Kristen Kenzig's Memorial

Information Links For Brain Tumors

Cedars-Siani Medical Center Brain Tumor Program


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Rating Site Name DescriptionVisitedDate Added
Score = 3 Brain Tumor Patient Resource Handbooks Excellent overview - Adult & Pediatric Versions. (Select "Publications" from the menu)! 1224604/04/00
Score = 3 Second Chance A Novel by Daniel Ovist - A full length book, available free! 979204/04/00
Score = 3 Slightly off topic - Skin diseases Listed here because people with brain tumors take many drugs that may cause skin problems 1555504/04/00
Score = 3 St. Jude Children`s Research Hospital Pediatric Brain Tumor Program 2435604/04/00
Score = 3 Staten Island University Hospital, New York Radiation-Oncology Dept. - Has easy to read papers on brain tumors (and other cancers) for patients. 1324104/04/00
Score = 3 That`s Unacceptable Surviving a Brain Tumor - My Personal Story - By Rebecca L. Libutti 952104/04/00
Score = 3 The BrainTumor Book List. This is a list of the most useful books dealing with brain tumor treatments, coping, humor, grief and caregiver concerns. 969804/04/00
Score = 3 The Talking Lady Presents: Having a Brain Tumor. This is a wonderful book to get if you have to explain brain tumors to a child. 1231404/04/00
Score = 3 UCLA Neuro-Surgery Program The Clinical Neuroscience Program at UCLA has consistently been ranked in the top 10 in the nation. 2359404/04/00
Score = 3 UCSF Cancer Center UCSF Comprehensive Cancer Center brings together hundreds of researchers and clinicians dedicated to four fundamental pursuits: basic science research into the causes and events of cancer`s progression; clinical research to translate new knowledge into viable treatments; sensitive, state-of-the-art patient care; and programs in epidemiology, prevention, and cancer control. 917604/04/00
Score = 3 Virtualtrials Chat Room Advanced Java Client This is twice the size (so it takes twice as long to load) as the simple java client. It has more options for you, but only try it if you have a fast connection, (or a lot of time:) 1008104/04/00
Score = 3 Virtualtrials Chat Room IRC Internet Relay Chat: This loads faster, but is a little harder to set up. This can be used from WEB TV, or older computers that don`t support JAVA. Use the server: virtualtrials.com and the room: braintumor 952704/04/00
Score = 3 Virtualtrials Chat Room Simple Java Client It may take a minute or 2 to load the first time you use it, longer if you have a slow connection. 965904/04/00
Score = 3 American Academy of Neurology Site of Neurology the Official Journal of the American Academy of Neurology abstracts and more 1582904/03/00
Score = 3 ClinicalTrials.gov The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies. 1821304/03/00
Score = 3 http://www.neurosurgery-online.com/ Official Journal of the Congress of Neurological Surgeons 1028704/03/00
Score = 3 ICSL Clinical Studies is one of the nation`s leading clinical research organizations. Working in conjunction with pharmaceutical companies, we are committed to researching new medications for a wide range of illnesses and conditions. 1756604/03/00
Score = 3 Medicine OnLine Online Magazine for information on medicine 1004004/03/00
Score = 3 Medline at the National Institute of Health Search for medical information and abstracts 1159404/03/00
Score = 3 MedScape OnLine Drug and disease information 1027704/03/00
Score = 3 MedWeb: Neurology Neurology links from Emory University 1297704/03/00
Score = 3 Mid-Suffolk Neurosurgical Associates A Neurosurgery group on Long Island, NY 980104/03/00
Score = 3 National Institute of Health Home Page Offers health information, grants and funding opportunities for research. 2671604/03/00
Score = 3 Neuropsychology Central Neuropsychology Frequently Asked Questions, Forum and Links 1795304/03/00
Score = 3 NeuroSource The `Global Directory` of Neuroscience! 1417304/03/00
Score = 3 NeuroWorld Portal of Neuromedicine! 1422004/03/00
Score = 3 Oncolink Search University of Pennsylvania 1783204/03/00
Score = 3 Pituitary Tumor Education & Support Group For the purpose of gaining a better and broader understanding of their pituitary diagnosis 1800504/03/00
Score = 3 Pituitary Tumor Network Association To support, pursue, encourage, promote and where possible, fund research on pituitary tumors and related pituitary disorders 1462204/03/00
Score = 3 Proxima Theraputics A new form of radiation therapy 1351704/03/00
Score = 3 Radiation Therapy for Pediatric Brain Tumors -Slide presentation 2285704/03/00
Score = 3 Radionics Corp. XKnife - Excellent explanation of Stereotactic Radiosurgery/Radiotherapy as well as Image-Guided Surgery 1016104/03/00
Score = 3 Shared Experience Cancer Support Searchable listing of first-hand accounts by cancer patients and their loved ones. 2341604/03/00
Score = 3 The ÆGIS Clinical Trials Knowledgebase Information about clinical trials, including trials by category, location, disease or condition, and more. 862004/03/00
Score = 3 The Department of Clinical Neurological Sciences at the University of Western Ontario. This site serves as an introduction to the Division of Neurology and as an educational forum for neurologists, residents, and practicing physicians around the country and abroad. 2795904/03/00
Score = 3 The National Childrens Cancer Society 1-800-5-Family The N.C.C.S. provides direct financial assistance and emotional support to children with cancer and their families nationwide 2051404/03/00
Score = 3 The Neurosurgery Email List The Neurosurgery Email list is a convenient way to communicate with members of the neurosurgical community from all over the world. 1380704/03/00
Score = 3 The NHMRC Clinical Trials Centre The NHMRC Clinical Trials Center of the University of Sydney is a leader in clinical trials research in Australia 827204/03/00
Score = 3 UCLA Brain Research Institute The Brain Research Institute (BRI) is an organized research unit (ORU) within the School of Medicine at the University of California, Los Angeles. 1386804/03/00
Score = 3 University of Miami Department of Neurosurgery University of Miami Department of Neurosurgery 1848104/03/00
Score = 3 Aidan`s Web page A pediatric Medulloblastoma survivor 1919804/02/00
Score = 3 All Experts Experts from many fields volunteer thier time to answer questons - free of charge - on broad range of topics, like brain tumors, computers, law, love. If you have a computer problem, this is the fastest place to get an answer! 2292304/02/00
Score = 3 Aspartame Consumer Safety Network Explores possible connection between brain tumors and Aspartame. 1639904/02/00
Score = 3 Berlin University Dept. Of Neurosurgery. Has videos of brain surgery, explanations of the newest techniques. 2012404/02/00
Score = 3 Boston Neurosurgical Foundation A multi-institutional neurosurgical team in Boston, Massachusetts serving Brigham and Women`s Hospital, Children`s Hospital, The Dana-Farber Cancer Institute and Harvard Medical School 2633904/02/00
Score = 3 Brain Tumor Center of the Neurological Institute at Columbia University dedicated to the treatment and clinical research of primary and metastic cancers of the brain, spinal cord, and nerve roots. 1737804/02/00
Score = 3 Cancer Care, Inc. a non-profit social service agency providing support to cancer patients and their families for over 50 years. Professional oncology social workers provide individual and group counseling in person, over the phone and through their web site (at no charge!) 1082804/02/00
Score = 3 Cancerlinks Cancerlinks helps in searching for information about brain (and other) cancer with comprehensive listings of informative urls. 1075804/02/00
Score = 3 Carrie`s page Glioblastoma Multiforme: The Gifts of an Illness 1356004/02/00
Score = 3 Center For Glioma Outcomes Research The GO Project is a voluntary, physician-directed project to improve outcomes for patients with glioma. 2349704/02/00
Score = 3 CenterWatch Clinical Trials Listing Site Lists clinical trials for all types of cancers 1457404/02/00
Score = 3 Clinical Medicine Resources Clinical Medicine Resources list - University of Iowa 1073904/02/00
Score = 3 Coalition Against Airport Pollution Anti-pollution 950404/02/00
Score = 3 Coping With Mild Brain Injury A book about coping 1470004/02/00
Score = 3 Current Controlled Trials Current Controlled Trials is dedicated to promoting the exchange of information about controlled trials in all areas of health and social care. The website includes the metaRegister of Controlled Trials (mRCT)- a major database of ongoing and completed controlled trials - and a Controlled Trials Links Register. Access to the mRCT and Links Register is free.` 1837904/02/00
Score = 3 Duggan`s Home Page of Support for Pituitary Tumor Patients 981404/02/00
Score = 3 Environmental Causes of Childhood Cancer and Remission Information Information on suspected causes of brain and neurological cancers, and the increase in cancers found in St. Lucie County, Florida 3055104/02/00
Score = 3 Familial Brain Tumor Registry Research project at MD Anderson which is aimed at identifying families who are at high risk for brain tumors and multiple cancer risk. 987904/02/00
Score = 3 FDA USA Food And Drug Administration Obtain the latest information on approved drugs 1813604/02/00
Score = 3 Gamma Knife Page (Elekta) Excellent explanation of how the Gamma Knife works 1046804/02/00
Score = 3 Give Hope Jennifer Hart`s page 998504/02/00
Score = 3 Healing Your Grief When you´ve lost someone close to you 1027504/02/00
Score = 3 Healthgate Free Medline / Cancerlit searches. Full text of articles available for a fee. 1008904/02/00
Score = 3 HealthWindows For Kids A site where kids (and adults) can learn about the body. Not brain tumor specific, but there are very good articles about the parts of the brain. 1883604/02/00
Score = 3 Human Tumor Assay Journal Information on chemosensitivity testing of tumor (including brain tumor) samples! 1001904/02/00
Score = 3 Immune Response Corp. This is the company working on the new Gene Therapy Vaccine For Glioblastomas! 1483704/02/00
Score = 3 Jazmin`s Home Page Jazzy Wren-My Battle with a Medulloblastoma Brain Tumor 1145104/02/00
Score = 3 Kris Onken Actual intra-operative pictures of Kris` surgery for a DNET tumor! 1487304/02/00
Score = 3 M.D. Anderson Cancer Center - University of Texas Cancer Center 1829704/02/00
Score = 3 Mary Catherine Fish An excerpt from her memoirs: This Is Not happening 1271204/02/00
Score = 3 Massachusetts General Hospital Neurosurgery Massachusetts General Hospital Neurosurgery 1516304/02/00
Score = 3 Medical Breakthroughs Subscribe to their free email newsletter! 1387704/02/00
Score = 3 Medicinal herbFAQ All you ever wanted to know - and ask on a newsgroup - more often than once a month - about medicinal herbs. 1030904/02/00
Score = 3 Monkey`s Treehouse Kyle`s home page 970204/02/00
Score = 3 Pituitary Tumor Mailing List The Pituitary List Serve is designed for patients and care givers who have, or have had Pituitary Tumors and Disorders. 1402004/02/00
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Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
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Jim Kenzig
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