Online Support Groups
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This page lists the most important online support groups for brain tumors.

An online support group - which is also called a "mailing list", is an internet structure of a community of people with a common interest. They communicate with each other by email. Every message that is sent to the 'list server' is then fowarded to each member of the list. If you reply to that message, you have 2 options. You can reply directly to the author of the message, if the response is personal, or reply to the list if you feel your response is important for the entire group.

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This section of online support groups is run by us, The Musella Foundation For Brain Tumor Research & Information.
  • Braintumor Treatments Group: Our main brain tumor online support group - talk is limited to medical discussions about brain tumor treatments (as well as diagnoses, testings, symptoms, etc). Discussion about all types of brain tumors is allowed: malignant, benign, primary and metastatic. No talk of politics, jokes, religion allowed. For those, use the other groups listed below!
  • Brain-Novocure Group NEW! For people interested in the Novo TTF device (Tumor Treating Fields).
  • Acoustic Neuroma Group NEW!
  • Braintumor Community Group: For NON Medical discussion - for patients / caregivers / doctors interested in brain tumors! THIS IS AN ADULTS ONLY GROUP. Some humor and discussions will be offensive! Use this group for the types of messages that are off-topic on the other groups! Humor and politics are welcome here! Run by the Musella Foundation.
  • Spinal GBM group: For people interested in a spinal GBMs.
  • Brain - Gleevec group: For people interested in the experimental drug Gleevec for brain tumors. Run by the Musella Foundation
  • Bt-Faith Group: For discussions involving faith / religion / God among people interested in brain tumors.
  • Optic Glioma Group
  • Brainstem Glioma Group: Adult and children with brainstem tumors.
  • Choroid Plexus Papilloma Information and Support Share Group

This group of lists are NOT run or endorsed by us. They are just listed here for your conviencence.




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