Kristen Kenzig's Memorial

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Rating Site Name DescriptionVisitedDate Added
Score = 3 Flash-Med Medical Information A physician designed site for review of medical information in a flash-card format. 1084308/16/02
Score = 3 young adults surviving glioblastoma a positive resource. stories forums links support 1703108/06/02
Score = 3 GBM Distance Healing Project A study to determine if prayer can influence the outcome of a GBM 2053507/22/02
Score = 3 The Connecticut Hospice The Connecticut Hospice inaugurated hospice care in America in 1974. Since then, it has been the beacon and teacher of the growing hospice movement throughout the nation, and beyond. Connecticut Hospice addresses physical,spiritual, social, and emotional needs of patients with advanced irreversible illness, and their families. Such care is provided regardless of diagnosis and as long as the Hospice level of care is needed by the patients. 1090207/01/02
Score = 3 SDRT Astro Fund support to Low Grade Glioma patients and cares as well as raise money for research 3449105/20/02
Score = 3 Dr. Nicholas Avgeropoulos Has many useful links and resources for patients and families 5056705/18/02
Score = 3 Clinical Trials . Com Clinical Trials listings and information 1053205/17/02
Score = 3 Angel Flight America Free / discounted air fare for brain tumor patients 2385105/06/02
Score = 3 MedFriendly Free medical dictionary with easy to understand entries. 2413505/01/02
Score = 3 O.S.C.A.R (UK) OSCAR provides an ongoing support to the child and family from the moment they walk in to the hospital through to hopefully many years on. Initial support is in the form of providing knowledge, information and support at a most traumatic time and then ongoing support through the out patients treatments and long term guidance and assistance with the many consequences of that initial treatment. 1940504/23/02
Score = 3 Journal Of Neurosurgery Technical - but interesting medical journal 1473804/02/02
Score = 3 Neuro-oncology journal Medical journal - technical 1005104/01/02
Score = 3 Neurosurgery Online For doctors, but a lotof useful information patients can appreciate 1454004/01/02
Score = 3 Pub Med Search for articles on brain tumors. Free. Like medline. 1460804/01/02
Score = 3 Colorado Neurological Institute`s Center for Brain & Spinal Tumors CNI`s Brain Tumor Center has a comprehensive team approach 2149503/18/02
Score = 3 Scott Vickroy`s survivor story Aggressive treatment over 9 months included high-dose chemo and a stem cell rescue 2176603/18/02
Score = 3 Desmoplastic Infantile Ganglioglioma Information about this very rare Paediatric Brain Tumour 1165002/23/02
Score = 3 Neuro-Oncology Program @ Moffitt Cancer Center Neuro-Oncology Program located in Tampa, Florida. Moffitt is a NCI Comprehensive Cancer Center. Our program is part of the national CNS consortium, NABTT. 12130402/21/02
Score = 3 The Andy Fund The Andy Fund was created by family and friends to honor the memory of Andrea "Andy" Clark Nelson who died on April 3, 1997 after valiantly fighting a battle with a glioblastoma multiforme, grade IV brain tumor for over five long years. Known and loved by many in her Vermont community and beyond, Andy created and managed the Swift House Inn in Middlebury. Andy left specific instructions that she wanted no services at the time if her death, but it was a dream of Andy`s that one day a cure for glioblastoma would be found. As a living memorial to Andy, The Andy Fund was established to support the research being conducted at the University of Vermont College of Medicine, Division of Neurosurgery, under the supervision of Dr. Paul Penar. 1727102/08/02
Score = 3 YASG: Young Adults Surviving Glioblastoma We are here to inspire those young adults in their teens, twenties, and thirties, that do get diagnosed with this disease. 1446201/25/02
Score = 3 Welcom to our Family Tumor Page glioblastoma multiforme and personal pages, coming soon a diary of the journey 1608701/17/02
Score = 3 Craniopharyngioma online support group For craniopharyngioma patients and caregivers 1309901/12/02
Score = 3 Johns Hopkins Brain Tumor Radiosurgery Explore the latest news, treatments and outcomes for gliomas, acoustic neuromas, meningiomas, and pituitary tumors. 5699901/12/02
Score = 3 Joe`s Journey A web journal of Joe Vitale`s journey after being diagnosed with a low grade astrocytoma 1629701/11/02
Score = 3 Faith Emily Altbush This site is dedicated to the memory of our daughter who was taken from us by a diffuse pontine glioma. We have included a number of articles to help you understand what Faith endured, how much she meant to us and how we coped with her illness 2344401/06/02
Score = 3 CancerKids information, chat, hundreds of stories of childhood cancer 4496212/19/01
Score = 3 Journal of Postgraduate Medicine A peer-reviewed periodical indexed with MEDLINE and EMBASE with free full-text access to articles. 1039211/16/01
Score = 3 Locks of Love how people can donate hair for wigs for people losing hair to chemotherapy 2407410/18/01
Score = 3 Neuro-Oncology Program at Moffitt Cancer Center Brain Tumor Centers 8505509/19/01
Score = 3 Meningioma Talk A place to post questions and answers; problems and solutions; successes and failures; hopes and support about Meningioma brain tumors. 1572709/18/01
Score = 3 Yahoo Group: Meningioma Support and Information This is a place to share our stories, our hopes, our questions, and our frustrations about meningioma brain tumors. Please let us hear from you. 1963709/18/01
Score = 3 The Brad Kaminsky Foundation for Brain Tumor Research Brain Tumor Organizations 1022309/12/01
Score = 3 Brainstem Gliomas from Neurology to Neuro Oncology A very well written page outlining brainstem gliomas, their symptoms and their treatment 1802109/03/01
Score = 3 Sarcoma Alliance http://www.sarcomaalliance.com/ 1411208/24/01
Score = 3 The Doe Report The Doe Report is the Internet`s largest library of medical demonstrative evidence for attorneys, containing thousands of exhibits, illustrations, anatomical models, and medical research. 1009208/13/01
Score = 3 Coalition of Cancer Cooperative Groups Nonprofit providing cancer clinical trial information and trial navigation and matching service. 1569407/09/01
Score = 3 Kieran`s Web page Personal Web Page of 5 Year Old Boy.Had Brain Tumour Surgery 1999. 1369206/17/01
Score = 3 Megan`s Story Our baby girl was diagnosed with a brain tumour at 5 weeks of age. This is her story so far...... 1513005/27/01
Score = 3 Interpretation of Lab Tests A great resource for learning about blood tests and how to interpret results 1024205/08/01
Score = 3 The Healing Exchange BRAIN TRUST Internet-based support groups for people who have brain tumors and other neurological abnormalities. 2501004/24/01
Score = 3 Mount Sinai Medical Center Brain Tumor Program Mount Sinai Medical Center Brain Tumor Program 5449204/19/01
Score = 3 Gamma Knife Radiosurgery and Immunotherapy for Brain Tumors All types of brain tumors and their treatments described 10097504/09/01
Score = 3 NEW CANCER TREATMENTS, cures, research breakthroughs reported daily! Latest cancer news (by type) from 2500+ medical and research journals, FDA, and other sources 17273004/09/01
Score = 3 In Loving Memory An organization for bereaved parents with no surviving children. 1039504/08/01
Score = 3 Friendship corner (forum Brain Buddies) My board(pattyM12 is your host Forum for all people wth brain related surgerys and problem giving each other support could be you,your love ones,your friends,caretaker,come and join wonder people here 5175203/08/01
Score = 3 Glivec Discussion Group A discussion group for persons interested in the new cancer treatment drug, Glivec. 2330403/07/01
Score = 3 Craniopharyngioma Self-Help-Group German Self-Help-Group for Craniopharyngioma-Patients. With: MessageBoard & Chat, Contact: alternativ www-adress: www.kraniopharyngeom.com ,bachem@kraniopharyngeom.com, We like to get in contact to patients from all of the world 1135303/05/01
Score = 3 Corbin Bear Ryther Child with brainstem tumor 1298002/07/01
Score = 4 Marg`s Journey The web diary of a 54 year old woman diagnosed with a glioblastoma multiforme brain tumour 4255801/14/01
Score = 3 Austin`s Miracle Fund Charity organization assisting children with brain cancer. 3727701/12/01
Score = 3 Meningioma Support and Information A place for support and information on Meningiomas and their treatment 2097901/01/01
Score = 3 Shared Experience Cancer SUpport Knowledgebase Shared Experience is a non-profit, searchable collection of first-hand accounts by cancer patients and the people who love and care for them. It has one narrow focus: to share personal experiences of cancer survivors and provide a nexus for the recently diagnosed and others to contact one another. 2109912/05/00
Score = 3 Indexed Visuals Medical Images 1903512/04/00
Score = 3 Canadian Brain Tumor Support List The Canadian Healthcare system is unique and Brain Tumor treatment options are different from US Centres which is why this group was created. to discuss those differences. 1126811/25/00
Score = 3 Select Review in Neuro - Oncology 1338710/18/00
Score = 3 Tina`s Progress Martina`s Story 1017110/14/00
Score = 3 International Radiosurgery Support Association 8685210/12/00
Score = 3 The David A. Nass, Jr. Memorial Foundation Empowerment of brain cancer patients through knowledge of the system; focuses on patient rights regarding experientmental treatment, including access to information and access to promising experimental treatment. 1002310/04/00
Score = 3 New treatment strategies for Malignant Gliomas Abstract by Nicholas Avgeropoulos 3211309/26/00
Score = 3 Heavenly Lights Children`s Memorial This site in an online childrens memorial dedicated to raising awarenss to childhood disease. Those that have lost a child may have a star added in their memory for free. Come out and click on the childs stars and read of their battles here on earth. 1403609/04/00
Score = 3 NeuroNetwork Resources for Brain Tumor Patients In The Dallas / Fort Worth Metroplex Of Texas 14583909/02/00
Score = 3 USA RIDE Make car reservations online! 1001609/02/00
Score = 3 Coma Recovery Association A non-profit organization founded in 1980 by the family members of comatose patients. We offer mutual aid and support, support group meetings, general information, referrals and advocacy. 3042008/19/00
Score = 3 Karmanos Cancer Institute Brain tumor research / treatment center 1550508/18/00
Score = 3 Cancerpage and TrialMatch Find Clinical Trials that you are elibible for; Ask Our RN any question; join the Support Groups in chat rooms online every day, 13955207/19/00
Score = 3 American Brain Tumor Association ABTA is a non-profit,independent organization dedicated to providing research funding, education matierials and resource information and advocacy. 1966207/18/00
Score = 3 Info for Patients Find Clinical Trials, Ask Our RN, Support Groups online every day, 10467106/27/00
Score = 3 Gliomas.com A Website for the Treatment of Cancers Otherwise Unresponsive to Chemotherapy 5960306/16/00
Score = 3 Hospice Patients Alliance: Consumer Advocates providing complete information on hospice services, levels of care, standards of care and regulations right on our site, free assistance in resolving difficulties, publish: Family Guide to Hospice Care (more than 300 pages) 3374306/16/00
Score = 3 Kirra Astrocytoma Brain Tumour Story. The Story of 18 month old Kirra after being diagnosed with a Astrocytoma Brain Tumour in her Cerebellum. Info, links, scans and regular updates on Kirra`s progress. 1657106/14/00
Score = 3 Drug Assistance Programs - Free Drugs! Tells how you can get free or reduced price drugs if you can`t afford them 3672205/25/00
Score = 3 Southeastern Brain Tumor Foundation (SBFT) The site contains information on SBTF, its support group, and other activities 1003305/15/00
Score = 3 Fairview University Childrens Hospital One of the most unique features of the Fairview Children’s Web site is a database-driven research resource containing the most updated medical information available from Fairview. This database includes data on:Childhood cancerTumorsDiabetesHeart co 1066705/11/00
Score = 3 Management of Begnine and Agressive Intracranial Meningiomas A very detailed study of problems and new treatments for meningiomas 1455105/10/00
Score = 4 UCLA Neuro-Oncology Program: A leading comprehensive brain tumor program, using molecular diagnostic & gene expression analysis to customize treatment plans. Offers patient support groups, cutting edge clinical trials and Infinity Online software to help predict clinical outcomes based on 10 years of retrospective treatment plans. 13961404/12/00
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Disclaimer: These links and information are provided for information purposes only. The author of this page claims no responsibility for any of the content provided by these sites. The worldwide web can sometimes contain false or misleading information. Use this information at your own risk and discretion. Always obtain a qualified physicians advice before starting any treatment.
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This page is maintained by Jim Kenzig
In Memory of
Kristen Kenzig who died from a Pontine Brain Stem Glioma in Sept. 1997 at age 10.
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Donations to assist in the maintenance of this website may be sent to:
Jim Kenzig
18253 Jefferson Park Road APT 103
Cleveland, OH 44130 or PayPal funds to jkenzig@gmail.com