Kristen Kenzig's Memorial

Information Links For Brain Tumors

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Rating Site Name DescriptionVisitedDate Added
Score = 3 Search Medline on Pineoblastoma Custom Search of Medline for Abstracts 1709003/29/00
Score = 3 Search Medline on PNET Custom Search of Medline for Abstracts 1683003/29/00
Score = 3 Second Chance A Novel by Daniel Ovist - A full length book, available free! 978704/04/00
Score = 3 Seeking Peace: Brain Tumor Hospice Care Describes a list of end-stage "signs" to watch for to prepare for death from a brain tumor 2588111/30/06
Score = 3 Seeking Peace: Brain Tumor Hospice Care Helps families decide whether it`s time for hospice, describes end-stage symptoms and tips in dealing with them, and provides a time line that may help with prognosis 1580110/29/05
Score = 3 Select Review in Neuro - Oncology 1289310/18/00
Score = 3 Shared Experience Cancer Support Searchable listing of first-hand accounts by cancer patients and their loved ones. 2340404/03/00
Score = 3 Shared Experience Cancer SUpport Knowledgebase Shared Experience is a non-profit, searchable collection of first-hand accounts by cancer patients and the people who love and care for them. It has one narrow focus: to share personal experiences of cancer survivors and provide a nexus for the recently diagnosed and others to contact one another. 2052012/05/00
Score = 0 Sherlock Software Software Development 30202/26/17
Score = 3 ShuntCheck Only FDA-cleared non-invasive method to detect CSF flow in VP/VA shunts 1476004/01/05
Score = 3 Silvanlord (David Ellis) has a brain tumor. David Ellis, diagnosed with a pineal germinoma at 17, writes about his brain tumor. 2186310/23/02
Score = 3 Sit Stand MRI Child & Large People 500 lbs Friendly Positinal of Pain MRI scans case studies 1316602/01/05
Score = 3 Skull Base Institute Minimally invasive surgery for brain tumors 11012503/11/05
Score = 3 Slightly off topic - Skin diseases Listed here because people with brain tumors take many drugs that may cause skin problems 1554704/04/00
Score = 3 Social Security Home Social Security Disability - Information on how to apply, appeal, and win SSI and SSDI benefits. Free disability case evaluation and FAQ. 1062407/27/06
Score = 3 Some basic stats for the different tumor types Medical College of Wisconsin 1276003/27/00
Score = 3 Sontag Foundation Offers grants to brain tumor researchers! 1621503/06/03
Score = 19 South Nassau Communities Hospital Gamma Knife Center Gamma Knife Center 12075211/11/03
Score = 3 Southeastern Brain Tumor Foundation (SBFT) The site contains information on SBTF, its support group, and other activities 962905/15/00
Score = 3 Specialty License Plate for Brain Tumor Awareness 1391910/13/06
Score = 3 St. Jude Children`s Research Hospital Pediatric Brain Tumor Program 2434304/04/00
Score = 3 Stan`s GBM Blog Daily updates, pictures, & treatment reports, following his 4/05 GBM diagnosis 1813308/23/05
Score = 3 STAND Together In The Fight Pediatric Brain Tumor Support Organization 1049502/03/04
Score = 3 State of the Art in the Treatment of Medulloblastoma/Primitive Neuroectodermal Tumors with Radiation Therapy by Joel W. Goldwein, M.D 2048703/28/00
Score = 3 Staten Island University Hospital, New York Radiation-Oncology Dept. - Has easy to read papers on brain tumors (and other cancers) for patients. 1323504/04/00
Score = 3 Stereotactic Resection of a right medial parietal Glioma Case Study 1280603/29/00
Score = 3 Stereotactic Resection of an Optic/Hypothalamic Glioma Case Study with scans 1283203/29/00
Score = 3 Stereotactic Resection of Oligodendroglioma from Supplementary Motor Area Case Study 1288003/29/00
Score = 3 Subependymoma of the Temporal Horn--Case Study Richard Kim, MD, MS Chief Resident, NYU Dept. of Neurosurgery 1291103/28/00
Score = 3 Surgery in Supratentorial Low Grade Gliomas Patrick J. Kelly, M.D.,FACS 1240403/28/00
Score = 3 Teaching File case study on DNT Case Study 1076903/28/00
Score = 3 Teaching File case study on DNT from UHRAD With Scans 1006103/28/00
Score = 0 Team Amber Supporting Brain Cancer Awareness. Helping one family at a time. 205111/28/15
Score = 3 That`s Unacceptable Surviving a Brain Tumor - My Personal Story - By Rebecca L. Libutti 951504/04/00
Score = 3 The ABC`s of Brain Tumors from their Biology to their Treatment A Primer of Brain Tumors by John R. Mangiardi, M.D. and Howard Kane Wm. 2053003/27/00
Score = 3 The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves 1427403/28/00
Score = 3 The Acoustic Neuroma Radiosurgery Page at Johns Hopkins 1288403/28/00
Score = 3 The ÆGIS Clinical Trials Knowledgebase Information about clinical trials, including trials by category, location, disease or condition, and more. 861304/03/00
Score = 3 The American Cancer Society Cellular Phones and Risk of Brain Tumors This column is provided to help practitioners discuss potential environmental and workplace carcinogens, offering reassurance when patients` fears are unfounded and focusing legitimate concern when they are warran 2115510/24/02
Score = 3 The Andy Fund The Andy Fund was created by family and friends to honor the memory of Andrea "Andy" Clark Nelson who died on April 3, 1997 after valiantly fighting a battle with a glioblastoma multiforme, grade IV brain tumor for over five long years. Known and loved by many in her Vermont community and beyond, Andy created and managed the Swift House Inn in Middlebury. Andy left specific instructions that she wanted no services at the time if her death, but it was a dream of Andy`s that one day a cure for glioblastoma would be found. As a living memorial to Andy, The Andy Fund was established to support the research being conducted at the University of Vermont College of Medicine, Division of Neurosurgery, under the supervision of Dr. Paul Penar. 1672402/08/02
Score = 3 The Annie Appleseed Project Complementary, alternative cancer therapies from the patient perspective 641005/25/05
Score = 3 The Annie Appleseed Project Complementary, Alternative (CAM) from the cancer patient perspective 1065412/05/06
Score = 3 The Brad Kaminsky Foundation for Brain Tumor Research Brain Tumor Organizations 980709/12/01
Score = 3 THE Brain Trust meningioma internet support group Meningioma support 1374003/08/03
Score = 3 The Brain Tumor Center at Duke Clinical Trials List of Clinical Trials at Duke University 876504/02/00
Score = 3 The Brain Tumor Center at Duke in Durham, North Carolina dedicated entirely to the treatment and cure of brain and/or spinal cord tumors in children and adults 2331504/02/00
Score = 3 The Brain Tumor Foundation Providing support and resources for brain tumor patients and their loved ones 1468411/10/04
Score = 3 The Brain Tumor Foundation of Canada Supports research into the cause and cure of brain tumors 2610703/27/00
Score = 3 The Brain Tumor Society Home Page 800-770-TBTS Dedicated for providing resources to patients and families 1804303/27/00
Score = 3 The BrainTumor Book List. This is a list of the most useful books dealing with brain tumor treatments, coping, humor, grief and caregiver concerns. 969204/04/00
Score = 3 The Cancer Nutrition Center Expert nutrition advice for cancer patients and their families 1106803/26/04
Score = 3 The Central Brain Tumor Registry of the United States a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant 1696203/27/00
Score = 3 The Children`s Brain Tumor Foundation (212) 448-9494 Resources 2037003/29/00
Score = 3 The Children`s Tumor Foundation: Ending Neurofibromatosis Through Research 1313403/29/00
Score = 3 The Childrens Miracle Network Children`s Miracle Network is a non-profit organization dedicated to helping kids by raising funds and awareness for 170 affiliated children`s hospitals. 1979803/29/00
Score = 3 The Cleveland Clinic Department of Neurosurgery and Brain Tumor Center World Reknowned Brain Tumor Center 1475503/27/00
Score = 3 The Compassionate Friends Grief support after the death of a child. 985503/28/00
Score = 3 The Connecticut Hospice The Connecticut Hospice inaugurated hospice care in America in 1974. Since then, it has been the beacon and teacher of the growing hospice movement throughout the nation, and beyond. Connecticut Hospice addresses physical,spiritual, social, and emotional needs of patients with advanced irreversible illness, and their families. Such care is provided regardless of diagnosis and as long as the Hospice level of care is needed by the patients. 1053407/01/02
Score = 3 The David A. Nass, Jr. Memorial Foundation Empowerment of brain cancer patients through knowledge of the system; focuses on patient rights regarding experientmental treatment, including access to information and access to promising experimental treatment. 963010/04/00
Score = 3 The Department of Clinical Neurological Sciences at the University of Western Ontario. This site serves as an introduction to the Division of Neurology and as an educational forum for neurologists, residents, and practicing physicians around the country and abroad. 2794804/03/00
Score = 3 The Doe Report The Doe Report is the Internet`s largest library of medical demonstrative evidence for attorneys, containing thousands of exhibits, illustrations, anatomical models, and medical research. 968908/13/01
Score = 3 The Fruit of Hope Stories of long-time brain tumor survivors, translated to Greek 1031003/08/05
Score = 3 The Gus Foundation Provides funds for primary stage research of pediatric brain tumors. Provides support to children and their families coping with brian tumors. 1873804/28/04
Score = 3 The Healing Exchange BRAIN TRUST online support group -- The Meningioma List 1047011/03/02
Score = 3 The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 2424004/24/01
Score = 3 The Healing Spectrum Over 650 Alternative Medicine, Allopathic Medicine, & related sites are profiled! 986904/02/00
Score = 3 The Infography about Malignant Glioma Resources for brain tumors 4946404/30/04
Score = 3 The International Brain Tumour Alliance (IBTA) An alliance of support, advocacy and information groups for brain tumo(u)r patients and carers in different countries which also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours. 1048806/10/05
Score = 3 The International Center for Cell Therapy & Cancer Immunotherapy (CTCI) Clinic uses innovative cell therapy for many cancers including GBM...Not a clinical trial 341407/30/13
Score = 3 The James Crofts Hope Foundation Inc. Australian Site. The Foundation is committed to providing assistance for families of patients with brain tumours, and also to the advancement of the treatment and research of these conditions. 2926007/26/03
Score = 3 The Lancet The British Medical Journal 934904/02/00
Score = 3 The Leukemia & Lymphoma Society 1352603/28/00
Score = 3 The Matthew Larson Pediatric Brain Tumor Foundation (also known as IronMatt.org) The IronMatt Foundation Mission - To raise the awareness and funds needed to overcome pediatric brain tumors and to help the children and families affected by it. 1255202/19/08
Score = 3 The Meningioma Radiosurgery Page at Johns Hopkins Meningiomas are particularly well suited for radiosurgery. 1776603/29/00
Score = 3 The Musella Foundation For Brain Tumor Research & Information 516-295-4740 The organization that maintains Virtualtrials.com! 3026603/29/00
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Cedars-Siani Medical Center Brain Tumor Program

Hardin MD Clean Bill of Health

Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
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Jim Kenzig
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