Matt's Brain Tumor Guide
Braintumor Website

The information presented below is the opinion of Matthew F. and does not necessarily reflect the opinion of the Musella Foundation!

Surviving a Glioblastoma (gbm) Brain Tumor Diagnosis

* The Survivor's ToolBox *

  • For the Mind:

    • http://www.virtualtrials.com/

    • American BT Association

    • National BT Foundation

    • Steven De Pesa's gbm Guide @ http://home.earthlink.net/~sdepesa/

      Finally, brethren, whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if there is anything worthy of praise, let your mind dwell on these things. -Philippians 4:8


    • "Change Your Brain, Change Your Life"

      by Daniel Amen, MD [clinical neuroscientist]

      This is by far one of the best resources I have found for survivors. Dr. Amen's groundbreaking work at the Amen Clinic for Behavioral Medicine uses SPECT imaging technology in examining behavior as related to deficiencies in the brain. And since most of us with tumors are left with some deficiencies, I think most anyone who has survived a tumor can benefit from part of his book.
      Not only does the text offer insightful information, but Amen even offers exercises and "prescriptions" to help you quell anxiety & panic; fight depression; curb anger; conquer impulsiveness; learn to focus; &/or stop obsessive worrying, etc.. . The book is readily available at all major bookstores, and/or on-line. (paperback : ~$15.)



  • For the Heart

    • "That's Unacceptable" - Surviving a Brain Tumor…. My Personal Story
      by Rebecca L. Libutti

      Walk with Rebecca through her journey of diagnosis, treatment and survival. This powerful narrative will provide strength & hope as you are uplifted by Rebecca's indomitable spirit


    • "Magic & Loss"

      By Greg Raver-Lampman

      When diagnosed with a brain tumor, Greg feared that he might not live to see his three-year-old daughter, Emmy, grow up. Greg began writing letters to her. Greg rediscovered life, and emphasizes how hope and an abiding desire to live are an essential to survive.



  • For the Soul:


    • Music of Hope & Peace

       david m. bailey
      A gbm survivor, david's masterful acoustic songwriting has a unique power and grace. When I am having difficulty staying on course and feeling down… david's music always reminds me of the blessings and beauties of life.

    • Dan Steven

      Thoughtful and honest observations of daily living and the struggles of people to find peace--remarkable music by a young man with a wisdom considerably beyond his years. (reminds me of myself LOL) NOT!


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