by tylenol stronger the headach the more nausea i had
  • Unbearable headaches. Light agravated my pain. I laid in bed for days with a bag of ice on my head, with little relief.
  • bad
  • head pain in night ......need to hold the head ......... head will pain only on one side ......... if i rest my head it will be better...
  • No
  • Came on very suddenly like being hit in the head wsith a baseball bat, nearly knocked me over, intense pain, nausea, but over in about 5 minutes
  • Pounding headaches that wouldn't go away
  • thunderclap migraines on left side (tumour also primarily left side occiptal) lasting a few minutes.
  • they felt like if someone was pocking my brain with a needle
  • pain in the neck
  • migrain
  • see symptoms above
  • no headaches whatsoever in this 2.5 year period (or since surgical resection & radiation)
  • Can't recall them enough but do remember that I went from virtually no headaches a year to getting several in the two years before diagnosis and becoming desperate for a painkiller in the last few months, through to those having little effect on the pain. Hmm, vaguely remember spikes going through my head-- nasty with an icy edge, a feeling like a rusty object has. Very similar to some of the ones I currently have, only these 'new' ones are worse-- much more pressurized. I hafta to add that my normal doctor missed the diagnosis after a sudden numb leg and loss of cohesive cognition on a hot day-- he believed it was stroke related. Instead, a year or so later, slurred speech and thoughts, trouble finding words, leftside face/arm/leg numbness in an emergancy situtaion caused a doc to order a CT scan, looking for stroke or multiple sclerosis or hypothyroidism instead.
  • muscles like pain
  • The worse pain ever, in my front foer head which radiates to my middle upper in the hair.
  • Headheach lead to the left side of the head and pressure
  • Like a jack hammer going off full blast in my head.
  • it wasn't like a typical headache, more like a pressure in my head
  • They hurt on topof my head and forbear
  • Severe throbbing - like migraines
  • dull and suddenly sharp
  • I had a very serious headache but when my mom noticed it is so severe she panicked.because i was puking and i wanted dark room,no noise and she was constantly rubbing my head but i was asking her to put more pressure on my head.
  • migraine
  • Piercing pain that would go down to my neck, into my jaw, and last a long time, days..
  • like migrane
  • pounding in my head,
  • i dont know
  • No
  • hot burning sensation
  • Throbing
  • No
  • Migranes
  • right side throbbing
  • no
  • it"s like everyting is revolving
  • Like a Jack Hammer going off full blast in my head. In a heart beat like feeling.
  • dull
  • pressure at the top of my head and forehead
  • i feel its too much pain ths is like 8 years
  • paing, imbalance, dizziness
  • nagging but not painful
  • throbbing on my forhead. some in the back of my head. sometimes i get this feeling like someone just split the top leftside of my head open with an axe
  • very dull, sensitive to light
  • very dull, sensitive to light
  • short appx. 7 sec sharp pains in my head that happen 5-6 times a day
  • A throbbing/stabbing pain in the back of my head and down the right side of my neck
  • intense, sharp pain across a quarter of my head. a shooting pain that would nearly knock me off my feet. intercranial pressure had built up over years. unbeknownst to me.
  • Pain across the forehead and down my nose also under my eyes-thought it was sinus? Headachesmostly in forhead & around the back of my head.Caused no change in vision.
  • the headaches are all over my head and i get that i hit my dad & mum and i get pain in my body as well
  • the headaches are all over my head and i get that i hit my dad & mum and i get pain in my body as well
  • Like a baseball cap of horrific pain.
  • Like a rollercoaster.. ups and downs
  • none
  • Never ending
  • loud pounding heartbeat that drowned out external sounds, earth shattering h/a's that lasted about 15 seconds, would sometimes end up on the floor with no idea how I got there, sometimes unable to see or understand what I was seeing at the time of the h/a, walking was difficult during a h/a and diving over potholes or small bumps felt like someone was slamming my head with a 300 lb weight
  • Constant lay you out on the floor pain
  • none
  • !S!WCRTESTTEXTAREA000001!E!
  • !S!WCRTESTTEXTAREA000001!E!
  • .
  • A banging sledge hammer that blast from the back of my head right through to my left eye
  • Increase pressure in head and short pain at times
  • front of head severe
  • throbbing
  • getting the headaches like once a month they last 24 48 hours/ feels like pressure/ squeeze to the head, a very dull ache and moves from left to right starting in the eye area
  • right side or left side head ache i get often ,skull can be seen,nw days i becoming unconsiousness and falling down,tiredness
  • Massive headache; pain killers did nothing to help
  • Change in severity of migraines, and cluster headaches began. They felt like someone was boring into my head with a red hot poker, and stabbing in the eye with a knife. Any movement made the pain much worse.
  • a mask from eyes down nose squeezing
  • hang over
  • they felt like something was pressing up against my temple.
  • bright sunlight would bring them on.
  • I had migraine headaches which increased in frequency and duration the weeks before I suffered two tonic clonic siezures. The seizures were severe enough that the ER ran tests to determine what caused them, which led to the discovery of a brain lesion.
  • Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
  • Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
  • Low grade persistant pressure, except two episodes at 3 months and 11 months before diagnosis where I had a more intense headache lasting several days with associated mild nausea.
  • sharp stabbing pain
  • .
  • .
  • Everyday headaches for the pass 5 mnths its everwhere back & front, & both sides of my head.
  • like a headhead and tickle in my head
  • like migrane
  • They are throbbing and feels like something trying to push out of my head.
  • A headache that felt like my whole brain was sore on both days that I had the seizure. I have always had headaches, but these were different.
  • back side of head is paining for 30 days no medicine is curing
  • my headaches honestly at times felt so bad, they felt like ice cream or cold headaches that you get when you eat or drink something thats cold too fast.
  • sharp shooting pain
  • no headaches (even now in advanced stage)
  • haveyness,
  • Painfull couldnt sleep
  • Headache is slightly different from normal headache all around head intermittent pain
  • dull headaches centered around both temples and middle of forehead
  • no
  • right sided migraines
  • .
  • headache in all of my head, dull and lasting hours.
  • .
  • pain on right side of face or head
  • Pounding, Hammering, dizziness, light hurts
  • A headache like I have never felt before
  • Banging headaches in the back and top of my head like a sledge hammer
  • Extreme pressure, disoriented, confused,unsteady gait and recovering from labyrinthectomy
  • .
  • I did have some head aches but not all the time. when I did have one it would be more like a migraine.
  • .
  • painful
  • i have no diagnoses i have migraines 24/7 at the base of my neck which cause weakness tingling
  • Answer to Who Mad the decision: It was the 3rd neurologist who finally ordered the brain scan.
  • Horrible headaches on entire right side of head and behind the eye, always happened on the weekend I would have so many things I would want to do and would just feel so bad I couldn't do anything but just sit there.
  • No headache in months before stroke and identification of tumor and none in 3 years since idenification and through 2 surgeries and radiation and chemo.
  • knife stabbing pains in my head where lesions are located.
  • my hair hurt, extreme headaches, pressure completely dibilating pain This was a epidermoid tumor that I carried for 45 years and didn't know it. I fell at home,hit my head on the coffee table and was found during a CT scan at the ER
  • excruciating
  • LEFT SIDE OF MY HEAD FEELS LIKE TONS OF PRESSURE IN MY EYE AS WELL A THROWING UP I SMELL BLOOD AND STRANGE OTHER THINGS
  • painful
  • pressure originating from the space between my ears
  • They were migraines that would not go away even with 1000mg of medication that I cannot remember from 4 years ago. It was a knife stabbing pain on the temporal lobes that went back into my neck regions that when they were kicking would bring me down into a size of a bowling ball and tears would be pouring.
  • tightness in my head
  • Horrific. Migraines.
  • Stabbing sensation pressure in rear and on left the side of head and in the left mastoid bone
  • sharp pain, feel like getting hid with a baseball bat. i have to force myself to keep my eyes open.
  • ache and pains at the base of my skull. increased, wave-like pain when straining.
  • Oh gosh, the most severe pain I had ever had in my life. It felt like there was crowding in my head, like with every heartbeat/pulse of blood flow to my head that the blood wasn't going to fit. With every heartbeat my head pounded from the inside out. Eventually I began also having focalized pain directly behind my right eye (where my tumor was found) and swelling around the eye and a sensation that my brain was trying to come out through my eye socket. Sounds strange but that is literally what felt like was happening
  • Excrutiating!
  • Extremely painful.Like my head was being squeezed in a vice!
  • test
  • unknown
  • Very painful head pains. It felt like my head was being ripped apart.
  • Constant dull aching headache. Sometimes shooting pain, very hard to concentrate on anything, and overwhelming.
  • sudden like I had been hit in the head and stabbing pain in my head some times
  • no
  • being hit with something in the back of head.this went on for 12 yrs.they found it when i passed out at work.they told me i was having a heart attack yeah right..
  • nape of neck ache and deep ear canal ache
  • nape of neck ache and deep ear canal ache
  • I have a headache maybe once or twice a year.
  • none that I remember
  • 5kXFZ8 http://www.6shpFpANPwYnffbs9P5rsRN67oJWDZuQ.com
  • Worst headaches I ever felt and pain killers stopped helping after a while, also felt sinus pressure with them
  • Pounding constant pain
  • Intense headache pain only during orgasm. Felt like my entire head was being squeezed. Pain lingered for several days.
  • puslsTING
  • throbing pain behind eye socket,and it felt like being hit with something. i woke up on the floor didn't no what happen lasted about 30 secs. they told me.thats when the company called for a ambulance and took me to a hospital.
  • scattered all over head - never one specific area
  • Felt like my skull was cracking
  • on right
5. How long was it from the time of the first symptoms to the day you got the diagnosis of brain tumor? (8412 responses)
 Within 1st week 1174 13.96%
 2 weeks 995 11.83%
 3 weeks 926 11.01%
 4 weeks 895 10.64%
 1-2 months 911 10.83%
 2-4 months 893 10.62%
 5-6 months 824 9.80%
 7 months to a year 794 9.44%
 Over a year 1000 11.89%
6. Did your doctor know right away that you had a tumor, or was it misdiagnosed at first? (2366 responses)
 Diagnosis was made the first time I told the doctor about my symptoms 969 40.96%
 The doctor thought it was something else at first 1397 59.04%
7. Who made the decision to do the first brain scan? (2279 responses)
 My doctor 1412 61.96%
 I had to insist on it. 867 38.04%
References: (Click on the links to get more information)
  1. NINDS Brain and Spinal Tumors Information Page
  2. The Causes of Seizures and Seizure-like Episodes
  3. Epilepsy Foundation

Last updated: 07/25/2014. by Al Musella, DPM




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